Nonprofit · EIN 65-0427215
ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC
Tax-exempt · COCONUT CREEK, FL 33073
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| May 31, 2025 | 990 | $1,808,873 | $2,217,433 | -$408,560 | $3,075,666 | $2,284,945 | $790,721 |
| May 31, 2024 | 990 | $2,502,362 | $1,895,973 | $606,389 | $2,802,981 | $1,603,700 | $1,199,281 |
| May 31, 2023 | 990 | $1,567,615 | $1,481,299 | $86,316 | $2,125,334 | $1,532,442 | $592,892 |
Financial details: 990 for the year ended May 31, 2025
Revenue
- Contributions, gifts and grants
- $1,700,157
- Program service revenue
- $42,657
- Investment income
- $29,615
- Net income from fundraising events
- $36,444
- Other revenue
- $36,444
Expenses
- Grants and similar amounts paid
- $1,305,119
- Compensation of officers, directors and key employees
- $232,754
- Other salaries and wages
- $219,953
- Salaries, compensation and benefits (total)
- $530,016
- Professional fundraising fees
- $0
- Legal fees
- $13,999
- Accounting fees
- $29,544
- Occupancy
- $45,184
- Travel
- $45,500
- Program services (functional)
- $1,961,306
- Management and general (functional)
- $90,792
- Fundraising (functional)
- $165,335
Balance sheet and other
- Total assets, start of year
- $2,802,981
- Total assets, end of year
- $3,075,666
- Total liabilities, end of year
- $2,284,945
- Net assets, end of year
- $790,721
- Net assets without donor restrictions
- $790,721
- Gross receipts
- $2,039,246
- Employees
- 4
- Volunteers
- 1,000
- Year formed
- 1993
- State of legal domicile
- FL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended May 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Jennifer Thornton | Executive Director/Director Trustee or director | 50 | $220,950 | $20,805 |
| Bradley A Margus | President Trustee or director, Officer | 20 | $0 | $0 |
| Amy Madison | Vice President Trustee or director, Officer | 1 | $0 | $0 |
| Gregory Jehlik | Secretary Trustee or director, Officer | 1 | $0 | $0 |
| Timothy Rahall | Treasurer Trustee or director, Officer | 3 | $0 | $0 |
| John Feeley | Director Trustee or director | 1 | $0 | $0 |
| Elizabeth Hughes | Director Trustee or director | 2 | $0 | $0 |
| Robert Middlebrook | Director Trustee or director | 1 | $0 | $0 |
| David Veldink | Director Trustee or director | 1 | $0 | $0 |
| Douglas Weckstein | Director Trustee or director | 1 | $0 | $0 |
990 for the year ended May 31, 2024: 10 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Jennifer Thornton | Executive Director/Director Trustee or director | 50 | $182,079 | $20,889 |
| Bradley A Margus | President Trustee or director, Officer | 20 | $0 | $0 |
| Amy Madison | Vice President Trustee or director, Officer | 1 | $0 | $0 |
| Gregory Jehlik | Secretary Trustee or director, Officer | 1 | $0 | $0 |
| Timothy Rahall | Treasurer Trustee or director, Officer | 3 | $0 | $0 |
| John Feeley | Director Trustee or director | 1 | $0 | $0 |
| Elizabeth Hughes | Director Trustee or director | 2 | $0 | $0 |
| Robert Middlebrook | Director Trustee or director | 1 | $0 | $0 |
| David Veldink | Director Trustee or director | 1 | $0 | $0 |
| Douglas Weckstein | Director Trustee or director | 1 | $0 | $0 |
990 for the year ended May 31, 2023: 10 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Jennifer Thornton | Executive Director/Director Trustee or director | 50 | $180,762 | $14,202 |
| Bradley A Margus | President Trustee or director, Officer | 20 | $0 | $0 |
| Amy Madison | Vice President Trustee or director, Officer | 1 | $0 | $0 |
| Gregory Jehlik | Secretary Trustee or director, Officer | 1 | $0 | $0 |
| Timothy Rahall | Treasurer Trustee or director, Officer | 3 | $0 | $0 |
| John Feeley | Director Trustee or director | 1 | $0 | $0 |
| Elizabeth Hughes | Director Trustee or director | 2 | $0 | $0 |
| Robert Middlebrook | Director Trustee or director | 1 | $0 | $0 |
| David Veldink | Director Trustee or director | 1 | $0 | $0 |
| Douglas Weckstein | Director Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 6810 N STATE ROAD 7 125, COCONUT CREEK, FL 33073-4304
- In care of
- % BRADLEY A MARGUS
- Principal officer (990 for 2024)
- Bradley A Margus, 6810 N State Road 7 125, Coconut Creek, FL 33073
- Signed the 990
- Bradley A Margus, President
- Phone
- (954) 481-6611
- Website
- www.atcp.org
- Return prepared by
- Batts Morrison Wales & Lee PA
Mission
Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease, and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children's Project partners with academic and industry investigators worldwide - organizing and supporting innovative research, conferences, clinical team, data platforms, and biomarker development - to optimize disease management strategies, develop new treatments, and find a cure.
Program accomplishments
- Research and Clinical GrantsThe A-T Children's Project provides competitive awards for scientific and clinical research grants related to finding life-improving therapies and a cure for ataxia-telangiectasia. Scientific excellence and relevance to A-T are the paramount criteria used to select research projects. Grant award decisions are made through a careful and detailed, two-tiered peer-review selection process. Consistent with the urgency felt by all families impacted by this disease, the A-T Children's Project's current focus is on funding innovative research strategies that look at A-T in new ways and that include a clear 'yes or 'no' answer to the hypothesis rather than merely defining a mechanism. Highest priority is given to projects that, while drawing on basic discoveries, include creative strategies for suggesting and evaluating specific disease-modifying and symptomatic interventions.Expenses $1,305,119 · grants $1,305,119
- Conferences and Research SupportThe A-T Children's Project holds scientific meetings and workshops regularly as a way to encourage more cooperation between A-T research teams, to reduce redundancy in their work, and to bring scientists from different fields together to generate new research strategies. The agendas always include presentations of unpublished data and open discussions and debate. The Organization also sponsors scientific conferences whose mission falls within this realm. The Organization has found that these scientific meetings, properly orchestrated generate new research strategies, help to form new collaborations between previously competing labs, and encourage sharing of limited patient tissue samples and animal models of A-T between labs. They consistently help to accelerate research progress. Additionally, staff of the A-T Children's Project coordinate the Global A-T Family Data Platform, a patient-driven effort overseen by A-T families and experts worldwide through which health information, genetic, and potentially other types of data about people with A-T can be shared with researchers, enabling them to access important patient data from around the world quickly, securely, and efficiently, hopefully leading to new discoveries.Expenses $375,320 · revenue $42,657
- Awareness and EducationThe A-T Children's Project maintains a database of people interested in receiving news and other information from the A-T Children's Project including families, extended family members, friends, caregivers, therapists, doctors, donors, volunteers, nonprofit organizations, and others interested in learning about A-T and our progress. The Organization does not charge membership fees or other fees for educational and awareness materials. Additional awareness activities include: making sure event attendees know what A-T is and the importance of the work they are supporting; conducting outreach to assist with the timely and accurate diagnosis of A-T; creating materials to help explain A-T and the Organization's research progress; answering questions and providing materials to constituents and the general public about A-T; and, maintaining a website with up-to-date information about the disease and the Organization's research projects.Expenses $180,435
- Family SupportThe A-T Children's Project developed and maintains an A-T patient registry. In addition to helping families searching for the proper diagnosis, the Organization helps them by providing support, putting them in touch with other A-T families, and assisting them with scheduling evaluations at the A-T Clinical Center at Johns Hopkins. The families contact the Organization through email, phone, website, and social media platforms such as Facebook. Each newly diagnosed family gets an information package including the Caring for People with A-T handbook. The Organization typically corresponds and speaks with parents often to help them understand this rare disease and what it means for their families throughout their children's lives. A-T families and extended family members also receive information updating them on current A-T biomedical and clinical research happenings. The Organization also publishes and distributes their Caring for People with A-T handbook free of charge. This handbook gives specific medical information about A-T for families and caregivers. The Organization also plans and hosts Caregiver Weekends periodically to give parents and other caregivers opportunities to formally and informally build connections; speak openly about sensitive subjects related to A-T; and, learn directly from clinicians and researchers.Expenses $100,432
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in May, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | May 31, 2026 | October 15, 2026 | Not on file |
| 2024 | May 31, 2025 | October 15, 2025 | 990 on file |
| 2023 | May 31, 2024 | October 15, 2024 | 990 on file |
IRS record
- EIN
- 65-0427215
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2002
- Accounting year ends
- May
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Science and technology (U50)
- Assets (IRS master file)
- $3,075,666
- Income (IRS master file)
- $2,039,246
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | May 2025 | $1,808,873 | $2,217,433 | $3,075,666 | XML |
| 990 | May 2024 | $2,502,362 | $1,895,973 | $2,802,981 | XML |
| 990 | May 2023 | $1,567,615 | $1,481,299 | $2,125,334 | XML |
| 990 | May 2022 | $1,739,187 | $1,713,346 | $2,011,038 | IRS |
| 990 | May 2021 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 65-0427215).
Questions about ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC
- What is the EIN of ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC?
- The employer identification number (EIN) of ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC is 65-0427215.
- Is ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2002.
- Are donations to ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC due?
- The return for tax year 2025 (the year ending May 31, 2026) is due October 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended May 2025.
- Who is the principal officer of ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC?
- The 990 for the year ended May 31, 2025 names Bradley A Margus.
- Who are the officers and directors of ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC?
- The 990 for the year ended May 31, 2025 lists 10 people; 1 received compensation from the organization, the highest $220,950 (Jennifer Thornton, Executive Director/Director).
- How much revenue does ATAXIA TELANGIECTASIA CHILDRENS PROJECT INC have?
- On its 990 for the year ended May 31, 2025 it reported revenue of $1,808,873, expenses of $2,217,433 and total assets of $3,075,666 at year end.
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