Nonprofit · EIN 81-3737330
ANDREWS FIREFLY FUND
Also known as FIREFLY FUND
Tax-exempt · AUSTIN, TX 78709
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $649,177 | $737,307 | -$88,130 | $13,374 | $1,787 | $11,587 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $649,177
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $18,000
- Compensation of officers, directors and key employees
- $95,000
- Salaries, compensation and benefits (total)
- $102,742
- Professional fundraising fees
- $37,510
- Accounting fees
- $23,463
- Travel
- $9,544
- Program services (functional)
- $588,220
- Management and general (functional)
- $70,778
- Fundraising (functional)
- $78,309
Balance sheet and other
- Total assets, start of year
- $104,552
- Total assets, end of year
- $13,374
- Total liabilities, end of year
- $1,787
- Net assets, end of year
- $11,587
- Gross receipts
- $649,177
- Employees
- 2
- Volunteers
- 7
- Year formed
- 2015
- State of legal domicile
- TX
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| BERYL PAM ANDREWS | EXECUTIVE DIRECTOR Trustee or director, Officer | 40 | $95,000 |
| CHRIS ANDREWS | DIRECTOR Trustee or director | 5 | $0 |
| LARA LANERI KEEL | DIRECTOR Trustee or director | 5 | $0 |
| COLLIN HOVINGA | DIRECTOR Trustee or director | 5 | $0 |
| SARAH REILLY | DIRECTOR Trustee or director | 5 | $0 |
| JENNY COOK | DIRECTOR Trustee or director | 5 | $0 |
| BERYL CROWLEY | DIRECTOR Trustee or director, Officer | 5 | $0 |
| HALLIE IMROTH | DIRECTOR Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 92616, AUSTIN, TX 78709-2616
- Mailing address (990-N for 2016)
- 1707 Elton Lane, Austin TX 78703
- Principal officer (990 for 2024)
- BERYL CROWLEY, PO BOX 92616, AUSTIN, TX 78709
- Principal officer (990-N for 2016)
- MariBen Ramsey, 1707 Elton Lane, Austin TX 78703
- Signed the 990
- PAM ANDREWS, EXECUTIVE DIRECTOR
- Phone
- (512) 750-1609
- Return prepared by
- ATCHLEY & ASSOCIATES LLP
Mission
TO FUND AND SUPPORT RESEARCH AND EDUCATION TO ACCLERATE A CURE FOR RARE AND FATAL NEURODEGENERATIVE GENETIC DISEASES THAT AFFECT CHILDREN.
Program accomplishments
- SINCE 2017 FIREFLY FUND HAS BEEN LEADING THE NPC NBS INITIATIVE WITH A VISION THAT ALL NEWBORNS WILL BE SCREENED FOR NPC, ENABELING EARLY DIAGNOSIS AND INTERVENTION. THE INITIATIVE IS LED BY A BROAD STAKEHOLDER WORKING GROUP, CHAIRED BY DRS. ELIZABETH BERRY-KRAVIS OF RUSH AND MARC PATTERSON OF MAYO CLINIC, WHICH INCLUDES THE NPC COMMUNITY AND INDUSTRY STAKEHOLDERS. TWENTY NINE (29) NPC AND NBS EXPERT CLINICIANS FROM AROUND THE US AND CANADA MAKE UP THE NPC NBS CLINICAL ROUNDTABLE SERVING THE INITIATIVE AS ADVISORS.Expenses $470,576 · grants $18,000
- FIREFLY FUND SUPPORTS MEDICAL RESEARCH THAT COULD PROVIDE THERAPEUTICS FOR THE TREATMENT OF NIEMANN PICK TYPE C DISEASE.Expenses $58,822
- WORK WITH ACADEMIC CENTERS OF EXCELLENCE AND PATIENT ADVOCACY ORGANIZATIONS TO REMOVE BARRIERS TO CARE AND ACCESS TO THERAPIES NECESSARY FOR THEIR LOVED ONES WITH AN NPC DIAGNOSIS.Expenses $58,822
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 81-3737330
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2017
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $13,374
- Income (IRS master file)
- $649,177
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | – | – | – | IRS |
| 990-EZ | December 2023 | $55,210 | $247,911 | $104,552 | IRS |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
| 990-N for 2016 Officer: MariBen Ramsey | December 31, 2016 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.
Questions about ANDREWS FIREFLY FUND
- What is the EIN of ANDREWS FIREFLY FUND?
- The employer identification number (EIN) of ANDREWS FIREFLY FUND is 81-3737330.
- Is ANDREWS FIREFLY FUND tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2017.
- Are donations to ANDREWS FIREFLY FUND tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ANDREWS FIREFLY FUND file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ANDREWS FIREFLY FUND due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ANDREWS FIREFLY FUND last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of ANDREWS FIREFLY FUND?
- The 990 for the year ended December 31, 2024 names BERYL CROWLEY.
- Who are the officers and directors of ANDREWS FIREFLY FUND?
- The 990 for the year ended December 31, 2024 lists 8 people; 1 received compensation from the organization, the highest $95,000 (BERYL PAM ANDREWS, EXECUTIVE DIRECTOR).
- How much revenue does ANDREWS FIREFLY FUND have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $649,177, expenses of $737,307 and total assets of $13,374 at year end.
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All nonprofits in AUSTIN · Texas · Voluntary health associations and medical disciplines