Nonprofit · EIN 81-5444211
JANSENS FOUNDATION
Tax-exempt · ELKHORN, NE 68022
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $97,679 | $54,263 | $43,416 | $63,780 | – | $63,780 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $93,165
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $4,514
Expenses
- Compensation of officers, directors and key employees
- $38,750
- Salaries, compensation and benefits (total)
- $42,734
- Other expenses
- $11,529
- Program services (functional)
- $53,137
Balance sheet and other
- Total assets, start of year
- $20,364
- Total assets, end of year
- $63,780
- Total liabilities, end of year
- –
- Net assets, end of year
- $63,780
- Cash, savings and investments
- $63,780
- Gross receipts
- $97,679
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Neena Nizar | President & Project Lead | 15 | $17,500 |
| Penni Romero | Administrative Official & Treasurer | 10 | $13,500 |
| Maegan Wallace | Project Lead & Secretary | 5 | $7,750 |
Address and contacts
- Address (IRS master file)
- PO BOX 115, ELKHORN, NE 68022-0115
- Mailing address (990-N for 2024)
- PO Box 115, Elkhorn NE 68022
- Principal officer (990-N for 2024)
- Neena Nizar, 20105 HOPPER STREET, ELKHORN NE 68022
- Signed the 990-EZ
- Penni Romero, Administrative Official & Treasurer
- Phone
- (402) 457-9886
Mission
The miission of the Jansens Foundation is to bring awareness and support research in hope fo bringing about a cure to this debilitating skeletal condition. Jansen's Disease is an ultra-rare condition, affecting fewer than 30 patients worldwide, which often results in limited diagnosis and treatment options.
Program accomplishments
- Patient awareness: Develop and maintain website with information about the condition for people across the world to access. Patients and medical personnel from across the world (about 40 or more persons) can access contact information to seek out additional information regarding medical diagnosis, testing, and treatment. Maintain the foundations operation to meet the above objectives as well as objectives described below through independent contractors serving as Project Lead (2) and Administrative OfficialExpenses $41,108
- Empower the Jansens community and stakeholders by enhancing their capacity to define research priorities and engage in the CER process through training. By creating a structured framework for collaboration, we aim to establish best practices for involving ultra-rare patients, caregivers, and relevant community members (19 individuals) ultimately improving long-term outcomes in research and healthcare. Stipends awarded for completion of CER trainings.Expenses $5,011
- Establish collaborative partnerships for research prioritization through community engagement by forming an advisory board of a diverse group of community stakeholders to identify and prioritize key research questions.Expenses $7,858
- Establish collaborative partnerships for research prioritization through community engagement by sending a representative to national medical workshops engaged in bone research.Expenses $286
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-N on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-N on file |
IRS record
- EIN
- 81-5444211
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2017
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $63,780
- Income (IRS master file)
- $97,679
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $97,679 | $54,263 | $63,780 | XML |
| 990-N for 2024 Officer: Neena Nizar | December 31, 2024 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2023 Officer: Neena Nizar | December 31, 2023 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2022 Officer: Neena Nizar | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2021 Officer: Neena Nizar | December 31, 2021 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2020 Officer: Neena Nizar | December 31, 2020 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2019 Officer: Neena Nizar | December 31, 2019 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-5444211).
Questions about JANSENS FOUNDATION
- What is the EIN of JANSENS FOUNDATION?
- The employer identification number (EIN) of JANSENS FOUNDATION is 81-5444211.
- Is JANSENS FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2017.
- Are donations to JANSENS FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does JANSENS FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of JANSENS FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did JANSENS FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of JANSENS FOUNDATION?
- The 990-N for 2024 names Neena Nizar.
- Who are the officers and directors of JANSENS FOUNDATION?
- The 990-EZ for the year ended December 31, 2025 lists 3 people; 3 received compensation from the organization, the highest $17,500 (Neena Nizar, President & Project Lead).
- How much revenue does JANSENS FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $97,679, expenses of $54,263 and total assets of $63,780 at year end.
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