Nonprofit · EIN 76-0622718
PRIMARY BILLARY CHOLANGITIS ORGANIZATION
Also known as PBCERS ORGANIZATION
Tax-exempt · ROCHESTER, NY 14612
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $41,266 | $82,304 | -$41,038 | $222,276 | $0 | $222,276 |
| December 31, 2024 | 990 | $274,828 | $129,099 | $145,729 | $263,314 | $0 | $263,314 |
| December 31, 2023 | 990-EZ | $65,717 | $64,967 | $750 | $117,585 | $0 | $117,585 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $6,662
- Program service revenue
- $34,604
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $30,385
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Program services (functional)
- $72,328
- Management and general (functional)
- $9,976
Balance sheet and other
- Total assets, start of year
- $263,314
- Total assets, end of year
- $222,276
- Total liabilities, end of year
- $0
- Net assets, end of year
- $222,276
- Net assets without donor restrictions
- $222,276
- Gross receipts
- $41,266
- Employees
- 0
- Volunteers
- 10
- Year formed
- 2003
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TIM SNAKEBERG | DIRECTOR Trustee or director | 1 | $0 |
| RICHARD KIM | DIRECTOR Trustee or director | 1 | $0 |
| CAROL ROBERTS | PRESIDENT Trustee or director | 20 | $0 |
| BRENDA JONES | SECRETARY Trustee or director | 1 | $0 |
| JEANINE MIONE | VICE PRESIDENT Trustee or director | 10 | $0 |
990 for the year ended December 31, 2024: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TIM SNAKEBERG | DIRECTOR Trustee or director | 1 | $0 |
| RICHARD KIM | DIRECTOR Trustee or director | 1 | $0 |
| CAROL ROBERTS | PRESIDENT Trustee or director | 20 | $0 |
| BRENDA JONES | SECRETARY Trustee or director | 1 | $0 |
| CATHY MUMFORD | VICE PRESIDENT Trustee or director | 10 | $0 |
990-EZ for the year ended December 31, 2023: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TIM SNAKENBERG | DIRECTOR | 1 | $0 |
| RICHARD KIM | DIRECTOR | 1 | $0 |
| CAROL ROBERTS | PRESIDENT | 15 | $0 |
| BRENDA JONES | SECRETARY | 1 | $0 |
| CATHY MUMFORD | VICE PRESIDENT | 10 | $0 |
Address and contacts
- Address (IRS master file)
- 1014A GREENLEAF RD, ROCHESTER, NY 14612-1960
- In care of
- % LINDA A MOORE
- Principal officer (990 for 2025)
- CAROL ROBERTS, 1014 GREENLEAF ROAD, ROCHESTER, NY 14612
- Signed the 990
- CAROL ROBERTS, PRESIDENT
- Phone
- (585) 225-7845
- Website
- https://pbcers.org/
- Return prepared by
- Dynamic Accounting Solutions INC
Mission
The PBCers Organization is the online and in-person support group for people with Primary Biliary Cholangitis (PBC), care partners. Were your go-to resource for peer support and the latest information on PBC
Program accomplishments
- THE PBCERS ORGANIZATION OFFERS PBC PATIENTS, FAMILY MEMBERS & FRIENDS ONLINE SUPPORT AND EDUCATION DESIGNED TO HELP THEM COPE WITH CHRONIC ILLNESS DAY-TO-DAY LIVING. THIS INCLUDES A WEBSITE, PUBLIC, & PRIVATE SOCIAL MENDIA SITES (FACEBOOK, X, LINKEDIN) & EMAIL DIGEST.Expenses $3,036 · revenue $4,300
- BRING MEMBERS TOGETHER WORLDWIDE TO OFFER ONE ANOTHER HELP AND SUPPORT. PARTICIPATE IN RESEARCH PROJECTS IN CONJUNCTION WITH UNIVERSITIES. PROVIDE THE LARGEST ONLINE PBC SUPPORT NETWORK AVAILABLE AND PROVIDE FUNDING TO THE UNIVERSITY OF CA RESEARCH PROGRAM.Expenses $30,384 · revenue $9,054
- ORGANIZE & HOST CONFERENCES AND REGIONAL MEETINGS TO SHARE INFORMATION ABOUT RESEARCH, PROVIDE CONTINUING EDUCATION, HELP PBCERS MEET FACE-TO-FACE TO SHARE EXPERIENCES, AND PROVIDE SUPPORT AND NETWORKING FOR PATIENTS, FAMILY & MEDICAL PROFESSIONALS.Expenses $38,908 · revenue $21,250
What it must file and when
IRS records say it files Form 990-N (e-Postcard). Gross receipts normally $50,000 or less. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 76-0622718
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2000
- Accounting year ends
- December
- Files
- Form 990-N (e-Postcard)
- Category (NTEE)
- Voluntary health associations and medical disciplines (G120)
- Assets (IRS master file)
- $222,276
- Income (IRS master file)
- $41,266
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $41,266 | $82,304 | $222,276 | XML |
| 990 | December 2024 | $274,828 | $129,099 | $263,314 | XML |
| 990-EZ | December 2023 | $65,717 | $64,967 | $117,585 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 76-0622718).
Questions about PRIMARY BILLARY CHOLANGITIS ORGANIZATION
- What is the EIN of PRIMARY BILLARY CHOLANGITIS ORGANIZATION?
- The employer identification number (EIN) of PRIMARY BILLARY CHOLANGITIS ORGANIZATION is 76-0622718.
- Is PRIMARY BILLARY CHOLANGITIS ORGANIZATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2000.
- Are donations to PRIMARY BILLARY CHOLANGITIS ORGANIZATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does PRIMARY BILLARY CHOLANGITIS ORGANIZATION file?
- Form 990-N (e-Postcard). Gross receipts normally $50,000 or less.
- When is the next return of PRIMARY BILLARY CHOLANGITIS ORGANIZATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did PRIMARY BILLARY CHOLANGITIS ORGANIZATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of PRIMARY BILLARY CHOLANGITIS ORGANIZATION?
- The 990 for the year ended December 31, 2025 names CAROL ROBERTS.
- Who are the officers and directors of PRIMARY BILLARY CHOLANGITIS ORGANIZATION?
- The 990 for the year ended December 31, 2025 lists 5 people; 0 received compensation from the organization.
- How much revenue does PRIMARY BILLARY CHOLANGITIS ORGANIZATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $41,266, expenses of $82,304 and total assets of $222,276 at year end.
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