Nonprofit · EIN 81-0769799
CDG CARE
Tax-exempt · COLORADO SPGS, CO 80937
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $706,435 | $642,412 | $64,023 | $877,369 | $105,871 | $771,498 |
| December 31, 2024 | 990 | $531,003 | $344,137 | $186,866 | $716,502 | $7,012 | $709,490 |
| December 31, 2023 | 990 | $491,830 | $525,673 | -$33,843 | $522,624 | $0 | $522,624 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $686,815
- Program service revenue
- $0
- Investment income
- $19,620
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $281,143
- Compensation of officers, directors and key employees
- $70,000
- Other salaries and wages
- $16,904
- Salaries, compensation and benefits (total)
- $94,026
- Professional fundraising fees
- $0
- Accounting fees
- $19,787
- Travel
- $15,626
- Program services (functional)
- $551,683
- Management and general (functional)
- $63,206
- Fundraising (functional)
- $27,523
Balance sheet and other
- Total assets, start of year
- $716,502
- Total assets, end of year
- $877,369
- Total liabilities, end of year
- $105,871
- Net assets, end of year
- $771,498
- Publicly traded securities
- $606,536
- Net assets without donor restrictions
- $128,536
- Net assets with donor restrictions
- $642,962
- Gross receipts
- $706,435
- Employees
- 2
- Volunteers
- 10
- Year formed
- 2014
- State of legal domicile
- CO
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Andrea Miller | Executive Director Trustee or director, Officer | 40 | $70,000 |
| Christa Thoma | Treasurer Trustee or director, Officer | 8 | $0 |
| Karen Morici | Director Trustee or director | 2 | $0 |
| Meral Omurtag | Director Trustee or director | 2 | $0 |
| Kara Berasi | Chair Trustee or director, Officer | 8 | $0 |
| Heather Conneran | Director Trustee or director | 2 | $0 |
| Lewis Franklin | Director Trustee or director | 2 | $0 |
| Karen Oosterhous | Director Trustee or director | 2 | $0 |
| Ashleigh Linthicum | Secretary Trustee or director, Officer | 4 | $0 |
| Amy Dann | Vice Chair Trustee or director, Officer | 4 | $0 |
| Stephanie Giannikoulis | Director Trustee or director | 2 | $0 |
| Lauryn Mason | Director Trustee or director | 2 | $0 |
| Chelsea Sims | Director Trustee or director | 2 | $0 |
990 for the year ended December 31, 2024: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Andrea Miller | Executive Director Trustee or director, Officer | 40 | $13,462 |
| Meral Omurtag | Director Trustee or director | 2 | $0 |
| Heather Conneran | Director Trustee or director | 2 | $0 |
| Lewis Franklin | Director Trustee or director | 2 | $0 |
| Karen Oosterhous | Director Trustee or director | 2 | $0 |
| Ashleigh Linthicum | Director Trustee or director | 2 | $0 |
| Amy Dann | Director Trustee or director | 2 | $0 |
| Christa Thoma | Treasurer Trustee or director, Officer | 8 | $0 |
| Karen Morici | Chair Trustee or director, Officer | 8 | $0 |
| Kara Berasi | Vice Chair Trustee or director, Officer | 4 | $0 |
990 for the year ended December 31, 2023: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ANDREA MILLER | PRESIDENT Trustee or director, Officer | 15 | $0 |
| CHRISTA THOMA | TREASURER Trustee or director, Officer | 4 | $0 |
| KAREN MORICI | BOARD MEMBER Trustee or director | 2 | $0 |
| MERAL OMURTAG | BOARD MEMBER Trustee or director | 2 | $0 |
| KARA BERASI | BOARD MEMBER Trustee or director | 2 | $0 |
| HEATHER CONNERAN | BOARD MEMBER Trustee or director | 1 | $0 |
| LEWIS FRANKLIN | BOARD MEMBER Trustee or director | 1 | $0 |
| KAREN OOSTERHOUS | BOARD MEMBER Trustee or director | 1 | $0 |
| ASHLEIGH LINTHICUM | BOARD MEMBER Trustee or director | 1 | $0 |
| AMY DANN | BOARD MEMBER Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 38832, COLORADO SPGS, CO 80937-8832
- In care of
- % ANDREA MILLER
- Mailing address (990-N for 2017)
- PO BOX 38832, COLORADO SPGS CO 809378832
- Principal officer (990 for 2025)
- Andrea Miller, PO Box 38832, Colorado Springs, CO 80937
- Principal officer (990-N for 2017)
- Andrea Berarducci, 470 Cardiff Circle, Colorado Springs CO 80906
- Signed the 990
- ANDREA MILLER, Executive Director
- Phone
- (314) 249-4060
- Website
- www.cdgcare.org
- Return prepared by
- Mullins PC
Mission
To promote greater awareness and understanding of CDG, to provide information and support to families affected by CDG, and to advocate for and fund scientific research to advance treatments for all CDGs.
Program accomplishments
- Research and Development: In 2025, CDG CARE significantly expanded its investment in patient-centered research through direct funding of basic, translational, and therapeutic research initiatives focused on Congenital Disorders of Glycosylation (CDG). Research support included contracts with academic institutions and biotechnology partners to advance drug repurposing, gene therapy, natural history, and disease modeling across multiple CDG types. The organization also launched the CDG Clinical & Research Network (CDG CRN) to strengthen international collaboration among clinicians, researchers, industry partners, and patient advocacy organizations while advancing patient-prioritized research initiatives. In addition, CDG CARE was awarded a five-year Rare As One Network grant from the Chan Zuckerberg Initiative to further develop research infrastructure, patient engagement, and collaborative scientific programs for the global CDG community.Expenses $465,639 · grants $240,152
- Patient/Family Travel & Equipment Grant Program: In 2025, CDG CARE continued providing direct financial assistance and support services to individuals and families affected by CDG through the Emmetts Legacy Fund, which assists families with specialized medical equipment, adaptive devices, therapeutic resources, and travel to receive expert medical care. The organization also expanded patient outreach, educational resources, and community engagement opportunities designed to improve quality of life and connect families with specialized support services and research opportunities.Expenses $57,140 · grants $40,991
- Education & Awareness: In 2025, CDG CARE continued to expand global educational programming for patients, families, healthcare professionals, and researchers. Educational efforts included development of new digital resources, expansion of professional educational webinars, publication of quarterly educational newsletters, and continued awareness initiatives highlighting CDG research, clinical care, and emerging therapeutic opportunities. Planning also began for future scientific and educational conferences designed to foster collaboration and accelerate advances in diagnosis, treatment, and patient care.Expenses $28,904
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 81-0769799
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2016
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H80)
- Assets (IRS master file)
- $877,369
- Income (IRS master file)
- $706,435
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $706,435 | $642,412 | $877,369 | XML |
| 990 | December 2024 | $531,003 | $344,137 | $716,502 | XML |
| 990 | December 2023 | $491,830 | $525,673 | $522,624 | XML |
| 990 | December 2022 | $715,053 | $396,616 | $598,467 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2019 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
| 990-N for 2017 Officer: Andrea Berarducci | December 31, 2017 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-0769799).
Questions about CDG CARE
- What is the EIN of CDG CARE?
- The employer identification number (EIN) of CDG CARE is 81-0769799.
- Is CDG CARE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2016.
- Are donations to CDG CARE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CDG CARE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CDG CARE due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CDG CARE last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CDG CARE?
- The 990 for the year ended December 31, 2025 names Andrea Miller.
- Who are the officers and directors of CDG CARE?
- The 990 for the year ended December 31, 2025 lists 13 people; 1 received compensation from the organization, the highest $70,000 (Andrea Miller, Executive Director).
- How much revenue does CDG CARE have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $706,435, expenses of $642,412 and total assets of $877,369 at year end.
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