Nonprofit · EIN 82-5445706
SARAS CURE
Also known as SARASCURE
Tax-exempt · CHARLESTON, SC 29412
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-EZ | $91,784 | $104,700 | -$12,916 | $51,801 | – | $51,801 |
| December 31, 2023 | 990-EZ | $70,362 | $96,662 | -$26,300 | $64,774 | $57 | $64,717 |
| December 31, 2022 | 990-EZ | $99,906 | $105,129 | -$5,223 | $91,017 | – | $91,017 |
Financial details: 990-EZ for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $34,473
- Investment income
- $3
- Net income from fundraising events
- $57,308
Expenses
- Compensation of officers, directors and key employees
- $0
- Professional fees and payments to contractors
- $89,562
- Printing, publications and postage
- $1,470
- Other expenses
- $13,668
- Program services (functional)
- $109,487
Balance sheet and other
- Total assets, start of year
- $64,774
- Total assets, end of year
- $51,801
- Total liabilities, end of year
- –
- Net assets, end of year
- $51,801
- Cash, savings and investments
- $51,801
- Gross receipts
- $96,569
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ANN LOPEZ | MARKETING DI | 8 | $0 |
| LENNIE WOODS | EXECUTIVE DI | 40 | $0 |
| JILL NEAL | ADMINISTRATI | 25 | $0 |
| LISA FAULKNER | PATIENT ADVO | 8 | $0 |
| KELLY ARGRAVES PHD | SCIENTIFIC D | 8 | $0 |
| JENAVIEVE MALLORY | SOCIAL MEDIA | 4.5 | $0 |
| DENNY WOODS | BOARD MEMBER | 0 | $0 |
| NANETTE DETURK | BOARD MEMBER | 0 | $0 |
| DRU WILLIAMS | BOARD MEMBER | 0 | $0 |
| DAWN JUDD | TREASURER | 0 | $0 |
| JENAE HELLER | BOARD MEMBER | 0 | $0 |
| BRUCE NEWBY | BOARD MEMBER | 0 | $0 |
| EVAN BARNES | BOARD MEMBER | 0 | $0 |
990-EZ for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LENNIE WOODS | EXECUTIVE DI | 40 | $32,000 |
| DENNY WOODS | BOARD MEMBER | 1 | $0 |
| KELLY ARGRAVES PHD | SCIENTIFIC D | 1 | $0 |
| NANETTE DETURK | BOARD MEMBER | 1 | $0 |
| DRU WILLIAMS | BOARD MEMBER | 1 | $0 |
| DAWN JUDD | TREASURER | 1 | $0 |
| JENAE HELLER | BOARD MEMBER | 1 | $0 |
| BRUCE NEWBY | BOARD MEMBER | 1 | $0 |
| EVAN BARNES | BOARD MEMBER | 1 | $0 |
990-EZ for the year ended December 31, 2022: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LENNIE WOODS | EXECUTIVE DI | 0 | $0 |
| KELLY ARGRAVES PHD | SCIENTIFIC D | 0 | $0 |
| JENAE HELLER | BOARD MEMBER | 0 | $0 |
| DRU WILLIAMS | BOARD MEMBER | 0 | $0 |
| DAWN JUDD | TREASURER | 0 | $0 |
| DENNY WOODS | BOARD MEMBER | 0 | $0 |
| BRUCE NEWBY | BOARD MEMBER | 0 | $0 |
| NANETTE DETURK | BOARD MEMBER | 0 | $0 |
| EVAN BARNES | BOARD MEMBER | 0 | $0 |
Address and contacts
- Address (IRS master file)
- 783 STILES DR, CHARLESTON, SC 29412-5071
- In care of
- % LENNIE WOODS
- Signed the 990-EZ
- DAWN JUDD, TREASURER
- Phone
- (843) 864-6760
- Website
- WWW.SARASCURE.ORG
- Return prepared by
- HINSKE & CLAREY LLC
Mission
THE CLEAR CELL SARCOMA FOUNDATION IS DEDICATED TO MAKING CLEAR CELL SARCOMA SURVIVABLE THROUGH EDUCATION AND SCIENTIFIC RESEARCH. WE STRIVE TO PROVIDE A VOICE AND PLATFORM FOR ALL PATIENTS AND CAREGIVERS IMPACTED BY THIS RARE CANCER, EMPOWERING THEM TO ENACT CHANGE AND WORK TOWARDS A CURE.
Program accomplishments
- SUMMARY OF ACTIVITIES JANUARY- OUR EXECUTIVE DIRECTOR PARTICIPATED IN A GLOBAL WEBINAR HOSTED BY THE SARCOMA FOUNDATION OF AMERICA TO PRESENT A PRIVATE/PUBLIC PARTNERSHIP CALLED CURE DRUG REPURPOSING COLLABORATORY (CDRC), WITH THE INITIATIVE TO FIND EXISTING DRUGS FOR RARE SARCOMA.: CO-HOSTED OUR LARGEST ANNUAL FUNDRAISER IN CHARLESTON SC. CONTINUED TO COLLABORATE WITH THE CLINICAL/RESEARCH COMMUNITY THROUGH MONTHLY MEETINGS WITH SARC, AND THE CCS TISSUE COLLECTION DOD GRANT COMMUNITY OF STAKEHOLDERS. FEBRUARY & MARCH TEAMED UP WITH XCURES TO CREATE A PARTNERSHIP CONTRACT FOR THE PURPOSE OF COLLECTING ELECTRONIC HEALTH RECORDS ON CCS PATIENTS, AN OUTGROWTH OF THE CDRC PROJECT. THESE REAL WORLD RESULTS WERE PRESENTED AT THE ANNUAL SARCOMA CONFERENCE TO THE SARCOMA COMMUNITY. PLANS FOR EXPANSION INTO 2025. APRIL - INAUGURAL MEETING WITH DR. KEVIN JONES SURGICAL ONCOLOGIST TO PLAN A FIRST EVER CCS SYMPOSIUM IN CHARLESTON SC. SEPTEMBER. THIS MEETING IS FOR THE PURPOSE OF COLLECTING REAL WORLD EXPERIENCES (RWE) FROM CCS PATIENTS THROUGH THE XCURES PLATFORM AND PUBLISHING THE DATA AS A CONSENSUS OF THE NATURAL HISTORY OF CCS. MAY & JUNE CDRC MOVES FORWARD THROUGH OUR OWN FUNDED XCURES PROJECT. PATIENT FAMILIES HELD FUNDRAISERS FOR CCSF INCLUDING THE SOCIETY OF HOPE FUNDRAISER AND THE BOB COSTELLO CCS GOLF TOURNAMENT FUNDRAISER TO SUPPORT THE EHR DATA PROJECT. JULY & AUGUST- SARCOMA AWARENESS MONTH INITIATIVES WERE SENT TO EDUCATE THE COMMUNITY THROUGH OUR NEWSLETTER AND SOCIAL MEDIA TO GET THE WORD OUT ABOUT CCS. CONTINUED DATA COLLECTION/ANALYSIS AND PREPARATION FOR THE UPCOMING INAUGURAL SYMPOSIUM. SEPTEMBER - HELD THE FIRST ANNUAL INTERNATIONAL CCS PATIENT CLINICIAN PARTNERED CCS COLLABORATIVE SYMPOSIUM. PATIENTS MET AND SHARED STORIES IN PERSON AND BY ZOOM. THE MEETING WAS HELD VIRTUALLY FOR OUR GLOBAL COMMUNITY TO ATTEND AS WELL. TWO NEW INITIATIVES AROUND RADIATION THERAPY AND PATIENT DATA WERE BORN AND WILL BE PROGRAMS FOR THE 2025 RESEARCH AT THE CCSF. OCTOBER - WE HELD A CCSF RESEARCH TEAM RETREAT TO ANALYZE EHR DATA SUBMISSION AND PUBLISH A RETROSPECTIVE STUDY ABSTRACT FOR CONNECTIVE TISSUE ONCOLOGY SOCIETY (CTOS) PRESENTATION IN NOVEMBER. WE MET DAILY FOR COLLABORATIVE AND SOMETIMES DIFFICULT WORK ANALYZING THE DATA AND FORMING IT INTO CHARTS THAT WILL DRIVE CLINICAL DECISION MAKING BASED ON RWE TO HELP IMPROVE TREATMENT OUTCOMES. THIS RETREAT WAS WITH PATIENT COMMUNITY INVOLVEMENT AND IS CORE TO OUR MISSION. NOVEMBER - OUR CCS RESEARCH TEAM TRAVELED TO SAN DIEGO TO PRESENT FIRST OF ITS KIND CCS ELECTRONIC HEALTH RECORD DATA (EHR).. MET WITH MD ANDERSON CLINICIANS TO DISCUSS CCS CARE, MET WITH SARC AND CLINICIANS FROM MSK AND ROYAL MARSDEN REGARDING A 2025 TRIAL FOR CCS. WE WERE ABLE TO GIVE SEVERAL TALKS TO CLINICIANS AND RESEARCHERS AT THE POSTER PRESENTATION SESSION. WE HAD SMALL CARD PRINTS TO HAND OUT TO THE ONCOLOGISTS THROUGHOUT THE ANNUAL CONFERENCE. OUR RESEARCH WAS VERY WELL RECEIVED AND HAS LED TO FURTHER DISCUSSIONS AND PARTNERSHIP OPPORTUNITIES. DECEMBER - GIVING TUESDAY AND FUNDRAISER PROJECT TO RAISE FUNDS FOR THE PURCHASE OF 2 NEW MOUSE MODELS NEEDED FOR THE JONES LAB RESEARCH OFF PROJECT. WE SUCCESSFULLY RAISED THE FUNDS NEEDED, DR JONES WAS ABLE TO NEGOTIATE A DISCOUNT FOR US AND WE DIDNT HAVE TO PAY ANY OVERHEAD COSTS.Expenses $109,487
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 82-5445706
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2018
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H30)
- Assets (IRS master file)
- $51,801
- Income (IRS master file)
- $96,569
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2024 | $91,784 | $104,700 | $51,801 | IRS |
| 990-EZ | December 2023 | $70,362 | $96,662 | $64,774 | XML |
| 990-EZ | December 2022 | $99,906 | $105,129 | $91,017 | XML |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-5445706).
Questions about SARAS CURE
- What is the EIN of SARAS CURE?
- The employer identification number (EIN) of SARAS CURE is 82-5445706.
- Is SARAS CURE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2018.
- Are donations to SARAS CURE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SARAS CURE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SARAS CURE due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SARAS CURE last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2024.
- Who are the officers and directors of SARAS CURE?
- The 990-EZ for the year ended December 31, 2024 lists 13 people; 0 received compensation from the organization.
- How much revenue does SARAS CURE have?
- On its 990-EZ for the year ended December 31, 2024 it reported revenue of $91,784, expenses of $104,700 and total assets of $51,801 at year end.
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