Nonprofit · EIN 84-2913037
SMITH-KINGSMORE SYNDROME FOUNDATION
Tax-exempt · CINCINNATI, OH 45208
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $168,029 | $165,899 | $2,130 | $271,115 | $0 | $271,115 |
| June 30, 2024 | 990 | $172,229 | $349,410 | -$177,181 | $275,600 | $6,615 | $268,985 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $166,500
- Program service revenue
- $0
- Investment income
- $1,487
- Other revenue
- $42
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $57,500
- Salaries, compensation and benefits (total)
- $62,901
- Professional fundraising fees
- $0
- Legal fees
- $1,851
- Accounting fees
- $7,117
- Travel
- $1,452
- Program services (functional)
- $116,864
- Management and general (functional)
- $15,387
- Fundraising (functional)
- $33,648
Balance sheet and other
- Total assets, start of year
- $275,600
- Total assets, end of year
- $271,115
- Total liabilities, end of year
- $0
- Net assets, end of year
- $271,115
- Net assets without donor restrictions
- $263,937
- Net assets with donor restrictions
- $7,178
- Gross receipts
- $168,029
- Employees
- 2
- Volunteers
- 10
- Year formed
- 2019
- State of legal domicile
- OH
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Kristen Groseclose | Director of Development Trustee or director, Officer | 40 | $35,000 | $1,050 |
| Susan Dando | Executive Director Officer | 40 | $22,500 | $0 |
| Cass Briggs | Director Trustee or director | 2 | $0 | $0 |
| Dan Lepore | Director Trustee or director | 2 | $0 | $0 |
| Krista Burris | Director Trustee or director | 5 | $0 | $0 |
| Matt Walsh | Director Trustee or director | 1 | $0 | $0 |
| Mike Groseclose | Treasurer and Interim Secretary Trustee or director, Officer | 15 | $0 | $0 |
| Nazira Kelly | Vice President Trustee or director, Officer | 5 | $0 | $0 |
| Sarah Lepore | President Trustee or director, Officer | 7 | $0 | $0 |
990 for the year ended June 30, 2024: 9 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Susan Dando | Executive Director Officer | 40 | $90,000 | $0 |
| Kristen Groseclose | Director of Development Trustee or director, Officer | 40 | $70,000 | $1,050 |
| Matt Walsh | Director Trustee or director | 1 | $0 | $0 |
| Cass Briggs | Director Trustee or director | 2 | $0 | $0 |
| Dan Lepore | Director Trustee or director | 2 | $0 | $0 |
| Eric Kelly | Director Trustee or director | 5 | $0 | $0 |
| Sarah Lepore | President Trustee or director, Officer | 7 | $0 | $0 |
| Mike Groseclose | Treasurer and Interim Secreta Trustee or director, Officer | 15 | $0 | $0 |
| Nazira Kelly | Vice President Trustee or director, Officer | 5 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 2722 ERIE AVE STE 219 PMB 683837, CINCINNATI, OH 45208-2154
- In care of
- % SARAH LEPORE
- Principal officer (990 for 2024)
- Sarah Lepore, 2722 Erie Ave PMB 683837 STE 219, Cincinnati, OH 452082154
- Signed the 990
- SARAH LEPORE, President
- Phone
- (513) 755-1705
- Website
- https://smithkingsmore.org
- Return prepared by
- Mullins PC
Mission
Fund research to better understand Smith-Kingsmore syndrome and find treatments to improve patient quality of life and, ultimately, a cure.
Program accomplishments
- This year, Smith-Kingsmore Syndrome Foundation advanced its mission with a comprehensive scientific strategy and participation in key conferences to strengthen ties with the research and clinical community. We launched a multi-year drug repurposing initiative in Dr. Joanna Chius laboratory at the University of CaliforniaDavis, building on prior Foundation-funded work modeling SKS phenotypes and screening FDA-approved compounds; funded through the next two fiscal years, this is a major step toward identifying treatment options for individuals with SKS. We also began cataloging all known SKS variants to enhance understanding of genotypephenotype relationships and continued hosting events connecting families, clinicians, and researchers to advance progress toward effective treatments.Expenses $116,864
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 84-2913037
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2020
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $271,115
- Income (IRS master file)
- $168,029
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $168,029 | $165,899 | $271,115 | XML |
| 990 | June 2024 | $172,229 | $349,410 | $275,600 | XML |
| 990 | June 2023 | $74,750 | $224,706 | $509,150 | IRS |
| 990 | June 2022 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 84-2913037).
Questions about SMITH-KINGSMORE SYNDROME FOUNDATION
- What is the EIN of SMITH-KINGSMORE SYNDROME FOUNDATION?
- The employer identification number (EIN) of SMITH-KINGSMORE SYNDROME FOUNDATION is 84-2913037.
- Is SMITH-KINGSMORE SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2020.
- Are donations to SMITH-KINGSMORE SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SMITH-KINGSMORE SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SMITH-KINGSMORE SYNDROME FOUNDATION due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SMITH-KINGSMORE SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of SMITH-KINGSMORE SYNDROME FOUNDATION?
- The 990 for the year ended June 30, 2025 names Sarah Lepore.
- Who are the officers and directors of SMITH-KINGSMORE SYNDROME FOUNDATION?
- The 990 for the year ended June 30, 2025 lists 9 people; 2 received compensation from the organization, the highest $35,000 (Kristen Groseclose, Director of Development).
- How much revenue does SMITH-KINGSMORE SYNDROME FOUNDATION have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $168,029, expenses of $165,899 and total assets of $271,115 at year end.
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