Nonprofit · EIN 82-3128162
FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC
Tax-exempt · ST AUGUSTINE, FL 32086
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $482,434 | $315,390 | $167,044 | $1,028,283 | $0 | $1,028,283 |
| December 31, 2024 | 990 | $587,533 | $366,039 | $221,494 | $845,339 | $0 | $845,339 |
| December 31, 2023 | 990 | $849,087 | $794,367 | $54,720 | $704,535 | $79,409 | $625,126 |
| December 31, 2021 | 990 | $438,321 | $330,135 | $108,186 | $398,931 | $0 | $398,931 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $198,766
- Program service revenue
- $254,476
- Investment income
- $29,192
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $49,195
- Compensation of officers, directors and key employees
- $145,834
- Other salaries and wages
- $8,065
- Salaries, compensation and benefits (total)
- $165,461
- Professional fundraising fees
- $0
- Legal fees
- $1,176
- Accounting fees
- $4,867
- Occupancy
- $19,200
- Program services (functional)
- $260,687
- Management and general (functional)
- $54,703
Balance sheet and other
- Total assets, start of year
- $845,339
- Total assets, end of year
- $1,028,283
- Total liabilities, end of year
- $0
- Net assets, end of year
- $1,028,283
- Publicly traded securities
- $961,204
- Net assets without donor restrictions
- $1,028,283
- Gross receipts
- $482,434
- Employees
- 2
- Volunteers
- 30
- Year formed
- 2017
- State of legal domicile
- FL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOHANNA CONKEY | PRESIDENT Trustee or director, Officer | 40 | $116,667 | $29,167 |
| DR PIERRE KORY | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| TRAVIS CONKEY | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| JOHNNA WORKMAN | OFFICER Trustee or director, Officer | 1 | $0 | $0 |
| LESLIE PHILLIPS | VICE PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
990 for the year ended December 31, 2024: 5 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOHANNA CONKEY | PRESIDENT Trustee or director, Officer | 40 | $116,667 | $29,167 |
| DR PIERRE KORY | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| TRAVIS CONKEY | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| JOHNNA WORKMAN | OFFICER Trustee or director, Officer | 1 | $0 | $0 |
| LESLIE PHILLIPS | VICE PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOHANNA CONKEY | PRESIDENT Trustee or director, Officer | 60 | $189,581 | $45,010 |
| DR AMY MALIK | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DR PIERRE KORY | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| TRAVIS CONKEY | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| DR ANJU SINGH | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LESLIE PHILLIPS | VICE PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
990 for the year ended December 31, 2021: 7 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOHANNA CONKEY | PRESIDENT Trustee or director, Officer | 40 | $87,557 | $21,889 |
| DR AMY MALIK | VICE PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| DR PIERRE KORY | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| TRAVIS CONKEY | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| DR ANJU SINGH | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LESLIE PHILLIPS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JESSICA GAVIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 135 JENKINS ST STE 105B PMB 117, ST AUGUSTINE, FL 32086-5176
- In care of
- % ANNA CONKEY
- Mailing address (990-N for 2018)
- PO Box 25, Colgate WI 53017
- Principal officer (990 for 2025)
- ANNA CONKEY, 135 JENKINS STREET SUITE 105-B PM, ST AUGUSTINE, FL 32086
- Principal officer (990-N for 2018)
- Anna Conkey, PO Box 25, Colgate WI 53017
- Signed the 990
- ANNA CONKEY, PRESIDENT
- Phone
- (608) 381-0367
- Website
- neuroimmune.org
- Return prepared by
- ANDERSON HAGER & MOE SC
Mission
NEUROIMMUNE FOUNDATION IS A NON-PROFIT ORGANIZATION DEDICATED TO DRAMATICALLY ACCELERATING PHYSICIAN EDUCATION OF PANS, PANDAS, AND ENCEPHALITIS; SIGNIFICANTLY IMPROVING OUTCOMES FOR INDIVIDUALS IMPACTED BY THESE DISORDERS; PROVIDING MEANINGFUL SUPPORT TO FAMILIES DURING THEIR DARKEST DAYS; AND CATALYZING RESEARCH AT AN UNPRECEDENTED PACE
Program accomplishments
- PHYSICIAN EDUCATION - IN JANUARY 2025, LAUNCHED COMPREHENSIVE EDUCATIONAL MODEL IN COLABORATION WITH PROJECT ECHO WITH ACCREDITED CME DISGINED TO EQUIP PHYSICIANS TO EVALUATE AND TREAT CHILDREN, YOUTH, AND ADULTS WITH PSYCHIATRIC SYMPTOMS DUE TO AN UNDERLYING NEUROIMMUNE CONDITION (PANS, PANDAS, ENCEPHALITIS, ETC). THE FREE CME PROGRAM FEATURED ONE-HOUR WEEKLY MEETINGS FEATURING SHORT DIDACTICS BY 8 WORLD-RENOWNED EXPERT PHYSICIANS FROM LEADING UNIVERSITY PROGRAMS FOLLOWED BY CASE PRESENTATIONS. DETAILED TREATMENT AND DIAGNOSIS GUIDES TO SUPPORT PHYSICIANS REACHED OVER 25,000 PHYSICIANS IN THE UNITED STATES AND ABROAD. OVER 200,000 CLINICIANS WORLDWIDE WERE OFFERED FREE CME. CONTINUED SUSTAINED OUTREACH TO 150+ RESIDENCY PROGRAMS IN THE US WITH FREE ACCREDITED CONTINUING MEDICAL EDUCATION. WE HAVE NOW EDUCATED 7000+ CLINICIANS IN 70+ COUNTRIES AROUND THE WORLD WITH ACCREDITED CME - 90% OF THEM COMPLETELY FREE OF CHARGE IN AN EFFORT TO IMPROVE PATIENT OUTCOMES. EDUCATED AT THE NATIONAL AAP MEETING, OFFERING FREE RESOURCES TO CLINICIANS. PUBLISHED OUR SECOND PEER-REVIEWED SPECIAL ISSUE IN DEVELOPMENTAL NEUROSCIENCE FOCUSING ON ADVANCES IN PANS AND RELATED NEUROIMMUE DISORDERS. EXPENSES INCLUDED ACCREDITATION, MARKETING, PLATFORM FEES, HONORARIUM, TRAVEL TO AAP, PRINTING, AND A ROBUST OUTREACH.Expenses $204,538 · revenue $207,579
- OFFERED FREE SUPPORT AND HIGH QUALITY EDUCATION TO 33K + PATIENTS AND FAMILIES. DEVELOPED THE WORLD'S LARGEST PANS/PANDAS CLINICIAN DIRECTORY FOR FAMILIES. CONNECTED 4000+ PATIENTS/FAMILIES WITH CLINICIANS AND GREW OUR NETWORK OF CLINICIANS WHO CAN SUPPORT PATIENTS/FAMILIES. FAMILY SUPPORT PROGRAMS INCLUDED RUNNING A PRIVATE GROUP FOR 7,500 PATIENTS AND FAMILIES, PROVIDING MODERATION AND SUPPORT IN THAT GROUP, RESPONDING TO EMAILS TO ASSIST WITH FINDING PHYSICIANS, PROVIDING EDUCATIONAL WEBINARS WITH THERAPISTS AND PHYSICIANS. COSTS INCLUDED PLATFORM FEES, HONORARIUM, MATERIALS.Expenses $6,954 · revenue $46,897
- FUNDED PROFESSOR RUSSELL DALE'S PANS RESEARCH AT UNIV. OF SYDNEY.Expenses $49,195 · grants $49,195
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 82-3128162
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2018
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G99)
- Assets (IRS master file)
- $1,028,283
- Income (IRS master file)
- $482,434
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $482,434 | $315,390 | $1,028,283 | XML |
| 990 | December 2024 | $587,533 | $366,039 | $845,339 | XML |
| 990 | December 2023 | $849,087 | $794,367 | $704,535 | XML |
| 990 | December 2022 | $730,417 | $566,880 | $1,132,170 | IRS |
| 990 | December 2021 | $438,321 | $330,135 | $398,931 | XML |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990-N for 2018 Officer: Anna Conkey | December 31, 2018 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-3128162).
Questions about FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC
- What is the EIN of FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC?
- The employer identification number (EIN) of FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC is 82-3128162.
- Is FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2018.
- Are donations to FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC?
- The 990 for the year ended December 31, 2025 names ANNA CONKEY.
- Who are the officers and directors of FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC?
- The 990 for the year ended December 31, 2025 lists 5 people; 1 received compensation from the organization, the highest $116,667 (JOHANNA CONKEY, PRESIDENT).
- How much revenue does FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $482,434, expenses of $315,390 and total assets of $1,028,283 at year end.
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