Nonprofit · EIN 74-2138345
TEXAS NEUROFIBROMATOSIS FOUNDATION
Tax-exempt · FLOWER MOUND, TX 75028
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $802,784 | $676,450 | $126,334 | $625,545 | $18,711 | $606,834 |
| December 31, 2024 | 990 | $616,238 | $623,837 | -$7,599 | $505,675 | $25,175 | $480,500 |
| December 31, 2023 | 990 | $646,731 | $692,762 | -$46,031 | $532,847 | $44,748 | $488,099 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $776,787
- Program service revenue
- $0
- Investment income
- $25,997
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $413
- Compensation of officers, directors and key employees
- $107,000
- Salaries, compensation and benefits (total)
- $264,706
- Professional fundraising fees
- $0
- Accounting fees
- $9,525
- Occupancy
- $26,933
- Travel
- $1,225
- Program services (functional)
- $202,654
- Management and general (functional)
- $98,740
- Fundraising (functional)
- $375,056
Balance sheet and other
- Total assets, start of year
- $505,675
- Total assets, end of year
- $625,545
- Total liabilities, end of year
- $18,711
- Net assets, end of year
- $606,834
- Net assets without donor restrictions
- $209,094
- Net assets with donor restrictions
- $397,740
- Gross receipts
- $802,784
- Employees
- 6
- Volunteers
- 100
- Year formed
- 1980
- State of legal domicile
- TX
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Cindy Hahn | Executive Director Key employee, Highest-paid employee | 40 | $107,000 |
| Laura G Lyon | Director/President Trustee or director, Officer | 5 | $0 |
| Liana Olinger | Director/ VP Trustee or director, Officer | 5 | $0 |
| Tricia Madden | Director/Secretary Trustee or director, Officer | 5 | $0 |
| Katie Lange | Director/Treasurer Trustee or director, Officer | 5 | $0 |
| Krista Comfort | Director Trustee or director | 1 | $0 |
| Edel Cuadra | Director Trustee or director | 1 | $0 |
| Jeff Davison | Director Trustee or director | 1 | $0 |
| Josh Hebert | Director Trustee or director | 1 | $0 |
| Jane Hoskins | Director Trustee or director | 1 | $0 |
| Jon Keith | Director Trustee or director | 1 | $0 |
| Carran Cullinan | Director Trustee or director | 1 | $0 |
| Tammy Benson O'Brien | Director Trustee or director, Officer | 1 | $0 |
| Janie Perelman | Director Trustee or director | 1 | $0 |
| John M Slopis MD | Director Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 16 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Cindy Hahn | Executive Director Key employee, Highest-paid employee | 40 | $84,000 |
| Laura G Lyon | Director/President Trustee or director, Officer | 5 | $0 |
| Liana Olinger | Director/ VP Trustee or director, Officer | 5 | $0 |
| Tricia Madden | Director/Secretary Trustee or director, Officer | 5 | $0 |
| Janie Perleman | Director Trustee or director | 1 | $0 |
| Tammy Benson O'Brien | Director Trustee or director | 1 | $0 |
| Jane Hoskins | Director Trustee or director | 1 | $0 |
| Scott Remphrey | Director Trustee or director | 1 | $0 |
| Jon Keith | Director Trustee or director | 1 | $0 |
| John Slopis MD | Director Trustee or director | 1 | $0 |
| Jeff Davidson | Director Trustee or director | 1 | $0 |
| Katie Lange | Treasurer Trustee or director, Officer | 1 | $0 |
| Edel Cuadra | Director Trustee or director | 1 | $0 |
| Kathryn Loo | Director Trustee or director | 1 | $0 |
| Krista Comfort | Director Trustee or director | 1 | $0 |
| Jane Perelman | Director Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 16 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Cindy Hahn | Executive Director Key employee, Highest-paid employee | 40 | $87,000 |
| Laura G Lyon | Director/President Trustee or director, Officer | 5 | $0 |
| Liana Olinger | Director/ VP Trustee or director, Officer | 5 | $0 |
| Tricia Madden | Director/Secretary Trustee or director, Officer | 5 | $0 |
| Janie Perleman | Director Trustee or director | 1 | $0 |
| Tammy Benson O'Brien | Director Trustee or director | 1 | $0 |
| Bob Boronow | Director Trustee or director | 1 | $0 |
| Jane Hoskins | Director Trustee or director | 1 | $0 |
| Scott Remphrey | Director Trustee or director | 1 | $0 |
| Jon Keith | Director Trustee or director | 1 | $0 |
| John Slopis MD | Director Trustee or director | 1 | $0 |
| Jeff Davidson | Director Trustee or director | 1 | $0 |
| Katie Lange | Director Trustee or director | 1 | $0 |
| Edel Cuadra | Director Trustee or director | 1 | $0 |
| John Lowe | Director Trustee or director | 1 | $0 |
| Kathryn Loo | Treasurer Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 511 4351 CROSSTIMBER SUITE 400, FLOWER MOUND, TX 75028-0000
- Principal officer (990 for 2025)
- Laura Lyon, 4351 Crosstimbers Suite 400 349, Flower Mound, TX 75028
- Signed the 990
- Laura Lyon, President
- Phone
- (972) 739-6086
- Website
- www.texasnf.org
- Return prepared by
- Swalm & Associates PC
Mission
To fund neurofibromatosis research and education and to provide for support groups for those facing the illness.
Program accomplishments
- The organization funds and supports neurofibromatosis research projects and participates in a Neurofibromatosis National Affairs Coalition to increase public awareness and insure and increase funding allocated from federally funded programs.Expenses $40,889
- The organization provides neurofibromatosis educational materials/information to patients, physicians, teachers and counselors; physician and clinical referrals; and statewide neurofibromatosis clinics. It conducts a symposium featuring nationally recognized researchers, a yearly family camp, and family support groups. In 2016 the the family camp served 136 patients and family members, 6 support groups serving 95 individuals, total served though events and clinics were 768 patients.Expenses $149,297 · grants $413
- The organization increases neurofibromatosis public awareness by publishing newsletters, public speaking engagements, exhibiting at state educational and medical meetings, and using billboards.Expenses $12,468
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 74-2138345
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1981
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G50)
- Assets (IRS master file)
- $625,545
- Income (IRS master file)
- $802,784
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $802,784 | $676,450 | $625,545 | XML |
| 990 | December 2024 | $616,238 | $623,837 | $505,675 | XML |
| 990 | December 2023 | $646,731 | $692,762 | $532,847 | XML |
| 990 | December 2022 | $564,208 | $576,691 | $590,826 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-T | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 74-2138345).
Questions about TEXAS NEUROFIBROMATOSIS FOUNDATION
- What is the EIN of TEXAS NEUROFIBROMATOSIS FOUNDATION?
- The employer identification number (EIN) of TEXAS NEUROFIBROMATOSIS FOUNDATION is 74-2138345.
- Is TEXAS NEUROFIBROMATOSIS FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1981.
- Are donations to TEXAS NEUROFIBROMATOSIS FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does TEXAS NEUROFIBROMATOSIS FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of TEXAS NEUROFIBROMATOSIS FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did TEXAS NEUROFIBROMATOSIS FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of TEXAS NEUROFIBROMATOSIS FOUNDATION?
- The 990 for the year ended December 31, 2025 names Laura Lyon.
- Who are the officers and directors of TEXAS NEUROFIBROMATOSIS FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 15 people; 1 received compensation from the organization, the highest $107,000 (Cindy Hahn, Executive Director).
- How much revenue does TEXAS NEUROFIBROMATOSIS FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $802,784, expenses of $676,450 and total assets of $625,545 at year end.
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All nonprofits in FLOWER MOUND · Texas · Voluntary health associations and medical disciplines