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Nonprofit · EIN 58-1966822

PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC

Tax-exempt · WINSTON SALEM, NC 27103

Financials

$6M$6.2M2021$5.1M$6.6M2022$5M$6.7M2023$5.8M$6.1M2024
Revenue Expenses · by fiscal year end
Financials of PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
September 30, 2025990$5,848,026$6,133,132-$285,106$2,864,550$1,003,475$1,861,075
September 30, 2024990$5,039,446$6,650,108-$1,610,662$3,337,274$1,191,093$2,146,181
September 30, 2023990$5,058,429$6,568,526-$1,510,097$5,390,187$1,633,344$3,756,843
September 30, 2022990 (amended)$6,022,145$6,187,974-$165,829$5,993,060$727,999$5,265,061
Financial details: 990 for the year ended September 30, 2025

Revenue

Contributions, gifts and grants
$5,771,143
Program service revenue
$0
Investment income
$76,883
Other revenue
$0

Expenses

Grants and similar amounts paid
$1,157,997
Compensation of officers, directors and key employees
$253,909
Other salaries and wages
$2,001,557
Salaries, compensation and benefits (total)
$2,683,942
Professional fundraising fees
$0
Accounting fees
$203,957
Occupancy
$18,298
Travel
$163,134
Depreciation
$72,563
Program services (functional)
$4,617,296
Management and general (functional)
$704,905
Fundraising (functional)
$810,931

Balance sheet and other

Total assets, start of year
$3,337,274
Total assets, end of year
$2,864,550
Total liabilities, end of year
$1,003,475
Net assets, end of year
$1,861,075
Land, buildings and equipment
$78,609
Publicly traded securities
$1,084,701
Net assets without donor restrictions
$386,699
Net assets with donor restrictions
$1,474,376
Gross receipts
$5,848,026
Employees
28
Volunteers
475
Year formed
1992
State of legal domicile
DE

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended September 30, 2025, highest compensation first.

NameTitleHours / weekCompensationOther / benefits
Courtney DaviesCEO/President Through Sept 2024
Officer, Former
50$319,545$21,704
Alyson LevineChief Development Officer
Key employee
40$200,924$0
Geoff StillCFO/COO
Officer
50$178,746$18,565
Ian M JoyceChief Marketing/Mission Officer Through Sept 2024
Highest-paid employee
40$129,151$13,522
Michael HenryDirector of Advocacy
Highest-paid employee
40$109,619$4,387
Tammy BatesSenior Director of Operations
Highest-paid employee
40$108,258$4,990
Kimberly Roy-CanningDirector of Donor Relations Through Dec 2024
Highest-paid employee
40$101,705$9,959
Larry LittleSecretary
Trustee or director, Officer
2$0$0
Chuck BodermanVice Chair
Trustee or director, Officer
2$0$0
Peter KrauseTreasurer
Trustee or director, Officer
1$0$0
Jeffrey A GelfandChair
Trustee or director, Officer
20$0$0
Karl MuellerDirector
Trustee or director
1$0$0
Ken MurphyDirector
Trustee or director
1$0$0
John RagnoniDirector
Trustee or director
2$0$0
Anne SuttonDirector
Trustee or director
1$0$0
7 more people on this return
NameTitleHours / weekCompensation
Kristin YoungDirector
Trustee or director
1$0
Bryan WaddellDirector
Trustee or director
2$0
Andrew JanowerDirector
Trustee or director
1$0
Katie BernardDirector
Trustee or director
1$0
Sanjay GuptaDirector Through Nov 2024
Trustee or director
1$0
Sam BlackmanDirector Effective Jan 2025
Trustee or director
1$0
Tyler HenritzeDirector Effective 10/15/2024
Trustee or director
1$0
990 for the year ended September 30, 2024: 20 people
NameTitleHours / weekCompensationOther / benefits
Courtney DaviesCEO/President through 9/25/24
Officer
50$306,000$33,145
Geoff StillCFO/COO
Officer
50$176,304$21,761
Ian M JoyceChief Marketing Mission Experience Officer
Key employee
40$175,600$21,729
Robert McNamaraVice President of Development
Key employee
40$104,150$23,821
Kimberly Roy-CanningDirector of Donor Relations
Key employee
40$100,902$15,703
Michael HenryDirector of Advocacy
Key employee
40$105,595$6,646
Tammy BatesSenior Director of Operations
Key employee
40$104,081$7,067
Jeff GelfandChair
Trustee or director, Officer
1$0$0
Larry LittleSecretary
Trustee or director, Officer
1$0$0
Chuck BodermanVice Chair
Trustee or director, Officer
1$0$0
Andrew JanowerDirector
Trustee or director
1$0$0
Karl MuellerDirector
Trustee or director
1$0$0
Ken MurphyDirector
Trustee or director
1$0$0
John RagnoniDirector
Trustee or director
1$0$0
Anne SuttonDirector
Trustee or director
1$0$0
Kristin YoungDirector
Trustee or director
1$0$0
Bryan WaddellDirector
Trustee or director
1$0$0
Peter KrauseTreasurer
Trustee or director
1$0$0
Katie BernardDirector Effective June 2024
Trustee or director
1$0$0
Sanjay GuptaDirector Effective April 2024
Trustee or director
1$0$0
990 for the year ended September 30, 2023: 14 people
NameTitleHours / weekCompensationOther / benefits
Courtney DaviesCEO/President
Officer
50$281,109$18,985
Geoff StillCFO/COO
Officer
50$161,839$15,700
Ian M JoyceChief Marketing Mission Experience Officer
Key employee
40$143,265$14,617
AJ JanowerChair
Trustee or director, Officer
1$0$0
Anne SuttonSecretary
Trustee or director, Officer
1$0$0
Kristin YoungVice Chair
Trustee or director, Officer
1$0$0
Jeff GelfandTreasurer
Trustee or director, Officer
1$0$0
Karl MuellerDirector
Trustee or director
1$0$0
Ken MurphyDirector
Trustee or director
1$0$0
John RagnoniDirector
Trustee or director
1$0$0
Larry LittleDirector
Trustee or director
1$0$0
Chuck BodermanDirector
Trustee or director
1$0$0
Bryan WaddellDirector
Trustee or director
1$0$0
Peter KrauseDirector
Trustee or director
1$0$0
990 for the year ended September 30, 2022: 14 people
NameTitleHours / weekCompensationOther / benefits
COURTNEY DAVIESPRESIDENT/CEO
Officer
50$272,939$13,518
GEOFF STILLCFO
Officer
50$146,382$17,765
ANDREW AJ JANOWERCHAIR
Trustee or director, Officer
1$0$0
KRISTIN YOUNGVICE CHAIR
Trustee or director, Officer
1$0$0
ANNE SUTTONSECRETARY
Trustee or director, Officer
1$0$0
JEFF GELFANDTREASURER
Trustee or director, Officer
1$0$0
CHUCK BODERMANDIRECTOR
Trustee or director
1$0$0
CHASE JONESDIRECTOR
Trustee or director
1$0$0
LARRY LITTLEDIRECTOR
Trustee or director
1$0$0
KARL MUELLERDIRECTOR
Trustee or director
1$0$0
KEN MURPHYDIRECTOR
Trustee or director
1$0$0
JOHN RAGNONIDIRECTOR
Trustee or director
1$0$0
SUSIE ROSSICKDIRECTOR
Trustee or director
1$0$0
JILL SCOGNAMIGLIODIRECTOR
Trustee or director
1$0$0

Address and contacts

Address (IRS master file)
380 KNOLLWOOD ST STE H 125, WINSTON SALEM, NC 27103-1884
Principal officer (990 for 2024)
Jeffrey A Gelfand, 380 Knollwood St STE H 125, Winston Salem, NC 27103
Signed the 990
Jeffrey A Gelfand, Board Chair
Phone
(800) 253-6530
Return prepared by
Outfitters4 Inc

Mission

Vision A world without childhood brain tumors. Mission Care. Cure. Thrive.

990 for the year ended September 30, 2025

Program accomplishments

  • The Pediatric Brain Tumor Foundation funded research by leading experts across many institutions including Joelle Straehla at Seattle Childrens Hospital, Drs. Paul Northcott and Ching Lau at the Brain Tumor Funders Collective, Dr. David H. Gutmann and team at Washington University School of Medicine, Drs. Bandopadhayay and Beroukhim as well as Dr. Ligon at Dana Farber Cancer Institute, and Drs. Castro and Lowestein as well as Dr. Koschmann at the University of Michigan. PBTF also funded a Pediatric Statistical report led by Dr. Quinn Ostrom Risch Brain Tumor Center at Duke University at the Central Brain Tumor Repository of the United States. The Foundation played a critical role in establishing a Pediatric Neurology Oncology Journal led by Dr. Sabine Mueller. PBTF served 3,694 families through critical guidance, assistance with accessing care, and financial aid. PBTF also made policy impacts at the state and federal level through a network of 2,251 advocates. This work was made possible due in part to the addition of 6,718 new donors, a 13 increase in donors from last year.
    Expenses $4,617,296 · grants $1,157,997

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025September 30, 2026February 16, 2027Not due yet
2024September 30, 2025February 17, 2026990 on file
2023September 30, 2024February 18, 2025990 on file

IRS record

EIN
58-1966822
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1992
Accounting year ends
September
Files
Form 990 or 990-EZ
Assets (IRS master file)
$2,864,550
Income (IRS master file)
$5,848,026

Filing history

FormYear endedRevenueExpensesAssetsReturn
990September 2025$5,848,026$6,133,132$2,864,550XML
990September 2024$5,039,446$6,650,108$3,337,274XML
990September 2023$5,058,429$6,568,526$5,390,187XML
990September 2022$6,022,145$6,187,974$5,993,060XML
990September 2021–––IRS
990December 2019–––IRS
990December 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 58-1966822).

Questions about PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC

What is the EIN of PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC?
The employer identification number (EIN) of PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC is 58-1966822.
Is PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1992.
Are donations to PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC due?
The return for tax year 2025 (the year ending September 30, 2026) is due February 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended September 2025.
Who is the principal officer of PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC?
The 990 for the year ended September 30, 2025 names Jeffrey A Gelfand.
Who are the officers and directors of PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC?
The 990 for the year ended September 30, 2025 lists 22 people; 7 received compensation from the organization, the highest $319,545 (Courtney Davies, CEO/President Through Sept 2024).
How much revenue does PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC have?
On its 990 for the year ended September 30, 2025 it reported revenue of $5,848,026, expenses of $6,133,132 and total assets of $2,864,550 at year end.

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