Nonprofit · EIN 77-0355224
AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC
Tax-exempt · TUCSON, AZ 85751
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $51,876 | $170,625 | -$118,749 | $873,074 | $90,000 | $783,074 |
| June 30, 2024 | 990 | $139,716 | $160,961 | -$21,245 | $991,823 | $0 | $991,823 |
| June 30, 2023 | 990 | $34,799 | $5,488 | $29,311 | $1,011,543 | $0 | $1,011,543 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $21,980
- Program service revenue
- $0
- Investment income
- $29,896
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $152,707
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $130
- Accounting fees
- $1,400
- Program services (functional)
- $161,736
- Management and general (functional)
- $8,889
Balance sheet and other
- Total assets, start of year
- $991,823
- Total assets, end of year
- $873,074
- Total liabilities, end of year
- $90,000
- Net assets, end of year
- $783,074
- Publicly traded securities
- $600,432
- Gross receipts
- $51,876
- Employees
- 0
- Volunteers
- 4
- Year formed
- 1993
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kristin Thorson | President Trustee or director, Officer | 40 | $0 |
| Steve Thorson | Vice President & Secretary Trustee or director, Officer | 15 | $0 |
| Jennifer E Randle | Chief Financial Officer Trustee or director, Officer | 0.2 | $0 |
| Brent Songer | Director Trustee or director | 0.2 | $0 |
990 for the year ended June 30, 2024: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kristin Thorson | President Trustee or director, Officer | 40 | $0 |
| Steve Thorson | Vice President & Secretary Trustee or director, Officer | 10 | $0 |
| Jennifer E Randle | Chief Financial Officer Trustee or director, Officer | 0.2 | $0 |
| Brent Songer | Director Trustee or director | 0.2 | $0 |
990 for the year ended June 30, 2023: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kristin Thorson | President Trustee or director, Officer | 15 | $0 |
| Steve Thorson | Vice President & Secretary Trustee or director, Officer | 2 | $0 |
| Jennifer E Randle | Chief Financial Officer Trustee or director, Officer | 0.2 | $0 |
| Brent Songer | Director Trustee or director | 0.2 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 32698, TUCSON, AZ 85751-2698
- In care of
- % KRISTIN THORSON
- Principal officer (990 for 2024)
- Kristin Thorson, PO Box 32698, Tucson, AZ 857512698
- Signed the 990
- Kristin Thorson, President
- Phone
- (520) 733-1570
- Website
- www.fibromyalgiafund.org
- Return prepared by
- BeachFleischman PLLC
Mission
The American Fibromyalgia Syndrome Association's (AFSA's) two missions are: (1) fund superior quality studies on fibromyalgia and (2) educate patients about this disease so that they can seek improved healthcare and achieve a better quality of life.
Program accomplishments
- With research grants from AFSA (typically $85,000 each), scientists advance the understanding of fibromyalgia. Our focus is on causes, treatments, and developing biomarkers for the disease. In the current year, AFSA funded 2 projects and approved the funding for a third project that is pending IRB approval. Project 1: Nicholas Fallon, Ph.D., and Andreas Goebel, M.D., Ph.D., at the University of Liverpool (U.K.) are investigating the processes involved in causing fibromyalgia symptoms to flare, with emphasis on the brain and immunological functions. Award amount is $78,058 (U.S. funds).Project 2: Shafaqq Sikandar, Ph.D., at Queen Mary University of London (U.K.) is examining how neutrophils are different in fibromyalgia and will determine if these cells can be used as a biomarker for the disease. Award amount is $74,649 (U.S. funds).Project 3: Katherine Martucci, Ph.D., at Duke University (U.S.) is conducting a treatment trial using transcranial magnetic stimulation (TMS) to treat the pain, fatigue and cognitive symptoms of fibromyalgia with an accelerated protocol targeting the medial prefrontal cortex. Project was approved in June of 2025 for $90,000 and funding is expected in October 2025.Expenses $152,707 · grants $152,707
- As part of our patient-education mission, we maintain a website to serve as a go-to resource for patients and their healthcare providers. The site includes sections on both drug and nondrug treatments, lifestyle changes, coping strategies, advances in treatments and research, and descriptions of projects funded by AFSA. We added 20 new pages to the site (it grew from 83 to 103 pages) and the number of new people visiting the site for information was 65,000 during the fiscal year.Expenses $9,029
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 77-0355224
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1994
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H99Z)
- Assets (IRS master file)
- $873,074
- Income (IRS master file)
- $51,876
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $51,876 | $170,625 | $873,074 | XML |
| 990 | June 2024 | $139,716 | $160,961 | $991,823 | XML |
| 990 | June 2023 | $34,799 | $5,488 | $1,011,543 | XML |
| 990 | June 2022 | $57,608 | $8,446 | $978,928 | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
| 990 | June 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 77-0355224).
Questions about AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC
- What is the EIN of AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC?
- The employer identification number (EIN) of AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC is 77-0355224.
- Is AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1994.
- Are donations to AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC?
- The 990 for the year ended June 30, 2025 names Kristin Thorson.
- Who are the officers and directors of AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC?
- The 990 for the year ended June 30, 2025 lists 4 people; 0 received compensation from the organization.
- How much revenue does AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $51,876, expenses of $170,625 and total assets of $873,074 at year end.
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