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Nonprofit · EIN 85-3259676

HUNTERS CMT4B3 RESEARCH FOUNDATION INC

Tax-exempt · NEW YORK, NY 10075

Financials

$407K$287K2023$501K$248K2024$609K$260K2025
Revenue Expenses · by fiscal year end
Financials of HUNTERS CMT4B3 RESEARCH FOUNDATION INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$608,710$259,832$348,878$1,476,047$11,921$1,464,126
December 31, 2024990$500,835$248,196$252,639$1,099,881$12,155$1,087,726
December 31, 2023990$407,129$287,397$119,732$824,518$8,834$815,684
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$558,628
Program service revenue
$0
Investment income
$50,082
Other revenue
$0

Expenses

Grants and similar amounts paid
$208,468
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Legal fees
$7,250
Program services (functional)
$219,795
Management and general (functional)
$24,272
Fundraising (functional)
$15,765

Balance sheet and other

Total assets, start of year
$1,099,881
Total assets, end of year
$1,476,047
Total liabilities, end of year
$11,921
Net assets, end of year
$1,464,126
Publicly traded securities
$1,402,322
Net assets without donor restrictions
$1,464,126
Gross receipts
$701,889
Employees
0
Volunteers
0
Year formed
2020
State of legal domicile
DE

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
AMY CAYNE SCHWARTZDIRECTOR
Trustee or director
1$0
LIANNE CHAN CAPPODIRECTOR
Trustee or director
0.5$0
MANDEEP KAUR CHOHANDIRECTOR
Trustee or director
0.5$0
LINDSAY ZAKENSECRETARY
Trustee or director
5$0
HARRY FEINBERGDIRECTOR
Trustee or director
5$0
IRIS SCHULTZPRESIDENT
Officer
45$0
BRETT SCHULTZVICE PRESIDENT
Officer
5$0
ROBIN SCHULTZTREASURER
Officer
45$0
990 for the year ended December 31, 2024: 8 people
NameTitleHours / weekCompensation
AMY CAYNE SCHWARTZDIRECTOR
Trustee or director
1$0
LIANNE CHAN CAPPODIRECTOR
Trustee or director
0.5$0
MANDEEP KAUR CHOHANDIRECTOR
Trustee or director
0.5$0
LINDSAY ZAKENSECRETARY
Trustee or director
5$0
HARRY FEINBERGDIRECTOR
Trustee or director
5$0
IRIS SCHULTZPRESIDENT
Officer
45$0
BRETT SCHULTZVICE PRESIDENT
Officer
5$0
ROBIN SCHULTZTREASURER
Officer
45$0
990 for the year ended December 31, 2023: 8 people
NameTitleHours / weekCompensation
AMY CAYNE SCHWARTZDIRECTOR
Trustee or director
1$0
LIANNE CHAN CAPPODIRECTOR
Trustee or director
0.5$0
MANDEEP KAUR CHOHANDIRECTOR
Trustee or director
0.5$0
LINDSAY ZAKENSECRETARY
Trustee or director
1$0
JARED CASDENDIRECTOR
Trustee or director
5$0
IRIS SCHULTZPRESIDENT
Officer
45$0
BRETT SCHULTZVICE PRESIDENT
Officer
5$0
ROBIN SCHULTZTREASURER
Officer
45$0

Address and contacts

Address (IRS master file)
180 E 79TH ST APT 3D, NEW YORK, NY 10075-0569
In care of
% IRIS SCHULTZ
Principal officer (990 for 2025)
IRIS SCHULTZ, 180 EAST 79TH STREET 3D, NEW YORK, NY 10075
Signed the 990
IRIS SCHULTZ, PRESIDENT
Phone
(917) 453-2319
Return prepared by
TOBIN & COMPANY CPA'S

Mission

TO FUND SCIENTIFIC RESEARCH LEADING TO THE DISCOVERY, DEVELOPMENT, AND CLINICAL APPLICATIONS FOR THEREPEUTIC TREATMENTS AND CURES FOR CHARCOT-MARIE-TOOTH DISEASE TYPE 4B3 (CMT 4B3), AND TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH CMT4B3.

990 for the year ended December 31, 2025

Program accomplishments

  • CMT4B3 AWARDS RESEARCH FELLOWSHIP AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DISEASE TYPE 4B3. IT ALSO HOSTS ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING AND ITS SCIENTIFIC ADVISORY BOARD TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF ITS SCIENTIFIC ADVISORY BOARD TO CAREFULLY OVERSEE AND REVIEW THE SELECTION OF THE RECIPIENTS OF THE RESEARCH FUNDING. THE SAB EVALUATES EACH PROPOSAL BASED ON THE EXCELLENCE OF THE INVESTIGATOR, THE WORK PLAN AND THE PROPOSALS' ABILITY TO BE TRANSLATED INTO TREATMENTS FOR PEOPLE WITH CMT4B3. APPLICATIONS ARE REVIEWED ON A ROLLING BASIS. THE LAW FIRM OF KATTEN MUCHIN ROSENMAN, LLP WRITES THE GRANT AGREEMENT CONTRACTS WITH THESE RESEARCHERS, UNIVERSITIES, OR ACADEMIC INSTITUTIONS.THE BOARD MEMBERS, IRIS SCHULTZ AND ROBIN SCHULTZ, ATTEND THE YEARLY MEETING OF THE PERIPHERAL NERVE SOCIETY AND THE CMTRF ANNUAL CONFERENCE. CMT4B3 IS LISTED AS A PATIENT RESOURCE OF THE PNS. ATTENDANCE AT THE PNS GIVES BOARD MEMBERS THE ABILITY TO MEET WITH AND EXCHANGE IDEAS WITH INTERNATIONAL RESEARCHERS OF CMT AND CMT4B3.CMT4B3 MAINTAINS A WEBSITE FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO ASSIST IN UNDERSTANDING AND TREATING CHARCOT-MARIE-TOOTH DISEASE TYPE 4B3. THE WEBSITE CONTAINS LINKS TO OUR RESEARCH PROJECTS, A NEW PATIENT PORTAL TO JOIN OUR NEUROGENETICS REGISTRY AND THE ABILITY TO JOIN OUR NATURAL HISTORY STUDIES. CMT4B3 PRODUCES EDUCATIONAL MATERIALS DISSEMINATED AT CONFERENCES AND AT PUBLIC EVENTS TO RAISE AWARENESS. CMT4B3 MAINTAINS CLIENT MANAGEMENT SOFTWARE. IT RETAINS ACCOUNTING SERVICES. CMT4B3 FOUNDATION IS COMPOSED OF VOLUNTEERS WHO WORK FROM HOME AND DO NOT TAKE ANY SALARIES.THE FOUNDATION MAINTAINS A BIOREPOSITORY OF CMT4B3 CELLULAR MODELS AND RENEWABLE BIOLOGICAL RESOURCES AT SAMPLED, LOCATED IN PISCATAWAY, NEW JERSEY. THE FOUNDATION COLLECTS AND STORES MOLECULAR BIOLOGY SAMPLES FROM CMT4B3 PATIENTS AND THEIR IMMEDIATE FAMILY MEMBERS AT NO COST TO THE PATIENTS. SAMPLES ARE PROVIDED TO LABORATORIES AND RESEARCHERS WORLDWIDE AT NO COST, UPON REQUEST. THE SCIENTIFIC ADVISORY BOARD MEMBERS ARE REQUIRED TO SIGN CONFIDENTIALITY AGREEMENTS.
    Expenses $219,795 · grants $208,468

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
85-3259676
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2021
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H12)
Assets (IRS master file)
$1,476,047
Income (IRS master file)
$701,889

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$608,710$259,832$1,476,047XML
990December 2024$500,835$248,196$1,099,881XML
990December 2023$407,129$287,397$824,518XML
990December 2022$352,665$306,267$692,726IRS
990December 2021–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 85-3259676).

Questions about HUNTERS CMT4B3 RESEARCH FOUNDATION INC

What is the EIN of HUNTERS CMT4B3 RESEARCH FOUNDATION INC?
The employer identification number (EIN) of HUNTERS CMT4B3 RESEARCH FOUNDATION INC is 85-3259676.
Is HUNTERS CMT4B3 RESEARCH FOUNDATION INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
Are donations to HUNTERS CMT4B3 RESEARCH FOUNDATION INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does HUNTERS CMT4B3 RESEARCH FOUNDATION INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of HUNTERS CMT4B3 RESEARCH FOUNDATION INC due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did HUNTERS CMT4B3 RESEARCH FOUNDATION INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of HUNTERS CMT4B3 RESEARCH FOUNDATION INC?
The 990 for the year ended December 31, 2025 names IRIS SCHULTZ.
Who are the officers and directors of HUNTERS CMT4B3 RESEARCH FOUNDATION INC?
The 990 for the year ended December 31, 2025 lists 8 people; 0 received compensation from the organization.
How much revenue does HUNTERS CMT4B3 RESEARCH FOUNDATION INC have?
On its 990 for the year ended December 31, 2025 it reported revenue of $608,710, expenses of $259,832 and total assets of $1,476,047 at year end.

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