Nonprofit · EIN 82-2473513
CURE RARE DISEASE INC
Tax-exempt · WOODBRIDGE, CT 06525
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| July 31, 2025 | 990 | $5,335,620 | $2,307,360 | $3,028,260 | $9,212,415 | $2,733,913 | $6,478,502 |
| July 31, 2024 | 990 | $4,438,510 | $2,003,149 | $2,435,361 | $5,973,877 | $2,517,905 | $3,455,972 |
| July 31, 2023 | 990 | $2,300,944 | $1,957,670 | $343,274 | $3,277,567 | $2,255,806 | $1,021,761 |
Financial details: 990 for the year ended July 31, 2025
Revenue
- Contributions, gifts and grants
- $5,016,216
- of which government grants
- $297,998
- Program service revenue
- $45,500
- Investment income
- $76,463
- Net rental income
- $148,716
- Net income from fundraising events
- -$5,479
- Other revenue
- $197,441
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $175,000
- Other salaries and wages
- $205,878
- Salaries, compensation and benefits (total)
- $425,268
- Professional fundraising fees
- $0
- Legal fees
- $75,617
- Accounting fees
- $36,528
- Occupancy
- $272,574
- Travel
- $44,625
- Depreciation
- $1,850
- Program services (functional)
- $2,117,925
- Management and general (functional)
- $89,909
- Fundraising (functional)
- $99,526
Balance sheet and other
- Total assets, start of year
- $5,973,877
- Total assets, end of year
- $9,212,415
- Total liabilities, end of year
- $2,733,913
- Net assets, end of year
- $6,478,502
- Land, buildings and equipment
- $4,264,723
- Publicly traded securities
- $83,806
- Net assets without donor restrictions
- $5,393,375
- Net assets with donor restrictions
- $1,085,127
- Gross unrelated business income
- $148,716
- Gross receipts
- $6,129,687
- Employees
- 9
- Volunteers
- 11
- Year formed
- 2018
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended July 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| RICHARD HORGAN | FOUNDER & CEO Trustee or director, Officer | 40 | $210,041 | $9,903 |
| MARK WARD | CAO | 40 | $102,686 | $0 |
| BRENT WARNER | MEMBER Trustee or director | 2 | $0 | $0 |
| MARK SMITH | MEMBER Trustee or director | 2 | $0 | $0 |
| KWESI ACQUAY | MEMBER Trustee or director | 2 | $0 | $0 |
| STEPHANIE HERZOG | MEMBER Trustee or director | 2 | $0 | $0 |
| MIKE WILLIAMS | MEMBER Trustee or director | 2 | $0 | $0 |
| JEREMY STERNBERG | MEMBER Trustee or director | 2 | $0 | $0 |
| JESSICA CURRAN | MEMBER Trustee or director | 2 | $0 | $0 |
| KLAUS VEITINGER | MEMBER Trustee or director | 2 | $0 | $0 |
| GREG KLASSEN | MEMBER Trustee or director | 2 | $0 | $0 |
| CODY TRANBARGER | MEMBER Trustee or director | 2 | $0 | $0 |
| MICHELLE WERNER | MEMBER Trustee or director | 2 | $0 | $0 |
990 for the year ended July 31, 2024: 12 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| RICHARD HORGAN | FOUNDER & CEO Trustee or director, Officer | 40 | $164,275 | $10,166 |
| BRENT WARNER | MEMBER Trustee or director | 2 | $0 | $0 |
| MARK SMITH | MEMBER Trustee or director | 2 | $0 | $0 |
| KWESI ACQUAY | MEMBER Trustee or director | 2 | $0 | $0 |
| STEPHANIE HERZOG | MEMBER Trustee or director | 2 | $0 | $0 |
| MIKE WILLIAMS | MEMBER Trustee or director | 2 | $0 | $0 |
| JEREMY STERNBERG | MEMBER Trustee or director | 2 | $0 | $0 |
| JESSICA CURRAN | MEMBER Trustee or director | 2 | $0 | $0 |
| KLAUS VEITINGER | MEMBER Trustee or director | 2 | $0 | $0 |
| GREG KLASSEN | MEMBER Trustee or director | 2 | $0 | $0 |
| CODY TRANBARGER | MEMBER Trustee or director | 2 | $0 | $0 |
| ALEXANDRA URMAN | MEMBER Trustee or director | 2 | $0 | $0 |
990 for the year ended July 31, 2023: 11 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| RICHARD HORGAN | FOUNDER & CEO Trustee or director, Officer | 40 | $81,731 | $7,174 |
| MELISSA HUNTER-ENSOR | MEMBER Trustee or director | 2 | $0 | $0 |
| MARK SMITH | MEMBER Trustee or director | 2 | $0 | $0 |
| KWESI ACQUAY | MEMBER Trustee or director | 2 | $0 | $0 |
| STEPHANIE HERZOG | MEMBER Trustee or director | 2 | $0 | $0 |
| SARA COLE | MEMBER Trustee or director | 2 | $0 | $0 |
| JESSICA CURRAN | MEMBER Trustee or director | 2 | $0 | $0 |
| KEVEN LIN | MEMBER Trustee or director | 2 | $0 | $0 |
| GREG KLASSEN | MEMBER Trustee or director | 2 | $0 | $0 |
| CODY TRANBARGER | MEMBER Trustee or director | 2 | $0 | $0 |
| ALEXANDRA URMAN | MEMBER Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 4 RESEARCH DR, WOODBRIDGE, CT 06525-2347
- Principal officer (990 for 2024)
- RICHARD HORGAN, 4 RESEARCH DR, WOODBRIDGE, CT 06525
- Signed the 990
- RICHARD HORGAN, FOUNDER & CEO
- Phone
- (607) 215-6401
- Website
- CURERAREDISEASE.ORG
- Return prepared by
- Leaf & Cole LLP
Mission
OUR MISSION IS TO ENABLE AND FINANCE THE DEVELOPMENT OF LIFE-SAVING GENETIC MEDICINES FOR ULTRA-RARE PATIENT POPULATIONS PREVIOUSLY DEEMED TOO RARE TO TREAT. TO REALIZE THIS, OUR UNIQUE ECOSYSTEMS FACILITATES COLLABORATION BETWEEN WORLD-RENOWNED RESEARCHERS AND CLINICIANS, POLICY EXPERTS AND OUR GENEROUS DONORS. TOGETHER, WE ARE FUNDAMENTALLY CHANGING THE ULTRA-RARE DISEASE EXPERIENCE AND BURDEN FOR MILLIONS OFPEOPLE AROUND THE WORLD WITH OUR DISCOVERIES AND METHODS - WHILE BRINGING HOPE TO PATIENTS WAITING FOR A CURE.
Program accomplishments
- TO ADVANCE THE DEVELOPMENT OF ULTRA-RARE DISEASE THERAPEUTICS.Expenses $2,117,925 · revenue $45,500
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in July, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | July 31, 2026 | December 15, 2026 | Not due yet |
| 2024 | July 31, 2025 | December 15, 2025 | 990 on file |
| 2023 | July 31, 2024 | December 16, 2024 | 990 on file |
IRS record
- EIN
- 82-2473513
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2018
- Accounting year ends
- July
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G12)
- Assets (IRS master file)
- $9,212,415
- Income (IRS master file)
- $6,129,687
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | July 2025 | $5,335,620 | $2,307,360 | $9,212,415 | IRS |
| 990-T | July 2025 | – | – | – | IRS |
| 990 | July 2024 | $4,438,510 | $2,003,149 | $5,973,877 | XML |
| 990-T | July 2024 | – | – | – | IRS |
| 990 | July 2023 | $2,300,944 | $1,957,670 | $3,277,567 | XML |
| 990 | July 2022 | $2,797,783 | $3,210,905 | $839,519 | IRS |
| 990 | July 2021 | – | – | – | IRS |
| 990 | July 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-2473513).
Questions about CURE RARE DISEASE INC
- What is the EIN of CURE RARE DISEASE INC?
- The employer identification number (EIN) of CURE RARE DISEASE INC is 82-2473513.
- Is CURE RARE DISEASE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2018.
- Are donations to CURE RARE DISEASE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CURE RARE DISEASE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CURE RARE DISEASE INC due?
- The return for tax year 2025 (the year ending July 31, 2026) is due December 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CURE RARE DISEASE INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended July 2025.
- Who is the principal officer of CURE RARE DISEASE INC?
- The 990 for the year ended July 31, 2025 names RICHARD HORGAN.
- Who are the officers and directors of CURE RARE DISEASE INC?
- The 990 for the year ended July 31, 2025 lists 13 people; 2 received compensation from the organization, the highest $210,041 (RICHARD HORGAN, FOUNDER & CEO).
- How much revenue does CURE RARE DISEASE INC have?
- On its 990 for the year ended July 31, 2025 it reported revenue of $5,335,620, expenses of $2,307,360 and total assets of $9,212,415 at year end.
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