Nonprofit · EIN 82-2564392
SYSTEMIC JIA FOUNDATION
Tax-exempt · MOUNTAIN VIEW, CA 94041
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $159,459 | $142,526 | $16,933 | $106,554 | $0 | $106,554 |
| December 31, 2023 | 990 | $348,552 | $361,009 | -$12,457 | $89,621 | $0 | $89,621 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $159,459
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $462
- Accounting fees
- $28,109
- Travel
- $8,669
- Program services (functional)
- $109,812
- Management and general (functional)
- $32,714
Balance sheet and other
- Total assets, start of year
- $89,621
- Total assets, end of year
- $106,554
- Total liabilities, end of year
- $0
- Net assets, end of year
- $106,554
- Gross receipts
- $159,459
- Employees
- 0
- Volunteers
- 0
- Year formed
- 2017
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JONATHAN BOUTELLE | DIRECTOR Trustee or director | 5 | $0 |
| RASHMI SINHA | DIRECTOR Trustee or director | 30 | $0 |
| MATTHEW MIGHT | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JONATHAN BOUTELLE | DIRECTOR Trustee or director | 2 | $0 |
| RASHMI SINHA | DIRECTOR Trustee or director | 40 | $0 |
| MATTHEW MIGHT | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 479 YOSEMITE AVE, MOUNTAIN VIEW, CA 94041-2154
- Principal officer (990 for 2024)
- JONATHAN BOUTELLE, 479 YOSEMITE AVENUE, MOUNTAIN VIEW, CA 94041
- Signed the 990
- JONATHAN BOUTELLE, PRESIDENT
- Phone
- (510) 703-9595
- Website
- WWW.SYSTEMICJIA.ORG
- Return prepared by
- ALTUM PR LLC
California records
California keeps its own records of charities and corporations. Search them by EIN 82-2564392 or by the name SYSTEMIC JIA FOUNDATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
1. TO SUPPORT RESEARCH RELATING TO TREATMENTS AND CURE OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS (SJIA); 2. PROMOTE INCREASED AWARENESS, KNOWLEDGE AND UNDERSTANDING OF SJIA BY MEDICAL PROFESSIONALS, THE GENERAL PUBLIC AND FAMILIES AFFECTED BY SJIA; 3. PROMOTE MUTUAL SUPPORT THROUGH BUILDING AND MAINTAINING AN EXTENSIVE WEB-BASED OR OTHER NETWORK OF INFORMATION AND RESOURCES FOR THE GENERAL PUBLIC AND FAMILIES.
Program accomplishments
- SYSTEMIC JIA FOUNDATION PLANS SEVERAL TYPES OF FUNDRAISING: 1) DONATIONS FROM FAMILIES WITH SJIA: THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO FAMILIES WITH SJIA TO BOTH CONTRIBUTE AND RAISE FUNDS FOR THE BENEFIT OF THE SYSTEMIC JIA FOUNDATION. THE SYSTEMIC JIA FOUNDATION WILL RAISE FUNDS ONLINE, USING FUNDRAISING SITES SUCH AS CROWDRISE, STRIPE, FACEBOOK OR FUNDRAISING FUNCTIONALITY ON OUR OWN WEBSITE.2) EVENT SPONSORSHIPS FROM PHARMA COMPANIES: FOR ANY EVENTS THE SYSTEMIC JIA FOUNDATION ORGANIZE, THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO PHARMA COMPANIES WHO ARE INTERESTED IN SJIA TO GIVE SPONSORSHIPS AT DIFFERENT LEVELS TO SUPPORT THE EVENT.3) GENERAL: THE SYSTEMIC JIA FOUNDATION WILL UNDERTAKE ADDITIONAL FUNDRAISING FROM A VARIETY OF SOURCES INCLUDING MAIL, EMAIL, PERSONAL AND PHONE SOLICITATIONS. THE ORGANIZATION WILL CREATE PROPOSALS AND OTHER MATERIALS THAT WILL BE NECESSARY TO SUBMIT IN ORDER FOR THE ORGANIZATION TO RECEIVE GRANTS AND DONATIONS.4) GRANTS FROM OTHER CHARITABLE ORGANIZATIONS. THE SYSTEMIC JIA FOUNDATION WILL RAISE ADDITIONAL FUNDS FROM OTHER CHARITABLE FOUNDATIONS.revenue $159,459
- CONFERENCES ATTENDED IN 2024PRES CONGRESS 2024 ATTENDED FROM SEPTEMBER 11, 2024 TO SEPTEMBER 14, 2024 AT GOTHENBURG SWEDEN.BRIEF DESCRIPTION: THE PRES (PEDIATRIC RHEUMATOLOGY EUROPEAN SOCIETY) CONFERENCE IS AN ANNUAL INTERNATIONAL EVENT FOCUSED ON ADVANCEMENTS IN PEDIATRIC RHEUMATOLOGY. IT'S A PLATFORM FOR HEALTHCARE PROFESSIONALS, RESEARCHERS, AND SCIENTISTS TO NETWORK, LEARN, AND SHARE THEIR KNOWLEDGE ON DIAGNOSING, TREATING, AND MANAGING RHEUMATIC DISEASES IN CHILDREN AND YOUNG PEOPLE.Expenses $3,445
- NEXTGEN 2024 ORGANIZED FROM WEDNESDAY NOVEMBER 13, 2024 TO FRIDAY, NOVEMBER 15, 2024.DESCRIPTION: NEXTGEN CONFERENCE (AS WITH NEXTGEN IN PREVIOUS YEARS) AIMS TO ADVANCE THERAPIES FOR SJIA, STILL'S DISEASE AND MAS. THE SPECIFIC FOCUS IN 2024 IS ON CLINICAL TRIALS AND BONE MARROW TRANSPLANTATION AS AN OPTION FOR REFRACTORY DISEASE. THE FOUNDATION INVITES ALL STAKEHOLDERS TO THE TABLE SUCH AS SCIENTISTS, CLINICIANS, PATIENT AND CAREGIVER REPRESENTATIVES, THE FDA / EMA, AND PHARMACEUTICAL COMPANIES.TOPICS INCLUDE:A COMPREHENSIVE LOOK AT IL18 (MEASURING IT, ROLE IN DISEASE, IL18-DRIVEN CLINICAL TRIALS), THERAPEUTIC OPTIONS FOR REFRACTORY PATIENTS (JAK-INHIBITORS & BEYOND), UPCOMING CLINICAL TRIALS IN SJIA, STILL'S & MAS BONE MARROW TRANSPLANTATION FOR REFRACTORY PATIENTS.Expenses $106,367
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 82-2564392
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2018
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H98)
- Assets (IRS master file)
- $106,554
- Income (IRS master file)
- $159,459
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $159,459 | $142,526 | $106,554 | IRS |
| 990 | December 2023 | $348,552 | $361,009 | $89,621 | XML |
| 990 | December 2022 | $192,569 | $360,306 | $102,078 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-2564392).
Questions about SYSTEMIC JIA FOUNDATION
- What is the EIN of SYSTEMIC JIA FOUNDATION?
- The employer identification number (EIN) of SYSTEMIC JIA FOUNDATION is 82-2564392.
- Is SYSTEMIC JIA FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2018.
- Are donations to SYSTEMIC JIA FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SYSTEMIC JIA FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SYSTEMIC JIA FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SYSTEMIC JIA FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of SYSTEMIC JIA FOUNDATION?
- The 990 for the year ended December 31, 2024 names JONATHAN BOUTELLE.
- Who are the officers and directors of SYSTEMIC JIA FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 3 people; 0 received compensation from the organization.
- How much revenue does SYSTEMIC JIA FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $159,459, expenses of $142,526 and total assets of $106,554 at year end.
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