Nonprofit · EIN 84-2748218
KCNT1 SLACK EPILEPSY FOUNDATION INC
Also known as KCNT1 EPILEPSY FOUNDATION
Tax-exempt · SCOTTSDALE, AZ 85266
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $1,525,375 | $485,949 | $1,039,426 | $2,044,774 | $0 | $2,044,774 |
| December 31, 2024 | 990 | $719,180 | $218,171 | $501,009 | $1,006,148 | $0 | $1,006,148 |
| December 31, 2023 | 990 | $364,257 | $121,548 | $242,709 | $505,139 | $0 | $505,139 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $1,479,825
- Program service revenue
- $0
- Investment income
- $45,550
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $2,000
- Salaries, compensation and benefits (total)
- $30,746
- Professional fundraising fees
- $0
- Legal fees
- $6,360
- Travel
- $1,075
- Program services (functional)
- $382,221
- Management and general (functional)
- $91,266
- Fundraising (functional)
- $12,462
Balance sheet and other
- Total assets, start of year
- $1,006,148
- Total assets, end of year
- $2,044,774
- Total liabilities, end of year
- $0
- Net assets, end of year
- $2,044,774
- Net assets without donor restrictions
- $553,020
- Net assets with donor restrictions
- $1,491,754
- Gross receipts
- $1,525,375
- Employees
- 1
- Year formed
- 2019
- State of legal domicile
- AZ
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Sarah Drislane | Executive Director Trustee or director | 60 | $28,125 |
| Margot Goodkin | Director Trustee or director | 0.25 | $0 |
| Samantha MacMechan | Director Trustee or director | 0.25 | $0 |
| Owen Billman | Chairman Trustee or director | 2 | $0 |
| Dewey McLin | Director Trustee or director | 0.25 | $0 |
| Bonnie Royster | Director Trustee or director | 0.25 | $0 |
| Sean Turbeville | Director Trustee or director | 1 | $0 |
| Justin West | President Officer | 10 | $0 |
| Norman Metcalfe | Treasurer Officer | 1 | $0 |
| Meg Snowden | Secretary Officer | 1 | $0 |
990 for the year ended December 31, 2024: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Sarah Drislane | Executive Director Trustee or director | 60 | $0 |
| Owen Billman | Chairman Trustee or director | 3 | $0 |
| Jason J Kaufman | Director Trustee or director | 0.25 | $0 |
| Morrisette Royster | Director Trustee or director | 0.25 | $0 |
| Joseph Riculli | Director Trustee or director | 0.25 | $0 |
| Dewey McLin | Director Trustee or director | 0.25 | $0 |
| Justin West | President Officer | 10 | $0 |
| Margot Goodkin | Secretary Officer | 0.25 | $0 |
| Norman Metcalfe | Treasurer Officer | 2 | $0 |
| Samantha MacMechan | Vice Chair Officer | 0.25 | $0 |
990 for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jason J Kaufman | Director Trustee or director | 0.25 | $0 |
| Owen Billman | Chairman Trustee or director | 3 | $0 |
| Morrisette Royster | Director Trustee or director | 0.25 | $0 |
| Sarah Drislane | Executive Director Trustee or director | 20 | $0 |
| Joseph Riculli | Director Trustee or director | 0.25 | $0 |
| Margot Goodkin | Secretary Officer | 0.25 | $0 |
| Justin West | President Officer | 10 | $0 |
| Samantha MacMechan | Vice Chair Officer | 0.25 | $0 |
| Norman Metcalfe | Treasurer Officer | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 32531 N SCOTTSDALE RD STE 105-530, SCOTTSDALE, AZ 85266-1519
- In care of
- % SARAH DRISLANE
- Mailing address (990-N for 2021)
- PO Box 465, Contoocook NH 03229
- Principal officer (990-N for 2021)
- Seth Greenblott, 442 Briar Hill Rd, Hopkinton NH 03229
- Signed the 990
- SARAH DRISLANE, Executive Director
- Phone
- (949) 268-9770
- Website
- www.kcnt1epilepsy.org
- Return prepared by
- Michael Terpening CPA
Mission
to accelerate the development of effective therapies and improve outcomes for individuals affected by KCNT1 related epilepsy and neurodevelopmental disorders. And advances research, supports families, and builds the collaborative infrastructure necessary to enable clinical trials
Program accomplishments
- In 2025, the Foundation advanced its mission through four interrelated program areas supporting research advancement, data infrastructure, family education and engagement, and field building activities for KCNT1 related epilepsy and neurodevelopmental disorders. Program activities included: (i) support for investigator initiated research through grants to external academic and research institutions (as reported on Schedule I) as well as sponsored research projects with academic and commercial partners; (ii) data infrastructure, registry, and natural history aligned activities intended to strengthen research coordination and readiness for future clinical trials; (iii) family education, patient engagement, and community support, including educational programming and limited need based assistance to reduce barriers to participation in educational and advocacy opportunities; and (iv) field building, collaboration, and scientific engagement activities, including participation in scientific advisory boards, research convenings, and coordination with clinical, academic, and industry stakeholders to align priorities and identify research gaps. The Foundation does not provide clinical care and does not directly conduct clinical research. Program activities are carried out through collaborations with external clinical, academic, and research partners and through mission aligned program operations. Summary of Impact Through its programs, the KCNT1 Epilepsy Foundation acted as a research accelerator, convener, and community partnersupporting early stage research, strengthening data infrastructure, engaging families, and fostering collaboration to advance therapeutic development and improve outcomes for individuals affected by KCNT1 related disordersExpenses $382,221 · revenue $1,525,375
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 84-2748218
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2021
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G54)
- Assets (IRS master file)
- $2,044,774
- Income (IRS master file)
- $1,525,375
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $1,525,375 | $485,949 | $2,044,774 | IRS |
| 990 | December 2024 | $719,180 | $218,171 | $1,006,148 | XML |
| 990 | December 2023 | $364,257 | $121,548 | $505,139 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-N for 2021 Officer: Seth Greenblott | December 31, 2021 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2020 Officer: Seth Greenblott | December 31, 2020 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2019 Officer: Seth W Greenblott | December 31, 2019 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 84-2748218).
Questions about KCNT1 SLACK EPILEPSY FOUNDATION INC
- What is the EIN of KCNT1 SLACK EPILEPSY FOUNDATION INC?
- The employer identification number (EIN) of KCNT1 SLACK EPILEPSY FOUNDATION INC is 84-2748218.
- Is KCNT1 SLACK EPILEPSY FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
- Are donations to KCNT1 SLACK EPILEPSY FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does KCNT1 SLACK EPILEPSY FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of KCNT1 SLACK EPILEPSY FOUNDATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did KCNT1 SLACK EPILEPSY FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of KCNT1 SLACK EPILEPSY FOUNDATION INC?
- The 990-N for 2021 names Seth Greenblott.
- Who are the officers and directors of KCNT1 SLACK EPILEPSY FOUNDATION INC?
- The 990 for the year ended December 31, 2025 lists 10 people; 1 received compensation from the organization, the highest $28,125 (Sarah Drislane, Executive Director).
- How much revenue does KCNT1 SLACK EPILEPSY FOUNDATION INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $1,525,375, expenses of $485,949 and total assets of $2,044,774 at year end.
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