Nonprofit · EIN 68-0087234
SCLERODERMA RESEARCH FOUNDATION
Tax-exempt · SAN FRANCISCO, CA 94104
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $13,131,089 | $10,325,525 | $2,805,564 | $42,239,970 | $25,351,409 | $16,888,561 |
| December 31, 2024 | 990 | $12,173,161 | $9,622,521 | $2,550,640 | $32,999,784 | $18,916,787 | $14,082,997 |
| December 31, 2023 | 990 | $8,418,038 | $6,487,599 | $1,930,439 | $18,654,748 | $7,122,391 | $11,532,357 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $5,730,652
- Program service revenue
- $5,907,254
- Investment income
- $1,584,991
- Net income from fundraising events
- -$91,808
- Other revenue
- -$91,808
Expenses
- Grants and similar amounts paid
- $3,733,185
- Compensation of officers, directors and key employees
- $838,486
- Other salaries and wages
- $713,417
- Salaries, compensation and benefits (total)
- $1,698,512
- Professional fundraising fees
- $0
- Legal fees
- $188,128
- Accounting fees
- $160,243
- Occupancy
- $88,272
- Depreciation
- $11,880
- Program services (functional)
- $9,400,085
- Management and general (functional)
- $350,044
- Fundraising (functional)
- $575,396
Balance sheet and other
- Total assets, start of year
- $32,999,784
- Total assets, end of year
- $42,239,970
- Total liabilities, end of year
- $25,351,409
- Net assets, end of year
- $16,888,561
- Land, buildings and equipment
- $7,655
- Publicly traded securities
- $15,792,402
- Net assets without donor restrictions
- $16,562,026
- Net assets with donor restrictions
- $326,535
- Gross receipts
- $13,278,097
- Employees
- 10
- Volunteers
- 255
- Year formed
- 1987
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Gregory Gordon | Chief Medical Officer | 40 | $526,440 | $935 |
| Joanne Gold | Executive Dir. Officer | 40 | $220,205 | $18,062 |
| Gloria Blecha | VP Communications | 40 | $179,263 | $15,879 |
| Hannah Young | Dir. Communication | 40 | $130,689 | $7,851 |
| Neha Pamboo | Sr. Acct. Manager | 40 | $118,965 | $10,521 |
| Anoushka Donnelley | Dir. Philanthropy | 40 | $112,854 | $7,656 |
| Luke Evnin PhD | Chairman Trustee or director, Officer | 40 | $0 | $0 |
| Susan Feniger | Secretary Trustee or director, Officer | 10 | $0 | $0 |
| Deann Wright | Treasurer Trustee or director, Officer | 10 | $0 | $0 |
| Omar Baker MD | Board Member Trustee or director | 2 | $0 | $0 |
| Sharon Dobie MD | Board Member Trustee or director | 2 | $0 | $0 |
| Eric Kau MD | Board Member Trustee or director | 2 | $0 | $0 |
| David Knoller | Board Member Trustee or director | 1 | $0 | $0 |
| Violetta Merin | Board Member Trustee or director | 1 | $0 | $0 |
| Mark Scher | Board Member Trustee or director | 1 | $0 | $0 |
3 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Regina Hall | Board Member Trustee or director | 1 | $0 |
| Jeff Seaman | Board Member Trustee or director | 2 | $0 |
| Dan Schimberg | Board Member Trustee or director | 2 | $0 |
990 for the year ended December 31, 2024: 15 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Gregory Gordon | Chief Medical Officer | 40 | $416,000 | $935 |
| Joanne Gold | Executive Dir. Officer | 40 | $215,900 | $13,936 |
| Gloria Blecha | VP Communications | 40 | $171,600 | $16,022 |
| Kate Ceredona | Dir. Philanthropy | 40 | $152,258 | $7,819 |
| Hannah Young | Dir. Communication | 40 | $130,007 | $7,120 |
| Luke Evnin PhD | Chairman Trustee or director, Officer | 30 | $0 | $0 |
| Susan Feniger | Secretary Trustee or director, Officer | 10 | $0 | $0 |
| Deann Wright | Treasurer Trustee or director, Officer | 10 | $0 | $0 |
| Omar Baker MD | Board Member Trustee or director | 2 | $0 | $0 |
| Sharon Dobie MD | Board Member Trustee or director | 2 | $0 | $0 |
| Eric Kau MD | Board Member Trustee or director | 2 | $0 | $0 |
| David Knoller | Board Member Trustee or director | 1 | $0 | $0 |
| Violetta Merin | Board Member Trustee or director | 2 | $0 | $0 |
| Regina Hall | Board Member Trustee or director | 2 | $0 | $0 |
| Jeff Seaman | Board Member Trustee or director | 2 | $0 | $0 |
990 for the year ended December 31, 2023: 15 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Joanne Gold | Executive Dir. Trustee or director, Officer | 40 | $203,286 | $3,214 |
| Kate Ceredona | Dir Philanthropy | 40 | $152,315 | $6,516 |
| Gloria Blecha | Sr Dir Comm O & Ed | 40 | $129,705 | $11,123 |
| Hannah Young | Dir Communications | 40 | $110,376 | $5,867 |
| Luke Evnin PhD | Chairman Trustee or director, Officer | 30 | $0 | $0 |
| Deann Wright | Secretary Trustee or director, Officer | 10 | $0 | $0 |
| Susan Feniger | Treasurer Trustee or director, Officer | 10 | $0 | $0 |
| Omar Baker MD | Board Member Trustee or director | 2 | $0 | $0 |
| Sharon Dobie MD | Board Member Trustee or director | 2 | $0 | $0 |
| Eric Kau MD | Board Member Trustee or director | 2 | $0 | $0 |
| David Knoller | Board Member Trustee or director | 1 | $0 | $0 |
| Violetta Merin | Board Member Trustee or director | 2 | $0 | $0 |
| Caryn Zucker | Board Member Trustee or director | 1 | $0 | $0 |
| Regina Hall | Board Member Trustee or director | 2 | $0 | $0 |
| Jeff Seaman | Board Member Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 220 MONTGOMERY ST STE 484, SAN FRANCISCO, CA 94104-3400
- Principal officer (990 for 2025)
- Joanne Gold, 220 Montgomery St Ste 484, San Francisco, CA 94104
- Signed the 990
- Luke Evnin PhD, Chairman
- Phone
- (415) 834-9444
- Website
- www.srfcure.org
- Return prepared by
- Crosby & Kaneda CPAs LLP
California records
California keeps its own records of charities and corporations. Search them by EIN 68-0087234 or by the name SCLERODERMA RESEARCH FOUNDATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at new treatments and, ultimately, a cure for scleroderma.
Program accomplishments
- CONQUEST is a global, perpetual, clinical trial platform developed by the SRF in coordination with partner biopharmaceutical companies to accelerate the clinical development of agents for scleroderma. CONQUEST is designed to rapidly advance promising treatments for scleroderma and to identify those agents that should progress from phase 2b to phase 3 clinical trials. CONQUEST will make an enduring contribution to the scleroderma community by creating an ecosystem designed to enable rapid and efficient development of novel drugs for scleroderma patients.Expenses $4,446,116
- The mission of the Scleroderma Research Foundation (SRF) is to find, fund, and facilitate the most promising, highest-quality research to cure scleroderma. We recruit the best and the brightest researchers to understand the causes, discover treatments, and ultimately eradicate this disease . At the SRF, research is at the center of all we do. Our Research Program is governed by the Board of Directors and supported by a volunteer Scientific Advisory Board comprised of some of the world's most highly regarded scientists who are leaders in their field of expertise. The Board of Directors and Scientific Advisors meet annually with researchers and clinicians from laboratories across the nation to select and fund the most promising scleroderma studies aimed at developing improved therapies to help patients live longer, fuller lives - and, ultimately, to find a cure for scleroderma.Expenses $4,314,557 · grants $3,733,185 · revenue $5,907,254
- SRF Education & Awareness Program: Many patients hear the word scleroderma for the first time when they are diagnosed. We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with this disease, the medical community, and the general public with the most up-to-date, trusted and relevant news and information about complications, treatments, and related research through our website, webinars, annual patient forum, and monthly eNewsletter. And we deliver stories of impact that connect and inspire patients, as well as address issues related to diversity, equity, and inclusion that patients may encounter as they navigate diagnosis, treatment, and living with the disease.Expenses $639,412
- The SRF Research Program: Led by a Scientific Advisory Board comprised of some of the most highly regarded scientists in the nation, the SRFs research program actively seeks out and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as, experts in cutting-edge technologies to join the scleroderma research community. With an intense focus on identifying projects and investigators likely to move scleroderma research forward, the SRF funds a diverse portfolio of projects led by top-tier investigators.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 68-0087234
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1987
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H46Z)
- Assets (IRS master file)
- $42,239,970
- Income (IRS master file)
- $13,278,097
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $13,131,089 | $10,325,525 | $42,239,970 | XML |
| 990 | December 2024 | $12,173,161 | $9,622,521 | $32,999,784 | XML |
| 990 | December 2023 | $8,418,038 | $6,487,599 | $18,654,748 | XML |
| 990 | December 2022 | $5,892,738 | $4,658,602 | $11,143,637 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | April 2019 | – | – | – | IRS |
| 990 | April 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 68-0087234).
Questions about SCLERODERMA RESEARCH FOUNDATION
- What is the EIN of SCLERODERMA RESEARCH FOUNDATION?
- The employer identification number (EIN) of SCLERODERMA RESEARCH FOUNDATION is 68-0087234.
- Is SCLERODERMA RESEARCH FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1987.
- Are donations to SCLERODERMA RESEARCH FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SCLERODERMA RESEARCH FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SCLERODERMA RESEARCH FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SCLERODERMA RESEARCH FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of SCLERODERMA RESEARCH FOUNDATION?
- The 990 for the year ended December 31, 2025 names Joanne Gold.
- Who are the officers and directors of SCLERODERMA RESEARCH FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 18 people; 6 received compensation from the organization, the highest $526,440 (Gregory Gordon, Chief Medical Officer).
- How much revenue does SCLERODERMA RESEARCH FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $13,131,089, expenses of $10,325,525 and total assets of $42,239,970 at year end.
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