Nonprofit · EIN 59-2918100
INTERNATIONAL F O P ASSOCIATION INC
Tax-exempt · NORTH KANSAS CITY, MO 64116
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $2,421,587 | $3,105,043 | -$683,456 | $3,492,725 | $630,798 | $2,861,927 |
| December 31, 2023 | 990 | $1,810,030 | $3,318,084 | -$1,508,054 | $4,172,035 | $633,260 | $3,538,775 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $2,085,169
- Program service revenue
- $51,668
- Investment income
- $274,851
- Net gain from sales of assets
- $184,823
- Net income from fundraising events
- -$91,819
- Other revenue
- $9,899
Expenses
- Grants and similar amounts paid
- $596,971
- Compensation of officers, directors and key employees
- $212,728
- Other salaries and wages
- $657,392
- Salaries, compensation and benefits (total)
- $959,308
- Professional fundraising fees
- $0
- Legal fees
- $7,274
- Accounting fees
- $75,915
- Occupancy
- $8,763
- Travel
- $138,018
- Depreciation
- $51,329
- Program services (functional)
- $2,485,859
- Management and general (functional)
- $362,839
- Fundraising (functional)
- $256,345
Balance sheet and other
- Total assets, start of year
- $4,172,035
- Total assets, end of year
- $3,492,725
- Total liabilities, end of year
- $630,798
- Net assets, end of year
- $2,861,927
- Publicly traded securities
- $2,559,480
- Net assets without donor restrictions
- $1,767,011
- Net assets with donor restrictions
- $1,094,916
- Gross receipts
- $3,279,173
- Employees
- 0
- Volunteers
- 150
- Year formed
- 1988
- State of legal domicile
- MO
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MICHELLE DAVIS | EXECUTIVE DIRECTOR Officer | 40 | $203,218 | $9,510 |
| SAMANTHA KILE | REAL WORLD EVIDENCE MANAGE Highest-paid employee | 40 | $134,260 | $381 |
| REBECCA WALLACE | CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| NADINE GROSSMAN | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| EMMA ALBEE | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| JAMAL PORTER | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| HELEN BEDFORD-GAY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KYLE BRINKMAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CHRISSY FLEXER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SUE KAHN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MOLLY RHODES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MANUEL ROBERT | DIRECTOR Trustee or director | 1 | $0 | $0 |
| HOLLIE SCHMIDT | EXECUTIVE COMMITTE MEMBER-AT-LARGE Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 13 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MICHELLE DAVIS | EXECUTIVE DIRECTOR Officer | 40 | $198,735 | $9,359 |
| DANIELLE KERKOVICH | RESEARCH DIRECTOR Highest-paid employee | 40 | $154,341 | $9,359 |
| SAMANTHA KILE | REAL WORLD EVIDENCE MANAGER Highest-paid employee | 40 | $123,997 | $357 |
| MEGAN OLSEN | CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| REBECCA WALLACE | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| EMMA ALBEE | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| GARY MCGUIRE | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| HELEN BEDFORD-GAY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KYLE BRINKMAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CHRISSY FLEXER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| NADINE GROSSMAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KERRY HUESTON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| HOLLIE SCHMIDT | DIRECTOR Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 1520 CLAY ST STE H2, NORTH KANSAS CITY, MO 64116-4054
- Principal officer (990 for 2024)
- MICHELLE DAVIS, 1520 CLAY ST STE H2, NORTH KANSAS CITY, MO 64116
- Signed the 990
- MICHELLE DAVIS, EXECUTIVE DIRECTOR
- Phone
- (407) 365-4194
- Website
- WWW.IFOPA.ORG
- Return prepared by
- RUBINBROWN LLP
Mission
TO SUPPORT AND CONNECT THE GLOBAL FOP COMMUNITY WHILE DRIVING RESEARCH TOWARD TREATMENTS AND A CURE.
Program accomplishments
- SEE SCHEDULE OMEDICAL RESEARCH: WITH A VISION TO CURE FOP, THE MAJORITY OF THE IFOPA'S BUDGET IS SPENT ON RESEARCH PROGRAMS AND SERVICES. THE GREATEST INVESTMENT IS THE FOP REGISTRY WHICH IS THE ONLY REGISTRY FOR FOP PATIENTS IN THE WORLD AND A CRITICAL TOOL FOR SCIENTIFIC RESEARCH. THE IFOPA ALSO DEDICATES A SIGNIFICANT PORTION OF FUNDING TO RESEARCH GRANTS, INCLUDING GRANTS TO THE UNIVERSITY OF PENNSYLVANIA'S CENTER FOR RESEARCH IN FOP AND RELATED DISORDERS. ADDITIONALLY, THE IFOPA FUNDS GRANTS THROUGH THE IFOPA'S ACT (ACCELERATING CURES AND TREATMENTS) FOR FOP GRANT PROGRAM. THE IFOPA ALSO SUPPORTS THE FOP BIOBANK AND THE STOPFOP CLINICAL TRIAL AT THE UNIVERSITY OF AMSTERDAM.Expenses $1,669,094 · grants $596,971 · revenue $153,386
- SEE SCHEDULE OEDUCATION AND SUPPORT PROGRAMS: SUPPORT, BOTH FUNCTIONAL AND EMOTIONAL, IS IMPERATIVE TO THE HEALTH OF THOSE LIVING WITH FOP AS WELL AS THEIR FAMILIES. STARTING IN 2018, THE IFOPA BEGAN A MAJOR EXPANSION OF OUR PROGRAMS AND SERVICES FOR FOP FAMILIES. OUR ONE-ON-ONE SUPPORT OFTEN BEGINS WHEN FAMILIES ARE NEWLY DIAGNOSED, OR LOOKING FOR TOOLS, TIPS AND HOME MODIFICATIONS TO HELP THEM LIVE MORE INDEPENDENTLY THROUGH OUR ABILITY TOOLBOX PROGRAM. THE IFOPA HAS DEVELOPED TWO PROGRAMS - RESILIENT LIVING AND THE ADVOCACY SERIES - TO SUPPORT THE MENTAL HEALTH AND PROBLEM-SOLVING SKILLS OF FOP FAMILIES. OUR SIGNATURE EVENT FOR FAMILIES IS THE FAMILY GATHERING WHERE 25-30 FAMILIES FROM ACROSS THE UNITED STATES COME TO LEARN, CONNECT AND INTERACT WITH FOP EXPERTS. THROUGH THE IFOPA'S INTERNATIONAL PRESIDENTS' COUNCIL WE WORK TO COORDINATE PROGRAMS AND SERVICES IN COUNTRIES AROUND THE WORLD. THE IFOPA ALSO STARTED A VARIETY OF ONLINE SUPPORT GROUPS FOR VARIOUS AUDIENCES INCLUDING ADULTS WITH FOP, CAREGIVERS AND BEREAVED FAMILIES, AND OFFERS PARTICIPANTS THE OPPORTUNITY TO STAY CONNECTED AND SUPPORT ONE ANOTHER. FINALLY, EDUCATING PATIENTS AND FAMILIES ABOUT CLINICAL STUDIES AND TRIALS IS CORE TO OUR MISSION TO ADVANCE THE DEVELOPMENT OF THE FIRST-EVER TREATMENTS FOR FOP.Expenses $701,063
- SEE SCHEDULE OPUBLIC AWARENESS: FOP IS AN ULTRA-RARE DISEASE. VERY FEW PEOPLE HAVE HEARD OF FOP, LET ALONE KNOW ALL THAT IT ENTAILS - INCLUDING HEALTH CARE PROFESSIONALS. INCREASING AWARENESS AMONG HEALTH CARE PROFESSIONALS IS CRITICAL TO ENSURE THAT PATIENTS ARE DIAGNOSED EARLY, AVOID SEVERE COMPLICATIONS CAUSED BY MISDIAGNOSIS, GET ON THE PATH TO THE BEST MEDICAL CARE AND HAVE AN OPPORTUNITY TO PARTICIPATE IN CLINICAL STUDIES AND TRIALS. THROUGH OUR WEBSITE WHERE WE LIST CONTINUING MEDICAL EDUCATION PROGRAMS ON FOP FOR HEALTH CARE PROFESSIONALS, THE FOP FAMILY GATHERING AND VARIOUS PARTNERSHIPS, THE IFOPA WORKS TO INCREASE AWARENESS AND EDUCATION OF FOP AMONG HEALTH CARE PROFESSIONALS. SINCE 2021, WE HAVE PARTNERED WITH MEMBERS OF THE INTERNATIONAL PRESIDENTS' COUNCIL TO LAUNCH A GLOBAL FOP AWARENESS DAY CAMPAIGN WHICH INCLUDED SOCIAL MEDIA POSTS AND VIDEOS SHARED AROUND THE WORLD DURING THE MONTH OF APRIL.Expenses $115,702
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 59-2918100
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1989
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $3,492,725
- Income (IRS master file)
- $3,279,173
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $2,421,587 | $3,105,043 | $3,492,725 | XML |
| 990 | December 2023 | $1,810,030 | $3,318,084 | $4,172,035 | XML |
| 990 | December 2022 | $3,050,181 | $3,502,663 | $5,076,827 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 59-2918100).
Questions about INTERNATIONAL F O P ASSOCIATION INC
- What is the EIN of INTERNATIONAL F O P ASSOCIATION INC?
- The employer identification number (EIN) of INTERNATIONAL F O P ASSOCIATION INC is 59-2918100.
- Is INTERNATIONAL F O P ASSOCIATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1989.
- Are donations to INTERNATIONAL F O P ASSOCIATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does INTERNATIONAL F O P ASSOCIATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of INTERNATIONAL F O P ASSOCIATION INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did INTERNATIONAL F O P ASSOCIATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of INTERNATIONAL F O P ASSOCIATION INC?
- The 990 for the year ended December 31, 2024 names MICHELLE DAVIS.
- Who are the officers and directors of INTERNATIONAL F O P ASSOCIATION INC?
- The 990 for the year ended December 31, 2024 lists 13 people; 2 received compensation from the organization, the highest $203,218 (MICHELLE DAVIS, EXECUTIVE DIRECTOR).
- How much revenue does INTERNATIONAL F O P ASSOCIATION INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $2,421,587, expenses of $3,105,043 and total assets of $3,492,725 at year end.
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