Nonprofit · EIN 82-5373486
WHITE SUTTON SYNDROME FOUNDATION
Tax-exempt · BROKEN ARROW, OK 74013
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $81,168 | $26,273 | $54,895 | $95,084 | $0 | $95,084 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $81,168
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fees and payments to contractors
- $500
- Printing, publications and postage
- $3,194
- Other expenses
- $22,579
- Program services (functional)
- $26,273
Balance sheet and other
- Total assets, start of year
- $40,189
- Total assets, end of year
- $95,084
- Total liabilities, end of year
- $0
- Net assets, end of year
- $95,084
- Cash, savings and investments
- $95,084
- Gross receipts
- $81,168
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Amanda Couch | President | 6 | $0 |
| Josh Couch | Treasurer | 6 | $0 |
| Melissa Ganaway | Vis President | 2 | $0 |
| Melissa Johnson | Secretary | 1 | $0 |
| Kevin Curry | Board Member | 0.5 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 940, BROKEN ARROW, OK 74013-0940
- Mailing address (990-N for 2024)
- PO BOX 591, Broken Arrow OK 74103
- Principal officer (990-N for 2024)
- Amanda Couch, 2603 W Baton Rough Place, Broken Arrow OK 74011
- Signed the 990-EZ
- Amanda Couch, President
- Phone
- (918) 221-9369
- Website
- whitesutton.org
Mission
The mission of the White Sutton Syndrome Foundation is to build a community that will improve the quality of life for those diagnosed with White Sutton Syndrome and their families, to educate others about this condition and to fund research in order to better understand its symptoms, treatments and prognosis.
Program accomplishments
- Conference to bring people together, provide education, and collect blood samples for research.Expenses $21,626
- Raise funds to start research with Nationwide Children's Research Hospital in 2026. Grant will be issued with $100,000 to $150,000 in 2026.Expenses $542
- Build and community to support individuals diagnosed with White Sutton Syndrome.Expenses $4,105
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-N on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-N on file |
IRS record
- EIN
- 82-5373486
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2019
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $95,084
- Income (IRS master file)
- $81,168
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $81,168 | $26,273 | $95,084 | IRS |
| 990-N for 2024 Officer: Amanda Couch | December 31, 2024 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2023 Officer: Amanda Couch | December 31, 2023 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2022 Officer: Amanda Couch | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2020 Officer: Amanda Couch | December 31, 2020 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2019 Officer: Amanda Couch | December 31, 2019 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-5373486).
Questions about WHITE SUTTON SYNDROME FOUNDATION
- What is the EIN of WHITE SUTTON SYNDROME FOUNDATION?
- The employer identification number (EIN) of WHITE SUTTON SYNDROME FOUNDATION is 82-5373486.
- Is WHITE SUTTON SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2019.
- Are donations to WHITE SUTTON SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does WHITE SUTTON SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of WHITE SUTTON SYNDROME FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did WHITE SUTTON SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of WHITE SUTTON SYNDROME FOUNDATION?
- The 990-N for 2024 names Amanda Couch.
- Who are the officers and directors of WHITE SUTTON SYNDROME FOUNDATION?
- The 990-EZ for the year ended December 31, 2025 lists 5 people; 0 received compensation from the organization.
- How much revenue does WHITE SUTTON SYNDROME FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $81,168, expenses of $26,273 and total assets of $95,084 at year end.
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