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IRS-authorized e-file provider · not the IRS

Nonprofit · EIN 82-3890665

ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Tax-exempt · GORHAM, ME 04038

Financials

$284K$229K2023$888K$475K2024
Revenue Expenses · by fiscal year end
Financials of ASXL RARE RESEARCH ENDOWMENT FOUNDATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$887,604$474,919$412,685$1,081,250$1,272$1,079,978
December 31, 2023990$283,786$229,386$54,400$668,547$1,254$667,293
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$854,303
Program service revenue
$9,154
Investment income
$24,147
Other revenue
$0

Expenses

Grants and similar amounts paid
$234,500
Compensation of officers, directors and key employees
$105,900
Other salaries and wages
$7,500
Salaries, compensation and benefits (total)
$122,150
Professional fundraising fees
$0
Travel
$6,040
Program services (functional)
$377,717
Management and general (functional)
$71,159
Fundraising (functional)
$26,043

Balance sheet and other

Total assets, start of year
$668,547
Total assets, end of year
$1,081,250
Total liabilities, end of year
$1,272
Net assets, end of year
$1,079,978
Net assets without donor restrictions
$984,978
Net assets with donor restrictions
$95,000
Gross receipts
$887,604
Employees
2
Volunteers
20
Year formed
2018
State of legal domicile
DE

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
Amanda JohnsonExecutive Director
Key employee, Highest-paid employee
40$105,900
Laura BadmaevPresident
Trustee or director
5$0
Daniel OrdowerTreasurer
Trustee or director
5$0
Michael SaladDirector
Trustee or director
5$0
Julie LopezDirector
Trustee or director
5$0
Lauren AdamsDirector
Trustee or director
5$0
Sankar MadhavanDirector
Trustee or director
5$0
Amanda ScheirerDirector
Trustee or director
5$0
990 for the year ended December 31, 2023: 8 people
NameTitleHours / weekCompensation
Amanda JohnsonExecutive Director
Key employee, Highest-paid employee
40$105,900
Laura BadmaevPresident
Trustee or director, Officer
5$0
Daniel OrdowerTreasurer
Trustee or director, Officer
5$0
Michael SaladDirector
Trustee or director
5$0
Julie LopezDirector
Trustee or director
5$0
Lauren AdamsDirector
Trustee or director
5$0
SankarMadhavan
Trustee or director
5$0
Amanda ScheierDirector
Trustee or director
5$0

Address and contacts

Address (IRS master file)
47 OLD DYNAMITE WAY, GORHAM, ME 04038-1573
Mailing address (990-N for 2018)
6 Cottonwood Ln, Falmouth ME 04105
Principal officer (990 for 2024)
Amanda Johnson, PO Box 102, Gorham, ME 04038
Signed the 990
Daniel Ordower, Treasurer
Phone
(207) 881-8080

Mission

Support research and education that lead to improved quality of life for individuals with ASXL syndromes.

990 for the year ended December 31, 2024

Program accomplishments

  • ASXL Registry and Biobank. These are foundational tools based on patient data & samples which researchers will utilize to study and increase our knowledge of ASXL Syndromes
    Expenses $52,864 · grants $50,000
  • Research grants. Effective research will bring an understanding of the underlying mechanisms and potential treatments for ASXL syndromes
    Expenses $169,196 · grants $129,725 · revenue $61,952
  • Conferences. Meetings to bring together professionals and families to share information and exchange ideas to further our mission.
    Expenses $131,087 · grants $57,950 · revenue $60,040
  • Create and provide patient and family educational resources
    Expenses $24,570 · revenue $5,000

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
82-3890665
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2018
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H12)
Assets (IRS master file)
$1,081,250
Income (IRS master file)
$887,604

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$887,604$474,919$1,081,250IRS
990December 2023$283,786$229,386$668,547XML
990December 2022$228,516$224,596$614,250IRS
990December 2021–––IRS
990December 2020–––IRS
990-N for 2018December 31, 2018≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-3890665).

Questions about ASXL RARE RESEARCH ENDOWMENT FOUNDATION

What is the EIN of ASXL RARE RESEARCH ENDOWMENT FOUNDATION?
The employer identification number (EIN) of ASXL RARE RESEARCH ENDOWMENT FOUNDATION is 82-3890665.
Is ASXL RARE RESEARCH ENDOWMENT FOUNDATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2018.
Are donations to ASXL RARE RESEARCH ENDOWMENT FOUNDATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does ASXL RARE RESEARCH ENDOWMENT FOUNDATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of ASXL RARE RESEARCH ENDOWMENT FOUNDATION due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did ASXL RARE RESEARCH ENDOWMENT FOUNDATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of ASXL RARE RESEARCH ENDOWMENT FOUNDATION?
The 990 for the year ended December 31, 2024 names Amanda Johnson.
Who are the officers and directors of ASXL RARE RESEARCH ENDOWMENT FOUNDATION?
The 990 for the year ended December 31, 2024 lists 8 people; 1 received compensation from the organization, the highest $105,900 (Amanda Johnson, Executive Director).
How much revenue does ASXL RARE RESEARCH ENDOWMENT FOUNDATION have?
On its 990 for the year ended December 31, 2024 it reported revenue of $887,604, expenses of $474,919 and total assets of $1,081,250 at year end.

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