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Nonprofit · EIN 82-2469441

MED13L FOUNDATION INC

Tax-exempt · PARK RIDGE, IL 60068

Financials

$99K$53K2021$609K$201K2023$188K$348K2024
Revenue Expenses · by fiscal year end
Financials of MED13L FOUNDATION INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$188,215$348,032-$159,817$579,971$0$579,971
December 31, 2023990$608,940$201,203$407,737$739,788$0$739,788
December 31, 2021990-EZ$99,263$52,772$46,491$49,724$0$49,724
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$170,834
Program service revenue
$0
Investment income
$26,603
Net income from fundraising events
-$9,222
Other revenue
-$9,222

Expenses

Grants and similar amounts paid
$292,840
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$20,200
Accounting fees
$1,410
Travel
$2,543
Program services (functional)
$292,840
Management and general (functional)
$9,024
Fundraising (functional)
$46,168

Balance sheet and other

Total assets, start of year
$739,788
Total assets, end of year
$579,971
Total liabilities, end of year
$0
Net assets, end of year
$579,971
Publicly traded securities
$462,992
Net assets without donor restrictions
$579,971
Gross receipts
$197,437
Employees
0
Volunteers
10
Year formed
2017
State of legal domicile
NJ

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
NICK SEAVERTREASURER
Trustee or director, Officer
5$0
KATHLEEN BARRY BOYCHUCKCHAIR
Trustee or director, Officer
10$0
VANESSA DIASVICE CHAIR
Trustee or director, Officer
10$0
JENNIFER ROBERTSONSECRETARY
Trustee or director, Officer
10$0
INON SHAMPANIERTRUSTEE AS OF SEPT 2024
Trustee or director
5$0
KELLY SEXTONTRUSTEE UNTIL SEPT 2024
Trustee or director
0$0
KIM SOKORAITRUSTEE UNTIL SEPT 2024
Trustee or director
0$0
990 for the year ended December 31, 2023: 6 people
NameTitleHours / weekCompensation
NICK SEAVERPRESIDENT
Trustee or director, Officer
5$0
KELLY SEXTONVICE PRESIDENT
Trustee or director, Officer
5$0
KATHLEEN BARRY BOYCHUCKTREASURER
Trustee or director, Officer
10$0
KIM SOKORAITRUSTEE
Trustee or director
5$0
VANESSA DIASTRUSTEE
Trustee or director
10$0
JENNIFER ROBERTSONSECRETARY
Trustee or director, Officer
10$0
990-EZ for the year ended December 31, 2021: 3 people
NameTitleHours / weekCompensation
KELLY SEXTONPRESIDENT20$0
RYAN SEXTONTRUSTEE1$0
EDWARD F BRENNANTRUSTEE0.5$0

Address and contacts

Address (IRS master file)
14 MAIN ST, PARK RIDGE, IL 60068-4029
In care of
% KELLY SEXTON
Mailing address (990-N for 2021)
17 Timber Drive, Barrington NJ 08007
Principal officer (990 for 2024)
KATHLEEN BARRY BOYCHUCK, 17 TIMBER DRIVE, BARRINGTON, NJ 08007
Principal officer (990-N for 2021)
Kelly Sexton, 17 Timber Drive, Barrington NJ 08007
Signed the 990
KATHLEEN BARRY BOYCHUCK, CHAIR
Phone
(856) 534-5470
Return prepared by
CANTOR NOVAK BEAVER & PIKE PC

Mission

MED13L PROVIDES SUPPORT FOR RESEARCH, ADVANCEMENT AND RAISING AWARENESS OF THE RARE GENETIC DISEASE, MED13L. THE OBJECTIVES OF MED13L IS TO RAISE AWARENESS IN THE LOCAL, NATIONAL AND INTERNATIONAL COMMUNITY ABOUT THE RARE GENETIC DISEASE, MED13L AND TO PROVIDE FUNDING FOR RESEARCH, DEVELOPMENT AND ADVANCEMENT INTO FIGHTING THIS DISEASE. THE ULTIMATE GOAL IS TO FIND OUT MORE ABOUT WHAT CAUSES MED13L AND FIND A CURE. IN OUR ENDEAVOR TO REACH THAT GOAL, MED13L STRIVES TO CREATE A SUPPORT SYSTEM FOR FAMILIES IMPACTED BY MED13L ALL THE WHILE PROVIDING FUNDING OPPORTUNITIES TO HEALTHCARE PROFESSIONALS AND RESEARCHERS WHO ARE HELPING TO FIND A CURE TO THIS RARE GENETIC DISEASE.

990 for the year ended December 31, 2024

Program accomplishments

  • COORDINATE AND COLLABORATE WITH THE GLOBAL SCIENTIFIC COMMUNITY TO UNDERSTAND THE FUNCTION OF THE MED13L GENE IN ORDER TO DEVELOP EFFECTIVE TREATMENTS AND A CURE FOR MED13L SYNDROME. INCREASE MEDICAL COMMUNITY AND PUBLIC AWARENESS OF THE COMPLEXITY AND POTENTIAL SEVERITY OF MED13L SYNDROME. PROVIDE EDUCATIONAL AND EMOTIONAL SUPPORT FOR THOSE AFFECTED BY MED13L SYNDROME. RAISE MONEY TO FUND OUR GOALS.
    Expenses $292,840 · grants $292,840

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
82-2469441
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (509(a)(2))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2017
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H11)
Assets (IRS master file)
$579,971
Income (IRS master file)
$197,437

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$188,215$348,032$579,971IRS
990December 2023$608,940$201,203$739,788XML
990December 2022$323,934$41,607$332,051IRS
990-N for 2021
Officer: Kelly Sexton
December 31, 2021≤ $50,000 receipts––e-Postcard
990-EZDecember 2021$99,263$52,772$49,724XML
990-N for 2020
Officer: Kelly Sexton
December 31, 2020≤ $50,000 receipts––e-Postcard
990-N for 2019
Officer: Kelly Sexton
December 31, 2019≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-2469441).

Questions about MED13L FOUNDATION INC

What is the EIN of MED13L FOUNDATION INC?
The employer identification number (EIN) of MED13L FOUNDATION INC is 82-2469441.
Is MED13L FOUNDATION INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2017.
Are donations to MED13L FOUNDATION INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does MED13L FOUNDATION INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of MED13L FOUNDATION INC due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did MED13L FOUNDATION INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of MED13L FOUNDATION INC?
The 990 for the year ended December 31, 2024 names KATHLEEN BARRY BOYCHUCK.
Who are the officers and directors of MED13L FOUNDATION INC?
The 990 for the year ended December 31, 2024 lists 7 people; 0 received compensation from the organization.
How much revenue does MED13L FOUNDATION INC have?
On its 990 for the year ended December 31, 2024 it reported revenue of $188,215, expenses of $348,032 and total assets of $579,971 at year end.

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