Nonprofit · EIN 82-2661656
FORE BATTEN FOUNDATION
Tax-exempt · SCOTTSDALE, AZ 85255
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $1,072,285 | $2,686,450 | -$1,614,165 | $383,105 | $0 | $383,105 |
| December 31, 2023 | 990 | $1,550,288 | $1,725,984 | -$175,696 | $1,997,270 | $0 | $1,997,270 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $1,105,921
- Program service revenue
- $0
- Investment income
- $10,598
- Net income from fundraising events
- -$44,234
- Other revenue
- -$44,234
Expenses
- Grants and similar amounts paid
- $284,579
- Other salaries and wages
- $66,000
- Salaries, compensation and benefits (total)
- $71,191
- Professional fundraising fees
- $0
- Legal fees
- $298,660
- Accounting fees
- $3,838
- Travel
- $4,174
- Program services (functional)
- $2,632,434
- Management and general (functional)
- $35,792
- Fundraising (functional)
- $18,224
Balance sheet and other
- Total assets, start of year
- $1,997,270
- Total assets, end of year
- $383,105
- Total liabilities, end of year
- $0
- Net assets, end of year
- $383,105
- Gross receipts
- $1,176,159
- Employees
- 1
- Volunteers
- 3
- Year formed
- 2017
- State of legal domicile
- AZ
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DAVID KAHN | DIRECTOR Trustee or director | 4 | $0 |
| KAREN KAHN | PRESIDENT/CEO Trustee or director, Officer | 10 | $0 |
| KATHRYN NIEDERER | DIRECTOR Trustee or director | 2 | $0 |
| JENNIFER MCGINN | DIRECTOR Trustee or director | 2 | $0 |
| MARLENA KAHN | SECRETARY Officer | 1 | $0 |
990 for the year ended December 31, 2023: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DAVID KAHN | DIRECTOR Trustee or director | 4 | $0 |
| KAREN KAHN | PRESIDENT/CEO Trustee or director, Officer | 10 | $0 |
| KATHRYN NIEDERER | DIRECTOR Trustee or director | 2 | $0 |
| JENNIFER MCGINN | DIRECTOR Trustee or director | 2 | $0 |
| MARLENA KAHN | SECRETARY Officer | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 7433 E JOURNEY LN, SCOTTSDALE, AZ 85255-4607
- Principal officer (990 for 2024)
- KAREN KAHN, 11312 US 15-501 NORTH 107-117, CHAPEL HILL, NC 27517
- Signed the 990
- KAREN KAHN, PRESIDENT/CEO
- Phone
- (440) 708-6008
- Website
- HTTP://WWW.FOREBATTEN.ORG
- Return prepared by
- EIDE BAILLY LLP
Mission
TO FUND PIONEERING RESEARCH AND COMPASSIONATELY SUPPORT THE BATTEN COMMUNITY. THE ORGANIZATION WORKS TIRELESSLY TO GIVE CHILDREN WITH BATTEN DISEASE THE BEST POSSIBLE LIFE, TO SPREAD AWARENESS OF THE URGENCY TO FUND NEW TREATMENTS, AND TO HELP ALL FAMILIES AFFECTED BY BATTEN DISEASE.
Program accomplishments
- THIS ORGANIZATION MADE GRANTS TO SEVERAL TAX-EXEMPT 501(C)(3) ORGANIZATIONS THAT ADVANCE THE OBJECTIVES OF THIS ORGANIZATION TO PROMOTE AWARENESS OF BATTEN DISEASE AS WELL AS TO PROMOTE OPPORTUNITIES FOR SCIENTISTS TO COME TOGETHER TO CREATE AND FUND INNOVATIVE RESEARCH PROPOSALS TO WORK TOWARD A CURE FOR BATTEN DISEASE.Expenses $346,157 · grants $284,579
- THE FOREBATTEN FOUNDATION RECEIVED IND CLEARANCE FROM THE FOOD AND DRUG ADMINISTRATION TO PROCEED WITH THE CLINICAL INVESTIGATION FOR FBF-010 (ZEBRONKYSEN) PAVING THE WAY TO TREAT PATIENTS WITH THE UNIQUE CLN3 C.569DUPG MUTATION. ZEBRONKYSEN IS PAVING A PATH TOWARDS A BETTER FUTURE FOR NEWLY DIAGNOSED CHILDREN AND WILL BE PART OF THE EVOLVING STORY OF PERSONALIZED MEDICINE. THIS EFFORT ALSO PROVIDES PROOF OF CONCEPT TO DEVELOP AN ASO TREATMENT FOR THE COMMON CLN3 MUTATION AND CREATES A ROADMAP TO FUTURE TREATMENTS.Expenses $2,286,277
- N/A
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 82-2661656
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2018
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H12)
- Assets (IRS master file)
- $383,105
- Income (IRS master file)
- $1,176,159
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $1,072,285 | $2,686,450 | $383,105 | XML |
| 990 | December 2023 | $1,550,288 | $1,725,984 | $1,997,270 | XML |
| 990 | December 2022 | $1,452,603 | $1,160,011 | $2,172,966 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-2661656).
Questions about FORE BATTEN FOUNDATION
- What is the EIN of FORE BATTEN FOUNDATION?
- The employer identification number (EIN) of FORE BATTEN FOUNDATION is 82-2661656.
- Is FORE BATTEN FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2018.
- Are donations to FORE BATTEN FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FORE BATTEN FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FORE BATTEN FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FORE BATTEN FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of FORE BATTEN FOUNDATION?
- The 990 for the year ended December 31, 2024 names KAREN KAHN.
- Who are the officers and directors of FORE BATTEN FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 5 people; 0 received compensation from the organization.
- How much revenue does FORE BATTEN FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $1,072,285, expenses of $2,686,450 and total assets of $383,105 at year end.
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