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Nonprofit · EIN 68-0182998

BLEEDING DISORDERS COUNCIL OF CALIFORNIA

Tax-exempt · SACRAMENTO, CA 95814

Financials

$333K$369K2023$367K$364K2024
Revenue Expenses · by fiscal year end
Financials of BLEEDING DISORDERS COUNCIL OF CALIFORNIA by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$366,609$364,133$2,476$351,117$78,028$273,089
December 31, 2023990$333,152$368,610-$35,458$378,124$107,093$271,031
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$349,347
Program service revenue
$0
Investment income
$17,262
Net gain from sales of assets
$10,349
Other revenue
$0

Expenses

Grants and similar amounts paid
$0
Compensation of officers, directors and key employees
$93,450
Other salaries and wages
$51,648
Salaries, compensation and benefits (total)
$172,340
Professional fundraising fees
$0
Accounting fees
$7,324
Occupancy
$3,796
Travel
$43,491
Depreciation
$219
Program services (functional)
$309,869
Management and general (functional)
$47,716
Fundraising (functional)
$6,548

Balance sheet and other

Total assets, start of year
$378,124
Total assets, end of year
$351,117
Total liabilities, end of year
$78,028
Net assets, end of year
$273,089
Land, buildings and equipment
$546
Net assets without donor restrictions
$273,089
Gross receipts
$420,502
Employees
2
Volunteers
30
Year formed
1989
State of legal domicile
CA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
LYNNE KINSTExecutive Dir.
Officer
40$93,450
STEPHANIE DANSKERBOARD MEMBER
Trustee or director, Officer
5$0
CINDY GUZMANBOARD MEMBER
Trustee or director
2$0
RYAN FADENBOARD MEMBER
Trustee or director
5$0
AMAL ESTRADABOARD MEMBER
Trustee or director
2$0
MIA CASTANEDA-LAYMANBOARD MEMBER
Trustee or director
2$0
MOSI WILLIAMSBOARD MEMBER
Trustee or director
2$0
ELAINE MACASIRAYBOARD MEMBER
Trustee or director
2$0
GREG HUNTBOARD MEMBER
Trustee or director
2$0
BRENT MASCORROBOARD MEMBER
Trustee or director
2$0
SHELLYE HOROWITZBOARD MEMBER
Trustee or director
2$0
LAUREN HAYPresident
Trustee or director, Officer
5$0
RIGO MANZOVice President
Trustee or director, Officer
2$0
CARSON KNIGHTBOARD MEMBER
Trustee or director
2$0
990 for the year ended December 31, 2023: 14 people
NameTitleHours / weekCompensation
LYNNE KINSTExecutive Dir.
Officer
40$93,079
STEPHANIE DANSKERSecretary
Trustee or director, Officer
5$0
CINDY GUZMANBOARD MEMBER
Trustee or director
2$0
RYAN FADENBOARD MEMBER
Trustee or director
5$0
AMAL ESTRADABOARD MEMBER
Trustee or director
2$0
RICHARD UNOBOARD MEMBER
Trustee or director
2$0
MOSI WILLIAMSBOARD MEMBER
Trustee or director
2$0
ELAINE MACASIRAYBOARD MEMBER
Trustee or director
2$0
TONY CARVALHOBOARD MEMBER
Trustee or director
2$0
BRENT MASCORROBOARD MEMBER
Trustee or director
2$0
SHELLYE HOROWITZBOARD MEMBER
Trustee or director
2$0
LAUREN HAYPresident
Trustee or director, Officer
5$0
RIGO MANZOVice President
Trustee or director, Officer
2$0
OSCAR HORTATreasurer
Trustee or director, Officer
2$0

Address and contacts

Address (IRS master file)
717 K ST STE 501, SACRAMENTO, CA 95814-3408
In care of
% ROBYN IRELAND
Principal officer (990 for 2024)
LAUREN HAY, 717 K STREET 501, SACRAMENTO, CA 95814
Signed the 990
LYNNE KINST, Executive Director
Phone
(916) 572-7771
Return prepared by
Krisch & Company

California records

California keeps its own records of charities and corporations. Search them by EIN 68-0182998 or by the name BLEEDING DISORDERS COUNCIL OF CALIFORNIA.

Attorney General, Registry of Charities and Fundraisers
Registration status and filed reports (CT-TR-1, RRF-1)

Mission

THE MISSION OF HCC IS TO IMPROVE ACCESS TO CARE AND TREATMENT OPTIONS IN ORDER TO ADVANCE THE QUALITY OF LIFE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, AND OUTREACH IN THE COLLABORATION WITH ITS FOUNDING MEMBER ORGANIZATIONS.

990 for the year ended December 31, 2024

Program accomplishments

  • EDUCATION - THIS INCLUDES POLICY AND ADVOCACY WEBINARS, CHAPTER PRESENTATIONS, ANDFUTURE LEADERS PROGRAMS TO EDUCATE OUR LEGISLATORS AND THE PUBLIC ON THE IMPORTANCE OF HEMOPHILIA CARE BOTH FOR THE BLEEDING DISORDERS COMMUNITY AND THE GREATER COMMUNITY. HCC SUPPORTS AND ENCOURAGES ALL PATIENTS WITH BLEEDING DISORDERS TO SEEK THE EXPERT CARE OF TRAINED PROFESSIONALS AT THE HEMOPHILIA TREATMENT CENTERS THROUGHOUT THE STATE. HCC ALSO SUPPORTS CHOICE OF TREATMENT AND PROVIDERS, AND EDUCATES THE HEMOPHILIA COMMUNITY ON THE RANGE OF OPTIONS FOR TREATMENT.
    Expenses $153,462
  • ADVOCACY & POLICY - THE HCC ACTIVELY SEEKS THE SUPPORT OF THE CALIFORNIA LEGISLATURE FOR MEASURES THAT WILL IMPROVE THE QUALITY OF LIFE OF MEMBERS IN OUR COMMUNITY. OUR EFFORTS FOCUS ON SUPPORTING THE CURRENT PROGRAMS THAT EXIST, AS WELL AS EVALUATING CHANGES TO THE CURRENT HEALTH SYSTEM THAT MAY AFFECT ACCESS AND QUALITY OF TREATMENT.IN ADDITION TO SERVING THE HCC BOARD, THE VOLUNTEER BOARD OF DIRECTORS ALSO SERVE THE HEMOPHILIA COMMUNITY IN VARIOUS CAPACITIES. SOME OF THESE INCLUDE EDUCATION, ADVOCACY, PHARMACEUTICAL INSIGHT, RELATIONAL DEVELOPMENT, AND FUTURE BUILDING.
    Expenses $91,790
  • HEALTHCARE ACCESS FORUM - THIS IS A QUARTERLY BLEEDING DISORDERS INDUSTRY FORUM THATPROMOTES COMMUNICATION AMONG CONSUMERS, INDUSTRY, HEALTHCARE PROVIDERS, SPECIALTYPHARMACIES AND THE STATE.
    Expenses $29,890
  • HCC POLICY SUMMIT PROGRAM - HCC HOSTS AN ANNUAL HEALTH SUMMIT ON HEALTHCARE POLICY AND CONSUMER HEALTHCARE ACCESS BARRIERS. THE ATTENDEES INCLUDE SOME OF THE TOP TEN PHARMACEUTICAL COMPANIES, PHARMACEUTICAL MANUFACTURERS, HEALTH CARE PROVIDERS, PATIENT ADVOCATES, REGIONAL/NATIONAL PATIENT ORGANIZATIONS, AND HEALTH-RELATED STATE GOVERNMENT AGENCIES.
    Expenses $21,827
  • DIVERSITY & INCLUSION PROGRAM - THE HCC FOCUSES ON INCREASING ACCESS TO HEALTH CARE FOR UNDERSERVED COMMUNITIES AS WELL AS PROVIDING INCREASED EDUCATION AND HEALTH LITERACY FOR UNDERSERVED COMMUNITIES.
    Expenses $12,900

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
68-0182998
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1994
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$351,117
Income (IRS master file)
$420,502

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$366,609$364,133$351,117XML
990December 2023$333,152$368,610$378,124XML
990December 2022$256,354$348,669$336,465IRS
990December 2021–––IRS
990-EZDecember 2020–––IRS
990December 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 68-0182998).

Questions about BLEEDING DISORDERS COUNCIL OF CALIFORNIA

What is the EIN of BLEEDING DISORDERS COUNCIL OF CALIFORNIA?
The employer identification number (EIN) of BLEEDING DISORDERS COUNCIL OF CALIFORNIA is 68-0182998.
Is BLEEDING DISORDERS COUNCIL OF CALIFORNIA tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1994.
Are donations to BLEEDING DISORDERS COUNCIL OF CALIFORNIA tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does BLEEDING DISORDERS COUNCIL OF CALIFORNIA file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of BLEEDING DISORDERS COUNCIL OF CALIFORNIA due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did BLEEDING DISORDERS COUNCIL OF CALIFORNIA last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of BLEEDING DISORDERS COUNCIL OF CALIFORNIA?
The 990 for the year ended December 31, 2024 names LAUREN HAY.
Who are the officers and directors of BLEEDING DISORDERS COUNCIL OF CALIFORNIA?
The 990 for the year ended December 31, 2024 lists 14 people; 1 received compensation from the organization, the highest $93,450 (LYNNE KINST, Executive Dir.).
How much revenue does BLEEDING DISORDERS COUNCIL OF CALIFORNIA have?
On its 990 for the year ended December 31, 2024 it reported revenue of $366,609, expenses of $364,133 and total assets of $351,117 at year end.

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