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Nonprofit · EIN 84-4406415

RARE SISTERS BATTEN FOUNDATION INC

Tax-exempt · ARVADA, CO 80006

Financials

$284K$214K2023$298K$243K2024
Revenue Expenses · by fiscal year end
Financials of RARE SISTERS BATTEN FOUNDATION INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$297,782$242,746$55,036$197,365$0$197,365
December 31, 2023990$283,979$214,052$69,927$142,329$0$142,329
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$295,741
of which government grants
$100,861
Program service revenue
$0
Investment income
$2,041
Other revenue
$0

Expenses

Grants and similar amounts paid
$161,467
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Travel
$786
Program services (functional)
$162,253
Management and general (functional)
$6,278
Fundraising (functional)
$74,215

Balance sheet and other

Total assets, start of year
$142,329
Total assets, end of year
$197,365
Total liabilities, end of year
$0
Net assets, end of year
$197,365
Net assets without donor restrictions
$197,365
Gross receipts
$297,782
Employees
0
Year formed
2020
State of legal domicile
CO

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
ELIZABETH FRIESPRESIDENT
Officer
20$0
BRADLEY STOLZBOARD MEMBER
Officer
0$0
DAVE BRAZZELLBOARD MEMBER
Officer
1$0
JOEL CASSADYTREASURER
Officer
0$0
KRISTINE WOLFESECRETARY
Officer
0$0
JONATHAN FRIESBOARD MEMBER
Officer
0$0
IAN STUUTBOARD MEMBER
Officer
1$0
JENNIFER BAKERBOARD MEMBER
Officer
1$0
990 for the year ended December 31, 2023: 8 people
NameTitleHours / weekCompensation
JONATHAN FRIESBOARD MEMBER
Officer
0$0
KRISTINE WOLFESECRETARY
Officer
0$0
JENNIFER BAKERBOARD MEMBER
Officer
1$0
IAN STUUTBOARD MEMBER
Officer
1$0
BRADLEY STOLZBOARD MEMBER
Officer
0$0
ELIZABETH FRIESPRESIDENT
Officer
20$0
JOEL CASSADYTREASURER
Officer
0$0
DAVE BRAZZELLBOARD MEMBER
Officer
1$0

Address and contacts

Address (IRS master file)
PO BOX 746561, ARVADA, CO 80006-6561
In care of
% ELIZABETH FRIES
Signed the 990
ELIZABETH FRIES, PRESIDENT
Phone
(303) 578-8422

Mission

THE RARE SISTERS BATTEN FOUNDATION AIMS TO HELP FURTHER THE DEVELOPMENT OF MEDICAL RESEARCH FOR TREATMENTS AND CURES FOR CLN3 BATTEN DISEASE, AND PROVIDE MONETARY ASSISTANCE TO FAMILIES WITH CHILDREN DIAGNOSED WITH BATTEN DISEASE.

990 for the year ended December 31, 2024

Program accomplishments

  • ADVOCATED AND RAISED AWARENESS FOR BATTEN DISEASE AND OTHER RARE DISEASES WITH THREE EVENTS, REACHING OVER 1800 PEOPLE. GRANTS PAID TO HELP BATTEN FAMILIES PURCHASE ACCESSIBLE VEHICLES, AND WHEELCHAIRS. SIX FAMILIES BENEFITED FROM RSBF GRANTS THIS YEAR. GRANT PAID TO FUND THE BATTEN AND NEURODEGENERATIVE CLINIC AT CHILDRENS HOSPITAL COLORADO AND SUPPORT THE BDSRA FAMILY FOUNDATIONS ANNUAL CONFERENCE.
    Expenses $162,253 · grants $161,467 · revenue $297,782

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
84-4406415
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (509(a)(2))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2020
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$197,365
Income (IRS master file)
$297,782

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$297,782$242,746$197,365IRS
990December 2023$283,979$214,052$142,329XML
990December 2022$227,631$268,912$102,776IRS
990December 2021–––IRS
990-EZDecember 2020–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 84-4406415).

Questions about RARE SISTERS BATTEN FOUNDATION INC

What is the EIN of RARE SISTERS BATTEN FOUNDATION INC?
The employer identification number (EIN) of RARE SISTERS BATTEN FOUNDATION INC is 84-4406415.
Is RARE SISTERS BATTEN FOUNDATION INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2020.
Are donations to RARE SISTERS BATTEN FOUNDATION INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does RARE SISTERS BATTEN FOUNDATION INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of RARE SISTERS BATTEN FOUNDATION INC due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did RARE SISTERS BATTEN FOUNDATION INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who are the officers and directors of RARE SISTERS BATTEN FOUNDATION INC?
The 990 for the year ended December 31, 2024 lists 8 people; 0 received compensation from the organization.
How much revenue does RARE SISTERS BATTEN FOUNDATION INC have?
On its 990 for the year ended December 31, 2024 it reported revenue of $297,782, expenses of $242,746 and total assets of $197,365 at year end.

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