Nonprofit · EIN 84-4985747
CACNA1A FOUNDATION INC
Tax-exempt · NORWALK, CT 06854
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $710,127 | $390,485 | $319,642 | $1,008,357 | $78,125 | $930,232 |
| December 31, 2024 | 990 | $465,614 | $540,157 | -$74,543 | $726,400 | $115,810 | $610,590 |
| December 31, 2023 | 990 | $385,860 | $453,703 | -$67,843 | $863,328 | $178,195 | $685,133 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $597,205
- Program service revenue
- $89,059
- Investment income
- $23,361
- Other revenue
- $502
Expenses
- Grants and similar amounts paid
- $97,853
- Compensation of officers, directors and key employees
- $42,073
- Salaries, compensation and benefits (total)
- $45,334
- Professional fundraising fees
- $0
- Legal fees
- $9,383
- Accounting fees
- $16,845
- Travel
- $4,128
- Program services (functional)
- $256,297
- Management and general (functional)
- $48,032
- Fundraising (functional)
- $86,156
Balance sheet and other
- Total assets, start of year
- $726,400
- Total assets, end of year
- $1,008,357
- Total liabilities, end of year
- $78,125
- Net assets, end of year
- $930,232
- Net assets without donor restrictions
- $930,232
- Gross receipts
- $710,127
- Employees
- 1
- Volunteers
- 35
- Year formed
- 2020
- State of legal domicile
- CT
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Shira Johnson | Executive Director Officer | 40 | $42,073 |
| Lisa Manaster | President Trustee or director, Officer | 40 | $0 |
| Sunitha Malepati | Vice President & Treasurer Trustee or director, Officer | 40 | $0 |
| Allison Buchner | Director Trustee or director | 5 | $0 |
| Amy Junge | Secretary Trustee or director, Officer | 10 | $0 |
| Hala Mirza | Director Trustee or director | 5 | $0 |
| Sarah Greathouse | Director Trustee or director | 5 | $0 |
| Deborah Ondrasik MD | Director Trustee or director | 5 | $0 |
| Michael Strupp | Director Trustee or director | 5 | $0 |
| Casey Dawley | Director Trustee or director | 5 | $0 |
| Brandon Farley PhD | Director Trustee or director | 5 | $0 |
990 for the year ended December 31, 2024: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Allison Buchner | Director Trustee or director | 5 | $0 |
| Hala Mirza | Director Trustee or director | 2 | $0 |
| Sarah Greathouse | Director Trustee or director | 5 | $0 |
| Deborah Ondrasik MD | Director Trustee or director | 5 | $0 |
| Michael Strupp | Director Trustee or director | 5 | $0 |
| Lisa Manaster | President Trustee or director, Officer | 40 | $0 |
| Sunitha Malepati | Vice President & Treasurer Trustee or director, Officer | 40 | $0 |
| Amy Junge | Secretary Trustee or director, Officer | 10 | $0 |
990 for the year ended December 31, 2023: 7 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Allison Buchner | Director Trustee or director | 5 | $0 |
| Hala Mirza | Director Trustee or director | 2 | $0 |
| Deborah Ondrasik MD | Director Trustee or director | 5 | $0 |
| Sarah Greathouse | Director Trustee or director | 5 | $0 |
| Lisa Manaster | President Trustee or director, Officer | 40 | $0 |
| Sunitha Malepati | Vice President & Treasurer Trustee or director, Officer | 40 | $0 |
| Amy Junge | Secretary Trustee or director, Officer | 10 | $0 |
Address and contacts
- Address (IRS master file)
- 31 POINT RD, NORWALK, CT 06854-5024
- In care of
- % SUNITHA MALEPATI
- Principal officer (990 for 2025)
- Sunitha Malepati, 31 Point Road, Norwalk, CT 06854
- Signed the 990
- SUNITHA MALEPATI, Vice President & Treasurer
- Phone
- (203) 969-6552
- Website
- www.cacna1a.org
- Return prepared by
- Mullins PC
Mission
To find specific treatment options and a cure for CACNA1A patients. (See Schedule O for full mission)
Program accomplishments
- Research: See Schedule O.Expenses $171,163 · grants $97,853
- Conference and Other Programs: See Schedule O.Expenses $58,346 · revenue $89,059
- Outreach: See Schedule O.Expenses $26,788
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 84-4985747
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2020
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20)
- Assets (IRS master file)
- $1,008,357
- Income (IRS master file)
- $710,127
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $710,127 | $390,485 | $1,008,357 | IRS |
| 990 | December 2024 | $465,614 | $540,157 | $726,400 | XML |
| 990 | December 2023 | $385,860 | $453,703 | $863,328 | XML |
| 990 | December 2022 | $343,299 | $403,405 | $876,537 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 84-4985747).
Questions about CACNA1A FOUNDATION INC
- What is the EIN of CACNA1A FOUNDATION INC?
- The employer identification number (EIN) of CACNA1A FOUNDATION INC is 84-4985747.
- Is CACNA1A FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2020.
- Are donations to CACNA1A FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CACNA1A FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CACNA1A FOUNDATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CACNA1A FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CACNA1A FOUNDATION INC?
- The 990 for the year ended December 31, 2025 names Sunitha Malepati.
- Who are the officers and directors of CACNA1A FOUNDATION INC?
- The 990 for the year ended December 31, 2025 lists 11 people; 1 received compensation from the organization, the highest $42,073 (Shira Johnson, Executive Director).
- How much revenue does CACNA1A FOUNDATION INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $710,127, expenses of $390,485 and total assets of $1,008,357 at year end.
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All nonprofits in NORWALK · Connecticut · Voluntary health associations and medical disciplines