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Nonprofit · EIN 54-1985637

INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH

Tax-exempt · MILWAUKEE, WI 53202

Financials

$1M$1.1M2023$1.2M$1.2M2024
Revenue Expenses · by fiscal year end
Financials of INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$1,240,793$1,228,012$12,781$1,173,102$110,498$1,062,604
December 31, 2023990$1,037,457$1,064,316-$26,859$1,067,010$80,960$986,050
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$50,121
Program service revenue
$1,042,679
Investment income
$48,583
Royalties
$90,817
Net gain from sales of assets
$25,192
Other revenue
$99,410

Expenses

Grants and similar amounts paid
$59,803
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Accounting fees
$9,614
Travel
$35,426
Depreciation
$8,442
Program services (functional)
$873,082
Management and general (functional)
$354,930

Balance sheet and other

Total assets, start of year
$1,067,010
Total assets, end of year
$1,173,102
Total liabilities, end of year
$110,498
Net assets, end of year
$1,062,604
Publicly traded securities
$832,629
Net assets without donor restrictions
$1,028,586
Net assets with donor restrictions
$34,018
Gross unrelated business income
$6,450
Gross receipts
$1,240,793
Employees
0
Volunteers
11
Year formed
2000
State of legal domicile
VA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
ELIZABETH UNNIDIRECTOR
Trustee or director
1$8,500
JOSEPHINE M NORQUISTPRESIDENT
Trustee or director, Officer
5$0
JOANNE GREENHALGH PHDPAST PRESIDENT
Trustee or director, Officer
5$0
SANDRA NOLTEPRESIDENT ELECT
Trustee or director, Officer
5$0
CHRISTOPHER FORRESTTREASURER
Trustee or director, Officer
5$0
TOM WILLGOSSDIRECTOR
Trustee or director
1$0
ADESOLA C ODOLEDIRECTOR
Trustee or director
1$0
KATHRYN FLYNNDIRECTOR
Trustee or director
1$0
ELIZABETH GIBBONSDIRECTOR
Trustee or director
1$0
TOLULOPE SAJOBIDIRECTOR
Trustee or director
1$0
ROXANNE JENSENDIRECTOR
Trustee or director
1$0
CHRISTOPHER GIBBONSDIRECTOR
Trustee or director
1$0
LENE KONGSGAARD NIELSENDIRECTOR
Trustee or director
1$0
990 for the year ended December 31, 2023: 15 people
NameTitleHours / weekCompensation
RICHARD SKOLASKY SCDDIRECTOR
Trustee or director
1$4,500
JOANNE GREENHALGH PHDPAST PRESIDENT
Trustee or director, Officer
5$0
JOSEPHINE M NORQUISTPRESIDENT
Trustee or director, Officer
5$0
LOTTE HAVERMAN PHDDIRECTOR
Trustee or director
1$0
CHRISTOPHER GIBBONSDIRECTOR
Trustee or director
1$0
JAKOB BJORNER MD PHDDIRECTOR
Trustee or director
1$0
TOM WILLGOSSDIRECTOR
Trustee or director
1$0
ADESOLA C ODOLEDIRECTOR
Trustee or director
1$0
KATHRYN FLYNNDIRECTOR
Trustee or director
1$0
ELIZABETH GIBBONSDIRECTOR
Trustee or director
1$0
TOLULOPE SAJOBIDIRECTOR
Trustee or director
1$0
ROXANNE JENSENDIRECTOR
Trustee or director
1$0
ELIZABETH UNNIDIRECTOR
Trustee or director
1$0
LENE KONGSGAARD NIELSENDIRECTOR
Trustee or director
1$0
CHRISTOPHER FORRESTTREASURER
Trustee or director, Officer
5$0

Address and contacts

Address (IRS master file)
555 E WELLS ST STE 1100, MILWAUKEE, WI 53202-3800
In care of
% GEORGE DEGNON
Principal officer (990 for 2024)
SAMANTHA WALKER, 555 E WELLS STREET 1100, MILWAUKEE, WI 53202
Signed the 990
KIM COCKS, SECRETARY/TREASURER
Phone
(414) 918-9797
Return prepared by
RITZ HOLMAN LLP

Mission

TO ADVANCE THE SCIENTIFIC STUDY OF HEALTH-RELATED QUALITY OF LIFE AND OTHER PATIENT-CENTERED OUTCOMES TO IDENTIFY EFFECTIVE INTERVENTIONS, ENHANCE THE QUALITY OF HEALTH CARE AND PROMOTE THE HEALTH OF POPULATIONS.

990 for the year ended December 31, 2024

Program accomplishments

  • ANNUAL CONFERENCE - THE ISOQOL ANNUAL CONFERENCE BRINGS TOGETHER RESEARCHERS, INDUSTRY REPRESENTATIVES FROM PHARMACEUTICAL, BIOTECHNOLOGY AND MOBILE HEALTH DEVICE FIELDS, CLINICIANS, PATIENT RESEARCH PARTNERS AND REGULATORY OFFICIALS FROM AROUND THE WORLD. STUDENTS, NEW INVESTIGATORS, ESTABLISHED PROFESSIONALS AND LATE-CAREER PROFESSIONALS ALL HAVE A PLACE AT ISOQOL. DURING THIS CONFERENCE ATTENDEES HAVE THE OPPORTUNITY TO ATTEND AND/OR PRESENT IN GENERAL SCIENTIFIC SESSIONS. THE NUMEROUS EDUCATIONAL, COLLABORATIVE AND NETWORKING OPPORTUNITIES ENSURE VALUE FOR ATTENDEES IN ANY CAREER STAGE.
    Expenses $699,707 · revenue $639,086
  • JOURNALS - QUALITY OF LIFE RESEARCH (QLR) AND JOURNAL OF PATIENT-REPORTED OUTCOMES (JPRO): THE QLR AND JPRO JOURNALS ARE INTERNATIONAL, MULTIDISCIPLINARY DEVOTED TO THE RAPID COMMUNICATION OF ORIGINAL RESEARCH, THEORETICAL ARTICLES AND METHODOLOGICAL REPORTS RELATED TO THE FIELD OF QUALITY OF LIFE IN ALL THE HEALTH SCIENCES. THE JOURNALS ALSO PUBLISH EDITORIALS, LITERATURE, BOOK AND SOFTWARE REVIEWS, CORRESPONDENCE AND ABSTRACTS OF CONFERENCES.
    Expenses $90,373 · grants $51,398 · revenue $254,814
  • ISOQOL'S EDUCATION INITIATIVES ARE OPEN TO ANYONE WITH AN INTEREST IN THE THEORY, METHODS, STANDARDS AND BEST PRACTICES OR APPLICATION OF HEALTH RELATED QUALITY OF LIFE (HRQL) RESEARCH. THERE ARE CURRENTLY THREE ESTABLISHED EDUCATION PROGRAMS INCLUDING ONLINE COURSES, WEBINARS AND VIRTUAL SYMPOSIA.
  • OTHER PROGRAM SERVICES INCLUDE ELEARNING, WEBINARS, WEBSITE CONTENT, MEMBERSHIP NEWSLETTERS, ACTIVITIES OF THE SPECIAL INTEREST GROUPS, COMMITTEES, & THE PRESIDENT'S AWARD
    Expenses $83,002 · grants $8,405 · revenue $150,922

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
54-1985637
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2001
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Education (B055)
Assets (IRS master file)
$1,173,102
Income (IRS master file)
$1,240,793

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$1,240,793$1,228,012$1,173,102XML
990-TDecember 2024–––IRS
990December 2023$1,037,457$1,064,316$1,067,010XML
990-TDecember 2023–––IRS
990December 2022$962,495$952,295$1,044,301IRS
990-TDecember 2022–––IRS
990December 2021–––IRS
990-TDecember 2021–––IRS
990December 2020–––IRS
990-TDecember 2020–––IRS
990December 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 54-1985637).

Questions about INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH

What is the EIN of INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH?
The employer identification number (EIN) of INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH is 54-1985637.
Is INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2001.
Are donations to INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH?
The 990 for the year ended December 31, 2024 names SAMANTHA WALKER.
Who are the officers and directors of INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH?
The 990 for the year ended December 31, 2024 lists 13 people; 1 received compensation from the organization, the highest $8,500 (ELIZABETH UNNI, DIRECTOR).
How much revenue does INTERNATIONAL SOCIETY FOR QUALITY LIFE RESEARCH have?
On its 990 for the year ended December 31, 2024 it reported revenue of $1,240,793, expenses of $1,228,012 and total assets of $1,173,102 at year end.

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