Nonprofit · EIN 83-2016277
I AM ALS
Tax-exempt · WASHINGTON, DC 20044
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $2,566,419 | $2,569,335 | -$2,916 | $3,450,337 | $98,584 | $3,351,753 |
| December 31, 2024 | 990 | $4,117,942 | $2,566,630 | $1,551,312 | $3,413,223 | $57,550 | $3,355,673 |
| December 31, 2023 | 990 | $2,326,778 | $2,174,696 | $152,082 | $1,851,960 | $57,081 | $1,794,879 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $2,454,903
- Program service revenue
- $0
- Investment income
- $89,388
- Other revenue
- $22,128
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $358,228
- Other salaries and wages
- $1,123,174
- Salaries, compensation and benefits (total)
- $1,812,783
- Professional fundraising fees
- $0
- Accounting fees
- $67,216
- Occupancy
- $11,022
- Travel
- $42,078
- Program services (functional)
- $2,019,174
- Management and general (functional)
- $325,942
- Fundraising (functional)
- $224,219
Balance sheet and other
- Total assets, start of year
- $3,413,223
- Total assets, end of year
- $3,450,337
- Total liabilities, end of year
- $98,584
- Net assets, end of year
- $3,351,753
- Publicly traded securities
- $793,536
- Net assets without donor restrictions
- $3,281,753
- Net assets with donor restrictions
- $70,000
- Gross receipts
- $2,583,558
- Employees
- 13
- Volunteers
- 256
- Year formed
- 2018
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ANDREA GOODMAN | CEO Officer | 40 | $300,303 | $57,925 |
| ADITI NARAYAN MINKOFF | VP OF COMMUNITY SUPPORT Highest-paid employee | 40 | $160,778 | $41,705 |
| MICHAEL LECKER | VP OF COMMUNITY ORGANIZING Highest-paid employee | 40 | $148,955 | $20,248 |
| DUSTIN WATSON | VP OF GOVERNMENT RELATIONS Highest-paid employee | 40 | $154,595 | $1,096 |
| ERIN ALRED | CHIEF OF STAFF Highest-paid employee | 40 | $120,205 | $34,652 |
| PETER BOWEN | BOARD CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JENNY FORTNER | BOARD TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| PEGGY PLEWS-OGAN | BOARD SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| BRIAN WALLACH | CO-FOUNDER Trustee or director, Officer | 2 | $0 | $0 |
| TIM ABESKA | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| SANDRA ABREVAYA | CO-FOUNDER Trustee or director | 2 | $0 | $0 |
| JANO CABRERA | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| LOUISE LANGHEIER | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MICHAEL O'NEIL | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| NEEL PAREKH | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
3 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JUAN A REYES | BOARD MEMBER Trustee or director | 2 | $0 |
| CHUCK SMITH | BOARD MEMBER Trustee or director | 2 | $0 |
| DAN TATE | BOARD MEMBER Trustee or director | 2 | $0 |
990 for the year ended December 31, 2024: 16 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ANDREA GOODMAN | CEO Officer | 40 | $258,050 | $57,712 |
| SONYA ELLING | CHIEF GOVERNMENT AFFAIRS OFFICER Highest-paid employee | 40 | $194,838 | $61,008 |
| ADITI NARAYAN MINKOFF | VP OF COMMUNITY SUPPORT Highest-paid employee | 40 | $153,495 | $40,971 |
| MICHAEL LECKER | VP OF COMMUNITY ORGANIZING Highest-paid employee | 40 | $139,867 | $34,331 |
| SANDRA ABREVAYA | CO-FOUNDER Trustee or director | 2 | $0 | $0 |
| BRIAN WALLACH | CO-FOUNDER Trustee or director, Officer | 2 | $0 | $0 |
| PEGGY PLEWS-OGAN | BOARD SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| JENNIFER FORTNER | BOARD TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| PETER BOWEN | BOARD CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JANO CABRERA | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| LOUISE LANGHEIER | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MICHAEL O'NEIL | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| NEEL PAREKH | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| JUAN A REYES | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MICHAEL SLABY | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| DAN TATE | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ANDREA GOODMAN | CEO Officer | 40 | $176,612 | $23,330 |
| ADITI NARAYAN | VP OF COMMUNITY SUPPORT Highest-paid employee | 40 | $136,199 | $30,963 |
| MICHAEL J LECKER | VP OF ORGANIZING Highest-paid employee | 40 | $115,041 | $21,852 |
| PETER BOWEN | BOARD CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JENNY FORTNER | BOARD TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| PEGGY PLEWS- OGAN | BOARD SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| BRIAN WALLACH | CO-FOUNDER Trustee or director | 2 | $0 | $0 |
| SANDRA ABREVAYA | CO-FOUNDER Trustee or director | 2 | $0 | $0 |
| DAN TATE JR | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| JANO CABRERA | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| JUAN A REYES | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MICHAEL O'NEIL | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MICHAEL SLABY | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| NEEL PAREKH | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 1200 PENNSYLVANIA AVE NW UNIT 14135, WASHINGTON, DC 20044-6602
- In care of
- % BRIAN WALLACH
- Principal officer (990 for 2025)
- JENNIFER FORTNER, 1200 PENNSYLVANIA AVE NW 14135, WASHINGTON, DC 20044
- Signed the 990
- JENNIFER FORTNER, TREASURER
- Phone
- (301) 337-7334
- Website
- WWW.IAMALS.ORG
- Return prepared by
- CLIFTONLARSONALLEN LLP
Mission
THE MISSION OF I AM ALS IS TO ACCELERATE A CURE FOR ALS BY MOBILIZING COLLECTIVE POWER TO DRIVE URGENT POLICY AND SYSTEMS CHANGE.
Program accomplishments
- COMMUNITY SUPPORTI AM ALS OFFERS A MULTI-PRONGED, PERSON-CENTERED SUPPORT PORTFOLIO OF PROGRAMS FOR PEOPLE LIVING WITH ALS, CAREGIVERS, AND LOVED ONES AS THEY NAVIGATE THE EMOTIONAL, PRACTICAL, AND INFORMATIONAL CHALLENGES OF THE DISEASE. THROUGH DIRECT 1:1 SUPPORT, VIRTUAL SUPPORT GROUPS, PEER MATCHING, AND CURATED RESOURCES, THE COMMUNITY SUPPORT TEAM HELPS INDIVIDUALS FEEL LESS ALONE, CONNECT CLIENTS WITH TRAINED COMMUNITY MEMBER MENTORS WHO SHARE SIMILAR EXPERIENCES, AND NAVIGATE CLIENTS TO THE RESOURCES, INFORMATION, AND PROGRAMS THEY NEED. THIS INITIATIVE IMPROVES QUALITY OF LIFE WHILE BUILDING A COMMUNITY ROOTED IN CONNECTION, DIGNITY, AND HOPE.Expenses $478,099
- GOVERNMENT AFFAIRS, POLICY, AND RESEARCHI AM ALS LEVERAGES THE EXPERTISE AND LIVED EXPERIENCE OF THE ALS COMMUNITY TO DRIVE URGENT FEDERAL POLICY AND SYSTEMS CHANGE. THE LEGISLATIVE PROGRAMS ARE INTENDED TO FORCE MULTIPLY ALS RESEARCH AND TREATMENT RESOURCES BY USING FEDERAL POLICY AND FUNDING BUCKETS TO MAXIMIZE INVESTMENTS. THE GOVERNMENT AFFAIRS TEAM WORKS ALONGSIDE COMMUNITY LEADERS, POLICYMAKERS, RESEARCHERS, REGULATORS, AND OTHER PARTNERS TO SECURE APPROPRIATIONS, POLICY, AND LEGISLATION THAT: 1) INCREASES ALS RESEARCH FUNDING, 2) PROTECTS AND EXPANDS ACCESS TO PROMISING TREATMENTS, AND 3) IMPROVES CLINICAL RESEARCH SYSTEMS AND A PATH TO REGULATORY SUCCESS, ALL ULTIMATELY ACCELERATING THE PATH TOWARDS A CURE.Expenses $526,421
- COMMUNITY ORGANIZING AND COMMUNICATIONI AM ALS BUILDS AND SUSTAINS A NATIONAL MOVEMENT BY EQUIPPING COMMUNITY MEMBERS THOSE LIVING WITH AND IMPACTED BY ALS TO TAKE COLLECTIVE ACTION. THROUGH WEEKLY COMMUNITY TEAMS, DIGITAL ACTIONS, EVENTS, STORY-SHARING, AWARENESS CAMPAIGNS, AND COMMUNICATIONS, THE ORGANIZATION TRAINS AND EQUIPS VOLUNTEERS, FACILITATES ADVOCACY, AND MOBILIZES A COMMUNITY AND NATIONAL CONVERSATION AROUND BOLD PRIORITIES AND A FOCUS ON A CURE. I AM ALS STRIVES TO ENSURE PEOPLE LIVING WITH ALS ARE CENTERED IN THE DECISIONS THAT SHAPE THE FUTURE OF ALS SCIENCE, CARE, AND ACCESS. THESE EFFORTS STRENGTHEN COMMUNITY LEADERSHIP, INCREASE ALS AWARENESS AND COMPETENCY, AND CATALYZE PROGRESS ON POLICY CHANGE, RESEARCH, TRIAL ACCESS, CARE, AND PUBLIC ENGAGEMENT.Expenses $903,058
- Expenses $111,596
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 83-2016277
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2019
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E86)
- Assets (IRS master file)
- $3,450,337
- Income (IRS master file)
- $2,583,558
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $2,566,419 | $2,569,335 | $3,450,337 | XML |
| 990 | December 2024 | $4,117,942 | $2,566,630 | $3,413,223 | XML |
| 990 | December 2023 | $2,326,778 | $2,174,696 | $1,851,960 | XML |
| 990 | December 2022 | $1,631,851 | $2,291,456 | $1,680,946 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 83-2016277).
Questions about I AM ALS
- What is the EIN of I AM ALS?
- The employer identification number (EIN) of I AM ALS is 83-2016277.
- Is I AM ALS tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2019.
- Are donations to I AM ALS tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does I AM ALS file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of I AM ALS due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did I AM ALS last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of I AM ALS?
- The 990 for the year ended December 31, 2025 names JENNIFER FORTNER.
- Who are the officers and directors of I AM ALS?
- The 990 for the year ended December 31, 2025 lists 18 people; 5 received compensation from the organization, the highest $300,303 (ANDREA GOODMAN, CEO).
- How much revenue does I AM ALS have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $2,566,419, expenses of $2,569,335 and total assets of $3,450,337 at year end.
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