Nonprofit · EIN 82-1697564
FOUNDATION FOR HAO- FOUNDATION SYNDROME
Tax-exempt · FALMOUTH, ME 04105
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $249,730 | $243,451 | $6,279 | $234,087 | $0 | $234,087 |
| December 31, 2024 | 990 | $76,041 | $37,833 | $38,208 | $227,809 | $0 | $227,809 |
| December 31, 2023 | 990 | $54,447 | $81,195 | -$26,748 | $189,601 | $0 | $189,601 |
| December 31, 2022 | 990 | $50,696 | $12,570 | $38,126 | $216,349 | $0 | $216,349 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $249,730
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $152,708
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $120
- Accounting fees
- $2,930
- Occupancy
- $30,673
- Travel
- $5,744
- Program services (functional)
- $240,372
- Management and general (functional)
- $3,079
Balance sheet and other
- Total assets, start of year
- $227,809
- Total assets, end of year
- $234,087
- Total liabilities, end of year
- $0
- Net assets, end of year
- $234,087
- Gross receipts
- $249,730
- Employees
- 0
- Volunteers
- 4
- Year formed
- 2017
- State of legal domicile
- ME
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| BO BIGELOW | CHAIRMAN Trustee or director, Officer | – | $0 |
| CATHERINE MCCRANN | TREASURER Trustee or director, Officer | – | $0 |
| KRISTEN HOFFECKER | VICE-CHAIRMAN Trustee or director, Officer | – | $0 |
| BECKY RAATZ | SECRETARY Trustee or director, Officer | – | $0 |
| KATIE MAZA | DIRECTOR Trustee or director | – | $0 |
990 for the year ended December 31, 2024: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| BO BIGELOW | CHAIRMAN Trustee or director, Officer | – | $0 |
| CATHERINE MCCRANN | TREASURER Trustee or director, Officer | – | $0 |
| KRISTEN HOFFECKER | VICE-CHAIRMAN Trustee or director, Officer | – | $0 |
| BECKY RAATZ | SECRETARY Trustee or director, Officer | – | $0 |
| ANDREW WICKEN | DIRECTOR Trustee or director | – | $0 |
| HEATHER ADAMSON | DIRECTOR Trustee or director | – | $0 |
990 for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| BO BIGELOW | CHAIRMAN Trustee or director, Officer | – | $0 |
| CATHERINE MCCRANN | TREASURER Trustee or director, Officer | – | $0 |
| KRISTEN HOFFECKER | VICE-CHAIRMAN Trustee or director, Officer | – | $0 |
| BECKY RAATZ | SECRETARY Trustee or director, Officer | – | $0 |
| ANDREW WICKEN | DIRECTOR Trustee or director | – | $0 |
| HEATHER ADAMSON | DIRECTOR Trustee or director | – | $0 |
990 for the year ended December 31, 2022: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| BO BIGELOW | CHAIRMAN Trustee or director, Officer | – | $0 |
| CATHERINE MCCRANN | TREASURER Trustee or director, Officer | – | $0 |
| KRISTEN HOFFECKER | VICE-CHAIRMAN Trustee or director, Officer | – | $0 |
| BECKY RAATZ | SECRETARY Trustee or director, Officer | – | $0 |
| ANDREW WICKEN | DIRECTOR Trustee or director | – | $0 |
| HEATHER ADAMSON | DIRECTOR Trustee or director | – | $0 |
Address and contacts
- Address (IRS master file)
- 11 INNKEEPERS LN, FALMOUTH, ME 04105-2545
- In care of
- % FRANCIS D BIGELOW
- Principal officer (990 for 2025)
- FRANCIS BIGELOW, 11 INNKEEPERS LN, FALMOUTH, ME 04105
- Signed the 990
- FRANCIS BIGELOW, CHAIRMAN
- Phone
- (207) 899-0370
- Website
- USP7.ORG
- Return prepared by
- Integrated Tax Consultants LLC
Mission
TO CURE USP7-RELATED DISEASES BY FUNDING RESEARCH AND IDENTIFYING MORE PATIENTS.
Program accomplishments
- RESEARCH FUNDING GRANTS AND EXPENSES RELATED TO FINDING A CURE AND IDENTIFYING MORE PATIENTS.Expenses $159,309 · grants $152,708
- TRAVEL RELATED TO A PHENOTYPING STUDY AND THE ANNUAL RARE-DISEASE GROUP CONFERENCE HOSTED BY THE FOUNDATION FOR PRADER-WILLI RESEARCH.Expenses $36,417
- GENERAL PROGRAM EXPENSES WERE INCURRED TOWARD BANK FEES AND WEBSITE COSTS.Expenses $44,646
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 82-1697564
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2017
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $234,087
- Income (IRS master file)
- $249,730
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $249,730 | $243,451 | $234,087 | XML |
| 990 | December 2024 | $76,041 | $37,833 | $227,809 | XML |
| 990 | December 2023 | $54,447 | $81,195 | $189,601 | XML |
| 990 | December 2022 | $50,696 | $12,570 | $216,349 | XML |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-1697564).
Questions about FOUNDATION FOR HAO- FOUNDATION SYNDROME
- What is the EIN of FOUNDATION FOR HAO- FOUNDATION SYNDROME?
- The employer identification number (EIN) of FOUNDATION FOR HAO- FOUNDATION SYNDROME is 82-1697564.
- Is FOUNDATION FOR HAO- FOUNDATION SYNDROME tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2017.
- Are donations to FOUNDATION FOR HAO- FOUNDATION SYNDROME tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FOUNDATION FOR HAO- FOUNDATION SYNDROME file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FOUNDATION FOR HAO- FOUNDATION SYNDROME due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FOUNDATION FOR HAO- FOUNDATION SYNDROME last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of FOUNDATION FOR HAO- FOUNDATION SYNDROME?
- The 990 for the year ended December 31, 2025 names FRANCIS BIGELOW.
- Who are the officers and directors of FOUNDATION FOR HAO- FOUNDATION SYNDROME?
- The 990 for the year ended December 31, 2025 lists 5 people; 0 received compensation from the organization.
- How much revenue does FOUNDATION FOR HAO- FOUNDATION SYNDROME have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $249,730, expenses of $243,451 and total assets of $234,087 at year end.
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