Nonprofit · EIN 54-1660976
MYOSITIS ASSOCIATION
Tax-exempt · COLUMBIA, MD 21046
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $2,012,099 | $1,794,414 | $217,685 | $2,013,453 | $469,479 | $1,543,974 |
| December 31, 2023 | 990 | $1,249,899 | $1,888,477 | -$638,578 | $1,779,524 | $489,420 | $1,290,104 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $1,576,936
- Program service revenue
- $434,403
- Investment income
- $32,159
- Net gain from sales of assets
- $1,503
- Net income from sales of inventory
- -$30,945
- Other revenue
- -$31,399
Expenses
- Grants and similar amounts paid
- $331,216
- Compensation of officers, directors and key employees
- $192,132
- Other salaries and wages
- $200,115
- Salaries, compensation and benefits (total)
- $451,199
- Professional fundraising fees
- $0
- Legal fees
- $15,804
- Accounting fees
- $87,793
- Occupancy
- $89,036
- Travel
- $34,893
- Depreciation
- $7,081
- Program services (functional)
- $1,258,554
- Management and general (functional)
- $368,551
- Fundraising (functional)
- $167,309
Balance sheet and other
- Total assets, start of year
- $1,779,524
- Total assets, end of year
- $2,013,453
- Total liabilities, end of year
- $469,479
- Net assets, end of year
- $1,543,974
- Land, buildings and equipment
- $43,512
- Publicly traded securities
- $1,116,945
- Net assets without donor restrictions
- $1,151,091
- Net assets with donor restrictions
- $392,883
- Gross unrelated business income
- $1,000
- Gross receipts
- $2,380,615
- Employees
- 4
- Volunteers
- 92
- Year formed
- 1993
- State of legal domicile
- VA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Paula Eichenbrenner | Executive Dir. Officer | 40 | $180,562 |
| Laurie Boyer Chair | Director Trustee or director, Officer | 3 | $0 |
| Rich DeAugustinis Vice Chair | Director Trustee or director, Officer | 1.5 | $0 |
| Martha Arnold Secretary | Director Trustee or director, Officer | 1.5 | $0 |
| Howard Gerrin Treasurer | Director Trustee or director, Officer | 1.5 | $0 |
| Jeff Autrey | Director Trustee or director | 0.5 | $0 |
| Iazsmin Bauer Ventura | Director Trustee or director | 0.5 | $0 |
| Richard Chip Galloway | Director Trustee or director | 0.5 | $0 |
| Holly Jones | Director Trustee or director | 0.5 | $0 |
| Frank Lipiecki | Director Trustee or director | 0.5 | $0 |
| Ricky Marks | Director Trustee or director | 0.5 | $0 |
| David Mochel | Director Trustee or director | 1.5 | $0 |
| Tahseen Mozaffar | Director Trustee or director | 0.5 | $0 |
| Jane Myles | Director Trustee or director | 0.5 | $0 |
| Rodger Oren | Director Trustee or director | 0.5 | $0 |
3 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Meriel Parker | Director Trustee or director | 0.5 | $0 |
| Mustafa Shameem | Director Trustee or director | 0.5 | $0 |
| Nita Sharma | Director Trustee or director | 0.5 | $0 |
990 for the year ended December 31, 2023: 20 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Rhonda Buckley-Bishop Interim | Executive Dir. Officer | 40 | $183,137 |
| Chris Thornton Outgoing | Executive Dir. Officer | 40 | $20,436 |
| Paula Eichenbrenner Incoming | Executive Dir. Officer | 40 | $16,231 |
| Martha Arnold | Secretary Trustee or director, Officer | 1.5 | $0 |
| Laurie Boyer Vice Chair | Director Trustee or director, Officer | 1.5 | $0 |
| Jeff Autrey | Director Trustee or director | 0.5 | $0 |
| Gail Bayliss | Director Trustee or director | 0.5 | $0 |
| Rex Bickers | Director Trustee or director | 0.5 | $0 |
| David Mochel Chair | Director Trustee or director, Officer | 1.5 | $0 |
| Marianne Moyer | Director Trustee or director | 0.5 | $0 |
| Ronne Adkins | Director Trustee or director | 0.5 | $0 |
| Rodger Oren | Director Trustee or director | 0.5 | $0 |
| Iazsmin Bauer Ventura | Director Trustee or director | 0.5 | $0 |
| Holly Jones | Director Trustee or director | 0.5 | $0 |
| Frank Lipiecki | Director Trustee or director | 0.5 | $0 |
| Rich DeAugustinis | Treasurer Trustee or director, Officer | 1.5 | $0 |
| Ricky Marks | Director Trustee or director | 0.5 | $0 |
| Nita Sharma | Director Trustee or director | 0.5 | $0 |
| Howard Gerrin | Director Trustee or director | 0.5 | $0 |
| Tahseen Mozaffar | Director Trustee or director | 0.5 | $0 |
Address and contacts
- Address (IRS master file)
- 6950 COLUMBIA GATEWAY DR STE 370, COLUMBIA, MD 21046-3492
- Principal officer (990 for 2024)
- Laurie Boyer
- Signed the 990
- Paula Eichenbrenner, Executive Director
- Phone
- (800) 821-7356
- Website
- www.Myositis.org
- Return prepared by
- Quist & Associates LLC
Mission
The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an
Program accomplishments
- Global Myositis Patient Conference: TMA has convened myositis patients, care partners, and clinicians for a multi-day conference focused on learning and community-building since 1995. TMA's International Annual Patient Conference (IAPC) is now an annual event with panels of medical experts, peer counseling, sessions on coping skills, exercise workshops, and time to meet other patients and their families. The 2024 IAPC took place in Baltimore, Maryland, US, from Sept. 4-7. The conference included our first off-site medical and sightseeing excursions; TMA's Heroes in the Fight Awards; and a virtual recordings package to extend the reach of our conference breakout sessions. Many of TMA's members cannot travel, due to the progressively debilitating nature of their form of myositis. TMA offers the conference recordings at a discounted price to share the learnings from TMA's IAPC as widely and inclusively as possible.Expenses $527,150 · grants $15,084 · revenue $433,403
- Research Grants: TMA aims to identify the underlying causes and natural progression of myositis, develop better treatments and more effective therapies, and ultimately to arrive at cures for this collection of disabling diseases. Through our research program, we progress toward a world without myositis. Twelve TMA grants were active in 2024. We continued our research fellowship program to attract and encourage post-doctoral trainees (PhD and MD) and early-career physicians to pursue careers in the field of myositis research, and funded innovative pilot projects. From 2002 to 2024, TMA has awarded 68 research grants totaling nearly $8 million. Two new projects were approved in 2024: "Senolytic therapies in a novel patient-derived myoblast model of inclusion body myositis and Mitochondrial contribution to juvenile dermatomyositis." The grants portfolio is designed to advance our collective understanding of inclusion body myositis, dermatomyositis, necrotizing myopathy, polymyositis, and all forms of myositis. Scientists, practicing physicians, and other medical professionals have supported TMA through our active Medical Advisory Board. This group provides medical information to staff and patients, and guides the TMA research program.Expenses $407,313 · grants $316,132
- Other Program Services: TMA's other initiatives are focused on awareness, advocacy, and clinician outreach. We are continually updating approximately 13,000 members through monthly e-newsletters, quarterly magazines, videos on YouTube, social media channels, and the highly trafficked website myositis.org. Our efforts to elevate the understanding of myositis among the general public are very important. Because these diseases are very rare, advocacy on behalf of the families affected by myositis is a core component of our mission. In 2024, we organized Myositis Awareness Month from May 1-31, 2024 and we participated in World Myositis Day on September 21, 2024. TMA also provides resources for healthcare professionals, to ensure that they receive the latest information on treating myositis and communicating effectively with their patients. We publish various resources, including our "Myositis 101" physician booklets, disease overview brochures, and infographics. In 2024, we hosted a myositis research symposium for physicians and experts during our Global Myositis Patient Conference; we co-hosted an Externally-Led Patient-Focused Drug Development meeting with regulatory decision-makers and MSU; and we co-hosted a summit featuring "Recent Advances in Myositis Research and Treatment" with the Cure Juvenile Myositis (JM) Foundation.Expenses $186,301
- Patient Support and Education: TMA's Support Groups offer members the chance to share their feelings and discuss their concerns with people in similar situations. These groups, which are offered in-person and virtually, encourage an atmosphere of communication and compassion. TMA also administers Affinity Groups with outreach targeted toward supporting and extending our organization's reach into new communities. Through Affinity Groups, TMA brings together of people who have commonality such as Military Veterans, Women with IBM, Women of Color, Care Partners, and more. TMA's 36 regional Support Groups and 8 virtual Affinity Groups welcomed nearly 4,000 patients and care partners to group meetings in 2024. TMA's educational efforts, especially those organized during Myositis Awareness Month and World Myositis Day, create broader community awareness, direct our members to TMA offerings and resources, educate around patient and disease advocacy, share clinical insights, and build a stronger and more connected myositis community. TMA resources share information on diagnosis, treatments, research news, and other relevant topics that help patients and care partners learn what they need to address their individual health care concerns. TMA additionally hosts webinars year-round, including our monthly Ask the Expert series as well as Research Insights, Empowerment Clinic, and Awareness Clinic offerings. 1,399 registrants participated in TMA's virtual programs in 2024.Expenses $137,790
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 54-1660976
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1993
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Human services (P82Z)
- Assets (IRS master file)
- $2,013,453
- Income (IRS master file)
- $2,380,615
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $2,012,099 | $1,794,414 | $2,013,453 | XML |
| 990-T | December 2024 | – | – | – | IRS |
| 990 | December 2023 | $1,249,899 | $1,888,477 | $1,779,524 | XML |
| 990-T | December 2023 | – | – | – | IRS |
| 990 | December 2022 | $1,317,262 | $1,654,469 | $2,327,942 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 54-1660976).
Questions about MYOSITIS ASSOCIATION
- What is the EIN of MYOSITIS ASSOCIATION?
- The employer identification number (EIN) of MYOSITIS ASSOCIATION is 54-1660976.
- Is MYOSITIS ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1993.
- Are donations to MYOSITIS ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does MYOSITIS ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of MYOSITIS ASSOCIATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did MYOSITIS ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of MYOSITIS ASSOCIATION?
- The 990 for the year ended December 31, 2024 names Laurie Boyer.
- Who are the officers and directors of MYOSITIS ASSOCIATION?
- The 990 for the year ended December 31, 2024 lists 18 people; 1 received compensation from the organization, the highest $180,562 (Paula Eichenbrenner, Executive Dir.).
- How much revenue does MYOSITIS ASSOCIATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $2,012,099, expenses of $1,794,414 and total assets of $2,013,453 at year end.
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