Nonprofit · EIN 61-1409048
DOWN SYNDROME NETWORK INC
Tax-exempt · TEMPE, AZ 85283
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $307,521 | $291,120 | $16,401 | $240,893 | $115,832 | $125,061 |
| December 31, 2024 | 990 | $234,079 | $269,590 | -$35,511 | $230,363 | $121,703 | $108,660 |
| December 31, 2023 | 990 | $263,264 | $254,492 | $8,772 | $268,489 | $124,315 | $144,174 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $327,801
- of which government grants
- $53,053
- Program service revenue
- $9,990
- Investment income
- $2,679
- Net income from fundraising events
- -$34,415
- Other revenue
- -$32,949
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $78,000
- Other salaries and wages
- $60,587
- Salaries, compensation and benefits (total)
- $150,777
- Professional fundraising fees
- $0
- Accounting fees
- $13,600
- Occupancy
- $20,853
- Travel
- $21,347
- Depreciation
- $2,751
- Program services (functional)
- $221,355
- Management and general (functional)
- $50,619
- Fundraising (functional)
- $19,146
Balance sheet and other
- Total assets, start of year
- $230,363
- Total assets, end of year
- $240,893
- Total liabilities, end of year
- $115,832
- Net assets, end of year
- $125,061
- Land, buildings and equipment
- $6,418
- Net assets without donor restrictions
- $125,061
- Gross receipts
- $369,632
- Employees
- 7
- Volunteers
- 150
- Year formed
- 2002
- State of legal domicile
- AZ
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JENNIFER O'CONNELL | Executive Dir. Officer | 40 | $78,000 |
| CASSIE LAUGHREY PETRE | Board Chair Trustee or director, Officer | 2 | $0 |
| ANDREA O'BRIEN | Vice Chair Trustee or director, Officer | 2 | $0 |
| DR DANNAH RAZ | Secretary Trustee or director, Officer | 2 | $0 |
| GONZALO CASTANEDA | Director Trustee or director | 2 | $0 |
| AMANDA RIVAS | Director Trustee or director | 2 | $0 |
| EMILY TAYLOR | Director Trustee or director | 2 | $0 |
| REBECA LOPEZ | Treasurer Trustee or director, Officer | 2 | $0 |
990 for the year ended December 31, 2024: 13 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JENNIFER O'CONNELL | CEO Officer | 40 | $78,000 |
| MADDISON BUCK | Director Trustee or director | 2 | $0 |
| CASSIE LAUGHREY PETRE | President Trustee or director, Officer | 2 | $0 |
| ANDREA FAGGIONATO | Director Trustee or director | 2 | $0 |
| ANDREA O'BRIEN | Vice President Trustee or director, Officer | 2 | $0 |
| DR DANNAH RAZ | Secretary Trustee or director, Officer | 2 | $0 |
| GONZALO CASTANEDA | Director Trustee or director | 2 | $0 |
| JOHN ESCOBAR | Director Trustee or director | 2 | $0 |
| AMANDA RIVAS | Director Trustee or director | 2 | $0 |
| CHRIS DIETZ | Director Trustee or director | 2 | $0 |
| EMILY TAYLOR | Director Trustee or director | 2 | $0 |
| BETSY LYNCH | Director Trustee or director | 2 | $0 |
| REBECA LOPEZ | Treasurer Trustee or director, Officer | 2 | $0 |
990 for the year ended December 31, 2023: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jennifer O'Connell | Executive Director Officer | 40 | $77,200 |
| Cassie Laughrey Petre | Chair Trustee or director, Officer | 2 | $0 |
| Chandra Williamson | Treasurer Trustee or director, Officer | 2 | $0 |
| Andrea O'Brien | Vice Chair Trustee or director, Officer | 2 | $0 |
| Dr Dannah Raz | Secretary Trustee or director, Officer | 2 | $0 |
| Gonzalo Castaneda | Director Trustee or director | 2 | $0 |
| John Escobar | Director Trustee or director | 2 | $0 |
| Chris Dietz | Director Trustee or director | 2 | $0 |
| Amanda Rivas | Director Trustee or director | 2 | $0 |
| Rebeca Lopez | Director Trustee or director | 2 | $0 |
| Emily Taylor | Director Trustee or director | 2 | $0 |
| Betsy Lynch | Director Trustee or director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 1445 E GUADALUPE RD STE 103, TEMPE, AZ 85283-3953
- Principal officer (990 for 2025)
- CASSIE LAUGHREY PETRE, 1445 E GUADALUPE RD 103, TEMPE, AZ 85283
- Signed the 990
- CASSIE LAUGHREY PETRE, Board Chair
- Phone
- (480) 759-9150
- Website
- WWW.DSNETWORKAZ.ORG
- Return prepared by
- HAYNIE & COMPANY
Mission
1) Promote lifelong health and improve quality of life for people with DS; 2) Help caregivers navigate the whole journey of raising and caring for a person with Down syndrome from before birth throughout the aging process; 3) help grow awareness of DS in the Arizona communities, educate professionals and advocate for people with DS.
Program accomplishments
- DSNetwork offers an array of programs to serve all age groups from newborns to adults in the DS community. We support new parents with the unexpected news from pre birth and at the time of diagnosis. Club Xtra program allows young children playtime and parents time to share their experiences, and support each other. Tweens and Teens UP offer community based opportunities and activities to socialize andmeet friends in a supportive atmosphere. Xcell program activities are specifically tailored to helping individuals and families navigate each stage of adulthood - from high school transition to older age. Our wellness programs includes adaptive tennis, swim, boxing, gardening and other fitness opportunities for children and adults with DS and provides a unique environment. In addition to the programs mentioned above, we also offer a webinar education series, an annual fundraising awareness walk in conjunction with community seasonal celebrations.Expenses $221,355 · revenue $9,990
- Arizona is home to an estimated 10,000 individuals with Down syndrome. In 2025, DSNetwork provided education, outreach, and direct support services to this community and their families statewide, reaching over 2,500 individuals through direct programming and many more through community awareness, professional training, and public engagement efforts. Families served reported increased confidence in navigating resources across the life span, connecting and networking with others, and advocating for their loved ones. Community engagement included coordinating statewide World Down Syndrome Day activities that engaged over 550 participants, participating in the ASU Homecoming Parade and Down Syndrome Walk, which reached nearly 1,000 community members, and signature seasonal celebrations, including the Winter Wonderland, serving over 450 participants. Direct services included unique adaptive fitness, educational, and therapeutic programming for over 250 individuals with Down syndrome. Programs such as Buddy Up Tennis, Down to Box, Down to Earth Garden, Adaptive Dance, Pickleball, 1:1 Swim and water safety, and community outings. Social programming, such as the spring prom and fall costume ball, engaged approximately 80 teens and adults; the Spring Family Picnic drew more than 150 attendees; and the cherished winter Wonderland holiday party served 450 participants. The Family Enrichment Center supported over 125 families, including 28 new parents receiving guidance following a Down syndrome diagnosis. Professional education included training over 50 medical professionals and educators. In addition to providing caregiver-focused learning opportunities, webinars, and parent meet-ups to more than 150 individuals. The annual community calendar project promoted inclusion and visibility for over 90 participants.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 61-1409048
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2002
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G25)
- Assets (IRS master file)
- $240,893
- Income (IRS master file)
- $369,632
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $307,521 | $291,120 | $240,893 | IRS |
| 990 | December 2024 | $234,079 | $269,590 | $230,363 | IRS |
| 990 | December 2023 | $263,264 | $254,492 | $268,489 | XML |
| 990 | December 2022 | $282,702 | $318,622 | $259,414 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 61-1409048).
Questions about DOWN SYNDROME NETWORK INC
- What is the EIN of DOWN SYNDROME NETWORK INC?
- The employer identification number (EIN) of DOWN SYNDROME NETWORK INC is 61-1409048.
- Is DOWN SYNDROME NETWORK INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2002.
- Are donations to DOWN SYNDROME NETWORK INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does DOWN SYNDROME NETWORK INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of DOWN SYNDROME NETWORK INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did DOWN SYNDROME NETWORK INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of DOWN SYNDROME NETWORK INC?
- The 990 for the year ended December 31, 2025 names CASSIE LAUGHREY PETRE.
- Who are the officers and directors of DOWN SYNDROME NETWORK INC?
- The 990 for the year ended December 31, 2025 lists 8 people; 1 received compensation from the organization, the highest $78,000 (JENNIFER O'CONNELL, Executive Dir.).
- How much revenue does DOWN SYNDROME NETWORK INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $307,521, expenses of $291,120 and total assets of $240,893 at year end.
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All nonprofits in TEMPE · Arizona · Voluntary health associations and medical disciplines