Nonprofit · EIN 83-3367375
HAYSTACK PROJECT INC
Tax-exempt · SEVERNA PARK, MD 21146
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $448,047 | $521,673 | -$73,626 | $328,483 | $0 | $328,483 |
| December 31, 2024 | 990 | $759,000 | $525,956 | $233,044 | $402,109 | $0 | $402,109 |
| December 31, 2023 | 990 | $226,966 | $434,658 | -$207,692 | $174,973 | $0 | $174,973 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $448,047
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $36,000
- Salaries, compensation and benefits (total)
- $36,000
- Professional fundraising fees
- $0
- Accounting fees
- $1,500
- Program services (functional)
- $519,281
- Management and general (functional)
- $2,392
Balance sheet and other
- Total assets, start of year
- $402,109
- Total assets, end of year
- $328,483
- Total liabilities, end of year
- $0
- Net assets, end of year
- $328,483
- Net assets without donor restrictions
- $328,483
- Gross receipts
- $448,047
- Employees
- 0
- Volunteers
- 9
- Year formed
- 2019
- State of legal domicile
- MD
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KARA BERASI | CEO Trustee or director, Officer | 20 | $36,000 |
| VICTORIA BLATTER | DIRECTOR Trustee or director | 1 | $0 |
| JIM CARO | DIRECTOR Trustee or director | 1 | $0 |
| CHRISTINA NYQUIST | DIRECTOR Trustee or director | 1 | $0 |
| LISA STEELMAN | DIRECTOR Trustee or director | 1 | $0 |
| LYNN TAYLOR | DIRECTOR Trustee or director | 1 | $0 |
| SUSAN THORNTON | BOARD CHAIR/ Trustee or director, Officer | 1 | $0 |
| CHEVESE TURNER | SECRETARY Trustee or director, Officer | 1 | $0 |
| KRISTEN WHEEDEN | PATIENT REP. Trustee or director, Officer | 1 | $0 |
| JANET WOODCOCK | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kara Berasi | CEO Trustee or director, Officer | 20 | $36,000 |
| Chevese Turner | Secretary Trustee or director, Officer | 1 | $0 |
| Christina Nyquist | Director Trustee or director | 1 | $0 |
| Lynn Taylor | Director Trustee or director | 1 | $0 |
| Lisa Steelman | Director Trustee or director | 1 | $0 |
| Victoria Blatter | Director Trustee or director | 1 | $0 |
| Jenn Wappaus | Treasurer Trustee or director, Officer | 1 | $0 |
| Susan Thornton | Board Chair / Patient Representative Trustee or director, Officer | 1 | $0 |
| Jim Caro | Director Trustee or director | 1 | $0 |
| Kristen Wheeden | Patient Representative Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Chevese Turner | Past CEO / Secretary Trustee or director, Officer | 20 | $36,000 |
| James Caro | Director Trustee or director | 1 | $0 |
| Marc Yale | Patient Representative Trustee or director | 1 | $0 |
| Christina Nyquist | Director Trustee or director | 1 | $0 |
| Lynn Taylor | Director Trustee or director | 1 | $0 |
| Lisa Steelman | Director Trustee or director | 1 | $0 |
| Victoria Blatter | Director Trustee or director | 1 | $0 |
| Jenn Wappaus | Treasurer Trustee or director, Officer | 1 | $0 |
| Susan Thornton | Patient Representative Trustee or director | 1 | $0 |
| Kara Berasi | Current CEO Officer | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 637 EMERSON PL, SEVERNA PARK, MD 21146-3409
- In care of
- % SAIRA SULTAN CHIRICO
- Principal officer (990 for 2025)
- KARA BERASI, 637 EMERSON PLACE, SEVERNA PARK, MD 21146
- Signed the 990
- KARA BERASI, CEO
- Phone
- (614) 354-6036
- Website
- WWW.HAYSTACKPROJECT.ORG
- Return prepared by
- FOUNDATION GROUP INC
Mission
HAYSTACK PROJECT BRINGS TOGETHER STAKEHOLDERS CONNECTED TO RARE AND ULTRA RARE MEDICAL CONDITIONS TO EDUCATE THEM AND ASSIST THEM WITH THEIR SELF ADVOCACY EFFORTS.
Program accomplishments
- THE ORGANIZATION BRINGS TOGETHER PATIENT ORGANIZATIONS REPRESENTING PATIENTS SUFFERING FROM OR CARING FOR PATIENTS WITH EXTREMELY RARE DISEASES. THIS IS ACCOMPLISHED THROUGH EDUCATING POLICYMAKERS AND STAKEHOLDERS ABOUT THE BARRIERS FDA PROCESSES AND INSURANCE FRAMEWORKS CREATE AND PERPETUATE IN RARE AND ULTRA-RARE DISEASES AND HELP THEM RECOGNIZE THE CIRCUMSTANCES OF EXTREMELY RARE CONDITIONS AND TREATMENTS AND EXPAND INCENTIVES CRITICAL TO ENSURING THEY CAN REACH PATIENTS. POLICY INITIATIVES AND RARE DISEASE PRIORITIES: HAYSTACK PROJECT WORKS WITH PATIENTS TO HELP THEM LEARN HOW TO ADVOCATE FOR THEIR COMMUNITIES AND IMPROVE. MODERNIZATION OF RARE DISEASE CLINICAL TRIALS: WORK FOCUSED ON RETHINKING CLINICAL TRIALS FOR RARE DISEASES. PATIENT EDUCATION & ENGAGEMENT: SPEAKER SERIES WHERE WE BRING VARIOUS EXPERTS TO SPEAK TO ISSUES RELATED TO RARE DISEASES. MEMBER ORGANIZATIONS ARE ABLE TO LISTEN AND ASK QUESTIONS. ALSO CONDUCT MEMBER MEETINGS TO EDUCATE ABOUT CURRENT EVENTS, HAYSTACK INITIATIVES, AND HELP ANSWER QUESTIONS.Expenses $519,281
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 83-3367375
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2019
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G01)
- Assets (IRS master file)
- $328,483
- Income (IRS master file)
- $448,047
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $448,047 | $521,673 | $328,483 | XML |
| 990 | December 2024 | $759,000 | $525,956 | $402,109 | XML |
| 990 | December 2023 | $226,966 | $434,658 | $174,973 | XML |
| 990 | December 2022 | $476,038 | $380,641 | $382,665 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 83-3367375).
Questions about HAYSTACK PROJECT INC
- What is the EIN of HAYSTACK PROJECT INC?
- The employer identification number (EIN) of HAYSTACK PROJECT INC is 83-3367375.
- Is HAYSTACK PROJECT INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2019.
- Are donations to HAYSTACK PROJECT INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does HAYSTACK PROJECT INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of HAYSTACK PROJECT INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did HAYSTACK PROJECT INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of HAYSTACK PROJECT INC?
- The 990 for the year ended December 31, 2025 names KARA BERASI.
- Who are the officers and directors of HAYSTACK PROJECT INC?
- The 990 for the year ended December 31, 2025 lists 10 people; 1 received compensation from the organization, the highest $36,000 (KARA BERASI, CEO).
- How much revenue does HAYSTACK PROJECT INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $448,047, expenses of $521,673 and total assets of $328,483 at year end.
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