Nonprofit · EIN 81-0692862
BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT
Tax-exempt · MANSFIELD, MA 02048
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $51,286 | $55,389 | -$4,103 | $47,097 | $0 | $47,097 |
| December 31, 2024 | 990-EZ | $56,860 | $60,138 | -$3,278 | $51,200 | $0 | $51,200 |
| December 31, 2023 | 990-EZ | $71,987 | $58,364 | $13,623 | $54,478 | $0 | $54,478 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $18,391
- Program service revenue
- $32,837
- Investment income
- $58
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Benefits paid to members
- $42,473
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fees and payments to contractors
- $8,579
- Printing, publications and postage
- $535
- Other expenses
- $3,802
- Program services (functional)
- $52,745
Balance sheet and other
- Total assets, start of year
- $51,200
- Total assets, end of year
- $47,097
- Total liabilities, end of year
- $0
- Net assets, end of year
- $47,097
- Cash, savings and investments
- $47,097
- Gross receipts
- $51,286
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lori Harris | President | 0 | $0 |
| Sydney DeCosta | Member at Large | 0 | $0 |
| Michelle Contos | Project Management Director | 0 | $0 |
| Stacey Handel | Inclusion Coordinator | 0 | $0 |
| Kristen Kowalski | Secretary and Head Nurse | 0 | $0 |
| Holly Bogue | Nurse | 0 | $0 |
| Beth Wheeler | Treasurer | 0 | $0 |
| Lynne Levitsky MD | Board of Directors Medical Advisor | 0 | $0 |
| Maria Tirpak | Marketing Director | 0 | $0 |
| Nick Foss | Director of Technology-Webmaster | 0 | $0 |
| Jeanna Lee | Program Director | 0 | $0 |
| Caroline Walsh | Fundraising Director | 0 | $0 |
990-EZ for the year ended December 31, 2024: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Stacey Handel | Inclusion Coordinator | 0 | $550 |
| Kristen Kowalski | Secretary and Head Nurse | 0 | $550 |
| Holly Bogue | Nurse | 0 | $550 |
| Lori Harris | President | 0 | $0 |
| Sydney DeCosta | Project Manager | 0 | $0 |
| Michelle Contos | Programming and Fundraising Director | 0 | $0 |
| Beth Wheeler | Treasurer | 0 | $0 |
| Lynne Levitsky MD | Board of Directors Medical Advisor | 0 | $0 |
| Maria Tirpak | Marketing Director | 0 | $0 |
| Abby Metcalf | Volunteer Coordinator | 0 | $0 |
| Nick Foss | Director of Technology-Webmaster | 0 | $0 |
990-EZ for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lori Harris | President-BITSS Board of Directors | 0 | $0 |
| Kristen Kowalski | Secretary-BITSS Board of Directors | 0 | $0 |
| Tiffany Young | Director of Programming-BITSS Board of Directors | 0 | $0 |
| Beth Wheeler | Treasurer-BITSS Board of Directors | 0 | $0 |
| Sydney DeCosta | IT Director-BITSS Board of Directors | 0 | $0 |
| Stacey Handel | Inclusion Coordinator | 0 | $0 |
| Michelle Contos | Director of Fundraising and Development | 0 | $0 |
| Dionne Henry Clark | Director fo Talent Acquisition | 0 | $0 |
| Lynne Levitsky | Medical Advisor to BITSS Board of Directors | 0 | $0 |
| Maria Tirpak | Marketing Director-BITSS Board of Directors | 0 | $0 |
| Abby Metcalfe | Volunteer Coordinator | 0 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 135, MANSFIELD, MA 02048-0135
- Mailing address (990-N for 2023)
- PO Box 135, Mansfield MA 02048
- Principal officer (990-N for 2023)
- Lori Harris, PO Box 135, Mansfield MA 02048
- Signed the 990-EZ
- Elizabeth Wheeler, Treasurer
- Phone
- (617) 640-4582
- Website
- bitssummit.org
Mission
Turner Syndrome patient education and support.
Program accomplishments
- Room and Board for 30 BITSS participants and 11 staff - $26,370 (includes conference room rentals) + Meals-$7,955 Total = $34,325Expenses $34,325
- Stipends for 6 mentors ($1800), 2 nurses ($1,100) and 1 inclusion coordinator ($550) totaling $3,450Expenses $3,450
- Instructor Honorariums (11 instructors @ $100/hour) totaling $2,950Expenses $2,950
- Other Program Expenses totaling $12,020 (Program Operating Expenses of $2,796, outside food $1,176, Entertainment Expenses of $1,650, Tours Expenses of $864, Bus and other transportation expenses of $1,949, staff and contractor travel expenses of $2,179).Expenses $12,020
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-N on file |
IRS record
- EIN
- 81-0692862
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2018
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Youth development (O99)
- Assets (IRS master file)
- $47,097
- Income (IRS master file)
- $51,286
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $51,286 | $55,389 | $47,097 | IRS |
| 990-EZ | December 2024 | $56,860 | $60,138 | $51,200 | IRS |
| 990-N for 2023 Officer: Lori Harris | December 31, 2023 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-EZ | December 2023 | $71,987 | $58,364 | $54,478 | IRS |
| 990-N for 2022 Officer: Elizabeth C Wheeler | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2020 Officer: Beth Wheeler | December 31, 2020 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2019 Officer: Elizabeth C Wheeler | December 31, 2019 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-0692862).
Questions about BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT
- What is the EIN of BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT?
- The employer identification number (EIN) of BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT is 81-0692862.
- Is BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2018.
- Are donations to BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT?
- The 990-N for 2023 names Lori Harris.
- Who are the officers and directors of BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT?
- The 990-EZ for the year ended December 31, 2025 lists 12 people; 0 received compensation from the organization.
- How much revenue does BOSTON INTERNATIONAL TURNER SYNDROME SUMMIT have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $51,286, expenses of $55,389 and total assets of $47,097 at year end.
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