Nonprofit · EIN 56-1541529
DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE
Tax-exempt · CHARLOTTE, NC 28209
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $329,266 | $448,792 | -$119,526 | $263,485 | $5,301 | $258,184 |
| December 31, 2023 | 990 | $289,052 | $352,686 | -$63,634 | $363,998 | $0 | $363,998 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $228,079
- Program service revenue
- $57,504
- Investment income
- $9,613
- Net income from fundraising events
- $30,455
- Other revenue
- $34,070
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $106,269
- Other salaries and wages
- $51,137
- Salaries, compensation and benefits (total)
- $211,597
- Professional fundraising fees
- $0
- Occupancy
- $4,800
- Travel
- $7,073
- Program services (functional)
- $179,872
- Management and general (functional)
- $268,420
- Fundraising (functional)
- $500
Balance sheet and other
- Total assets, start of year
- $363,998
- Total assets, end of year
- $263,485
- Total liabilities, end of year
- $5,301
- Net assets, end of year
- $258,184
- Net assets without donor restrictions
- $266,319
- Net assets with donor restrictions
- -$8,135
- Gross receipts
- $388,172
- Employees
- 39
- Volunteers
- 150
- Year formed
- 1986
- State of legal domicile
- NC
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Roy Courtney | Executive Dir. Officer | 40 | $100,000 | $6,269 |
| Andrew Spafford | President Trustee or director, Officer | 5 | $0 | $0 |
| Melina Deleon | Vice President Trustee or director, Officer | 5 | $0 | $0 |
| Anna Emerich | Secretary Trustee or director, Officer | 5 | $0 | $0 |
| Omar Ritter | Director Trustee or director | 5 | $0 | $0 |
| Joseph Mulla | Director Trustee or director | 5 | $0 | $0 |
| Neil Middlemiss | Director Trustee or director | 5 | $0 | $0 |
| Brenan Hammeke | Director Trustee or director | 5 | $0 | $0 |
| Christoper Coggins | Director Trustee or director | 5 | $0 | $0 |
| Brendan Hammeke | Director Trustee or director | 5 | $0 | $0 |
| Stacy Dunleavy | Director Trustee or director | 5 | $0 | $0 |
| Nicholas Coulsen | Treasurer Trustee or director, Officer | 5 | $0 | $0 |
990 for the year ended December 31, 2023: 13 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Roy Courtney | Executive Dir. Officer | 40 | $59,471 | $2,612 |
| Andrew Spafford | President Trustee or director, Officer | 5 | $0 | $0 |
| Melina Deleon | Vice President Trustee or director, Officer | 5 | $0 | $0 |
| Anna Emerich | Secretary Trustee or director, Officer | 5 | $0 | $0 |
| Omar Ritter | Director Trustee or director | 5 | $0 | $0 |
| Joseph Mulla | Director Trustee or director | 5 | $0 | $0 |
| Neil Middlemiss | Director Trustee or director | 5 | $0 | $0 |
| Michelle Littlejohn | Director Trustee or director | 5 | $0 | $0 |
| Christoper Coggins | Director Trustee or director | 5 | $0 | $0 |
| Brendan Hammeke | Director Trustee or director | 5 | $0 | $0 |
| Jocelyn Webber | Director Trustee or director | 5 | $0 | $0 |
| Stacy Dunleavy | Director Trustee or director | 5 | $0 | $0 |
| Nicholas Coulsen | Treasurer Trustee or director, Officer | 5 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 3900 PARK ROAD C, CHARLOTTE, NC 28209-2133
- In care of
- % HOLLY A ZIPPERER
- Signed the 990
- Nicholas Coulsen, Treasurer
- Phone
- (704) 536-2163
- Return prepared by
- Foard and Company PA
Mission
Providing information and support to individuals with down syndrome along with families, professionals, and the community through educational and social activities.
Program accomplishments
- Camp Holiday:Camp Holiday is a summer day camp for children ages 5-21 with Down syndrome, running for 5 weeks in two locations in Charlotte. The camp features a variety of activities suitable for the age group and provides a supportive environment for campersExpenses $90,036 · revenue $35,524
- Camp HorizonCamp Horizon is a traditional overnight camp experience held at YMCA Camp Harrison in Boomer, NC. This 4-day/3-night camp is for children with Down syndrome, ages 10-17, and includes traditional camp activities, such as horseback riding, arts & crafts, and swimming. Each camper is paired with a 1:1 volunteer counselor. The camp focuses on building self-confidence and independence within a traditional camp setting. Scholarships are available.Expenses $34,193 · revenue $8,575
- Adult RetreatThe Adult Weekend Retreat is designed for adults with Down syndrome, ages 18 and above, focusing on empowering them to become contributing, valued members of their communities. The retreat includes a range of activities aimed at increasing self-confidence and independence, such as vocational projects and various camp activities. Two weekend retreats were held in 2024 near Lake Wylie in South Carolina, the retreat offers a 3:1 participant-to-counselor ratio, and scholarships are available for eligible families.Expenses $32,266 · revenue $13,405
- Virtual Programing: The DSAGC offered a number of virtual classes in 2024 to provide convenient fun and educational activities for individuals with Ds. Improve, drama, adult relationship counseling, fitness and dance were all virtual programs offered throughout the year. We also ran a number of social events to allow certain demographics in our community to form support groups such as parents meetups, adult meetups, First Call for new and expecting parents, Christmas parties and othersExpenses $21,377 · revenue $3,615
- First Call & OtherFor expectant and new parents of children with Down syndrome, any opportunity to speak with other parents who have experienced what you are experiencing can be invaluable. The DSA of Greater Charlottes Parent First Call program is a volunteer group of trained parent mentors available 24/7 to listen, share, answer questions, and provide valuable information. There were no material costs associated with this as training of volunteers had already been complete and we didnt do any in-person events because of the risk of CovidExpenses $2,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 56-1541529
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1987
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $263,485
- Income (IRS master file)
- $388,172
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $329,266 | $448,792 | $263,485 | IRS |
| 990 | December 2023 | $289,052 | $352,686 | $363,998 | XML |
| 990 | December 2022 | $196,183 | $224,712 | $427,632 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 56-1541529).
Questions about DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE
- What is the EIN of DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE?
- The employer identification number (EIN) of DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE is 56-1541529.
- Is DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1987.
- Are donations to DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who are the officers and directors of DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE?
- The 990 for the year ended December 31, 2024 lists 12 people; 1 received compensation from the organization, the highest $100,000 (Roy Courtney, Executive Dir.).
- How much revenue does DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $329,266, expenses of $448,792 and total assets of $263,485 at year end.
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