Nonprofit · EIN 83-4541448
CTNNB1 CONNECT AND CURE INC
Tax-exempt · WILMINGTON, DE 19801
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $461,697 | $215,984 | $245,713 | $653,149 | $0 | $653,149 |
| December 31, 2024 | 990 | $335,742 | $244,550 | $91,192 | $407,436 | $0 | $407,436 |
| December 31, 2023 | 990 | $313,878 | $194,310 | $119,568 | $316,244 | $0 | $316,244 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $446,290
- Program service revenue
- $0
- Investment income
- $15,777
- Net income from sales of inventory
- -$370
- Other revenue
- -$370
Expenses
- Grants and similar amounts paid
- $126,849
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Program services (functional)
- $201,057
- Management and general (functional)
- $13,090
- Fundraising (functional)
- $1,837
Balance sheet and other
- Total assets, start of year
- $407,436
- Total assets, end of year
- $653,149
- Total liabilities, end of year
- $0
- Net assets, end of year
- $653,149
- Net assets without donor restrictions
- $653,149
- Gross receipts
- $463,568
- Employees
- 0
- Volunteers
- 20
- Year formed
- 2019
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| EMILY AMERSON | PRESIDENT Trustee or director, Officer | 35 | $0 |
| CRAWFORD MCWILLIAMS | DIRECTOR Trustee or director | 5 | $0 |
| EFFIE PARKS | DIRECTOR Trustee or director | 3 | $0 |
| BRUNO RAMALHO | DIRECTOR Trustee or director | 3 | $0 |
| ASHLEY SWIFT | CHIEF COMM. Trustee or director, Officer | 10 | $0 |
| ANITA CHANG | OFFICER Officer | 1 | $0 |
990 for the year ended December 31, 2024: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Sean Cochran | Chief Financial Officer Trustee or director, Officer | 10 | $0 |
| Emily Amerson | President Trustee or director, Officer | 40 | $0 |
| Crawford McWilliams | Director Trustee or director | 5 | $0 |
| Alex Dashiell | Secretary Trustee or director, Officer | 5 | $0 |
| Ngano Tony King Sr | Chief Research Officer Trustee or director, Officer | 15 | $0 |
| Effie Parks | Director Trustee or director | 3 | $0 |
| Ashley Swift | Chief Communications Officer Trustee or director, Officer | 15 | $0 |
| Bruno Ramalho | Director Trustee or director | 5 | $0 |
990 for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Sean Cochran | Chief Financial Officer Trustee or director, Officer | 5 | $0 |
| Emily Amerson | President Trustee or director, Officer | 15 | $0 |
| Lauren Cochran | Director of Research Trustee or director | 4 | $0 |
| Alex Dashiell | Co-Treasurer Trustee or director, Officer | 4 | $0 |
| Nicole Dashiell | Secretary Trustee or director, Officer | 4 | $0 |
| Ngano Tony King Sr | Chief Research Officer Trustee or director, Officer | 10 | $0 |
| Effie Parks | Director of Partnerships Trustee or director | 3 | $0 |
| Lindsay Stevens | Director of Fundraising Trustee or director | 4 | $0 |
| Ashley Swift | Chief Communications Officer Trustee or director, Officer | 5 | $0 |
| Annie Wood | Director of Engagement Trustee or director | 3 | $0 |
| Bruno Ramalho | Director of Technology Trustee or director | 6 | $0 |
Address and contacts
- Address (IRS master file)
- 221 W 9TH ST, WILMINGTON, DE 19801-1619
- Principal officer (990 for 2025)
- EMILY AMERSON, 221 W 9TH STREET SUITE 421, WILMINGTON, DE 19801
- Signed the 990
- ANITA CHANG, OFFICER
- Phone
- (843) 647-8929
- Website
- HTTPS://CURECTNNB1.ORG
- Return prepared by
- FOUNDATION GROUP INC
Mission
CTNNB1 CONNECT AND CURE IS A NONPROFIT ORGANIZATION DEDICATED TO FINDING TREATMENT OPTIONS AND A CURE FOR CTNNB1 SYNDROME WHILE IMPROVING THE LIVES OF OUR PATIENTS AND COMMUNITY.
Program accomplishments
- THE ORGANIZATION'S PURPOSE IS FINDING TREATMENTS AND A CURE FOR CTNNB1 SYNDROME TO HELP CHILDREN LIVE THEIR BEST LIVES POSSIBLE WHILE RAISING AWARENESS AND CONNECTING FAMILIES. THIS WAS ACCOMPLISHED BY HAVING AN IN PERSON RESEARCH CONFERENCE, IN CONJUNCTION WITH HAVING DOCTORS IN PERFORMING A NATURAL HISTORY STUDY ON THE CHILDREN. THE ORGANIZATION ALSO PROVIDES GRANTS FOR RESEARCH TO FIND A CURE.Expenses $201,057 · grants $126,849
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 83-4541448
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2019
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $653,149
- Income (IRS master file)
- $463,568
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $461,697 | $215,984 | $653,149 | XML |
| 990 | December 2024 | $335,742 | $244,550 | $407,436 | XML |
| 990 | December 2023 | $313,878 | $194,310 | $316,244 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2019 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 83-4541448).
Questions about CTNNB1 CONNECT AND CURE INC
- What is the EIN of CTNNB1 CONNECT AND CURE INC?
- The employer identification number (EIN) of CTNNB1 CONNECT AND CURE INC is 83-4541448.
- Is CTNNB1 CONNECT AND CURE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2019.
- Are donations to CTNNB1 CONNECT AND CURE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CTNNB1 CONNECT AND CURE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CTNNB1 CONNECT AND CURE INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CTNNB1 CONNECT AND CURE INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CTNNB1 CONNECT AND CURE INC?
- The 990 for the year ended December 31, 2025 names EMILY AMERSON.
- Who are the officers and directors of CTNNB1 CONNECT AND CURE INC?
- The 990 for the year ended December 31, 2025 lists 6 people; 0 received compensation from the organization.
- How much revenue does CTNNB1 CONNECT AND CURE INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $461,697, expenses of $215,984 and total assets of $653,149 at year end.
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