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Nonprofit · EIN 54-1252305

VIRGINIA DOWN SYNDROME ASSOCIATION

Tax-exempt · RICHMOND, VA 23229

Financials

$625K$666K2023$732K$765K2024
Revenue Expenses · by fiscal year end
Financials of VIRGINIA DOWN SYNDROME ASSOCIATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
June 30, 2025990$731,677$765,359-$33,682$369,686$82,285$287,401
June 30, 2024990$625,016$666,023-$41,007$445,290$129,727$315,563
Financial details: 990 for the year ended June 30, 2025

Revenue

Contributions, gifts and grants
$465,066
of which government grants
$71,837
Program service revenue
$35,762
Investment income
$5,727
Net income from fundraising events
$225,122
Other revenue
$225,122

Expenses

Grants and similar amounts paid
$0
Other salaries and wages
$462,058
Salaries, compensation and benefits (total)
$497,413
Professional fundraising fees
$0
Accounting fees
$7,631
Occupancy
$38,122
Depreciation
$6,959
Program services (functional)
$607,735
Management and general (functional)
$64,990
Fundraising (functional)
$92,634

Balance sheet and other

Total assets, start of year
$445,290
Total assets, end of year
$369,686
Total liabilities, end of year
$82,285
Net assets, end of year
$287,401
Land, buildings and equipment
$9,218
Publicly traded securities
$78,529
Net assets without donor restrictions
$257,401
Net assets with donor restrictions
$30,000
Gross receipts
$831,185
Employees
13
Volunteers
0
Year formed
1983
State of legal domicile
VA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended June 30, 2025, highest compensation first.

NameTitleHours / weekCompensation
WILLIAM HAMMPRESIDENT
Trustee or director, Officer
2$0
NIHARIKA PATELTREASURER
Trustee or director, Officer
2$0
KATIE HASKINSVICE-PRESIDENT
Trustee or director, Officer
2$0
KIMBERLY BOOSEDIRECTOR
Trustee or director
2$0
VALENTINE INTAGLIATADIRECTOR
Trustee or director
2$0
STEPHEN FORDDIRECTOR
Trustee or director
2$0
MARY SCOTTDIRECTOR
Trustee or director
2$0
ARIEL SHELTONDIRECTOR
Trustee or director
2$0
CLIFFORD TWIGGSDIRECTOR
Trustee or director
2$0
FRANCES RUDDDIRECTOR
Trustee or director
2$0
AMANDA WHEELERDIRECTOR
Trustee or director
2$0
CHRISTIAN EMERYDIRECTOR
Trustee or director
2$0
JANAI SANTIAGODIRECTOR
Trustee or director
2$0
MICHAEL BAUMEXECUTIVE DIRECTOR
Key employee
40$0
990 for the year ended June 30, 2024: 18 people
NameTitleHours / weekCompensation
MARK BOONEPAST PRESIDENT
Trustee or director, Officer
2$0
WILLIAM HAMMPRESIDENT
Trustee or director, Officer
2$0
MARY SCOTTTREASURER
Trustee or director, Officer
2$0
CAROLE IVEYVICE-PRESIDENT
Trustee or director, Officer
2$0
KIMBERLY BOOSEDIRECTOR
Trustee or director
2$0
AMY BRAVOSECRETARY
Trustee or director
2$0
CAROL COFFINDIRECTOR
Trustee or director
2$0
VALENTINE INTAGLIATADIRECTOR
Trustee or director
2$0
EMMANUEL GAYOTDIRECTOR
Trustee or director
2$0
TRIPP GIBSONDIRECTOR
Trustee or director
2$0
KATIE HASKINSDIRECTOR
Trustee or director
2$0
CLIFFORD TWIGGSDIRECTOR
Trustee or director
2$0
FRANCES RUDDDIRECTOR
Trustee or director
2$0
AMANDA WHEELERDIRECTOR
Trustee or director
2$0
CHRISTIAN EMERYDIRECTOR
Trustee or director
2$0
JANAI SANTIAGODIRECTOR
Trustee or director
2$0
JENNIFER CASEEXECUTIVE DIRECTOR
Key employee
40$0
BOBBI JONESFINANCE DIRECTOR
Key employee
16$0

Address and contacts

Address (IRS master file)
1504 SANTA ROSA RD RM 124, RICHMOND, VA 23229-5109
Principal officer (990 for 2024)
WILLIAM HAMM, 1504 SANTA ROSA ROAD 124, RICHMOND, VA 23229
Signed the 990
NIHARIKA PATEL, TREASURER
Phone
(804) 447-4713
Return prepared by
FRANK BARCALOW

Mission

VIRGINIA DOWN SYNDROME ASSOCIATION IS A 501(C)3 NONPROFIT ORGANIZATION THAT BENEFITS THE LIVES OF INDIVIDUALS WITH DOWN SYNDROME (DS) AND THEIR FAMILIES THROUGH INDIVIDUAL AND FAMILY SUPPORT, EDUCATION, COMMUNITY AWARENESS, AND ADVOCACY. WE ADVOCATE FOR AWARENESS AND UNDERSTANDING BY EDUCATING OUR COMMUNITY ABOUT DS AND OFFERING EDUCATION PROGRAMS TO HELP OUR MEMBERS NAVIGATE THE LIFESPAN FROM EARLY CHILDHOOD THROUGH THE SCHOOL YEARS, TRANSITION, AND INTO ADULTHOOD. WE PROVIDE INDIVIDUAL SUPPORT TO FAMILIES TO ACCESS RESOURCES, MEDICAL CARE, AND SOCIAL SUPPORT FOR INDIVIDUALS WITH DOWN SYNDROME AND THEIR ENTIRE FAMILY. WE BELIEVE INDIVIDUALS WITH DOWN SYNDROME ARE VALUABLE MEMBERS OF OUR COMMUNITY AND IN WHOM ALL THINGS ARE POSSIBLE. WITH FULL OPPORTUNITIES AND COMMUNITY, INDIVIDUALS WITH DS WILL ACHIEVE GREAT THINGS. WE BOAST A MEMBERSHIP OF OVER 900 OF FAMILIES, A COMMUNITY WITHIN OUR COMMUNITY THAT CELEBRATES AND EMBRACES RAISING CHILDREN WITH DOWN SYNDROME. WE LISTEN, WE LEARN

990 for the year ended June 30, 2025

Program accomplishments

  • IN ADDITION TO VOLUNTEER SERVICES, THE ORGANIZATION IS THE GRATEFUL RECIPIENT OF FINANCIAL CONTRIBUTIONS BY 100% OF ITS BOARD AND STAFF. VDSA REACHED A NEW MILESTONE IN PROGRAMS AND INDIVIDUAL SUPPORT PROVIDED TO FAMILIES IN OUR NETWORK. WE WELCOMED OVER 90 NEW FAMILIES AND PROVIDED FAMILY CARE SUPPORT FOR OVER 300 EXISTING FAMILIES. DURING THE YEAR, THE ORGANIZATION WAS ABLE TO HOST IN-PERSON AND VIRTUAL SOCIAL AND EDUCATION PROGRAMS. WE PROUDLY SERVE OVER 850 FAMILIES ACROSS GREATER RICHMOND, CHARLOTTESVILLE, WILLIAMSBURG, CENTRAL SHENANDOAH VALLEY AND FREDERICKSBURG. FAMILY SUPPORT AND COMMUNITY OUTREACH:WE CONTINUE TO ENGAGE WITH FAMILIES AT EVERY STAGE OF LIFE BY OFFERING CONNECTION OPPORTUNITIES WITH OTHER FAMILIES AS WELL AS OFFERING RESOURCES NEEDED TO ACCESS SUPPORT IN THE COMMUNITY. OUR TEAM CONTINUED TO BUILD RELATIONSHIPS AND COLLABORATE WITH COMMUNITY PARTNERS AND RESOURCES TO HELP ADDRESS THE GROWING NEEDS OF OUR FAMILIES. OUR FIRST CALL PROGRAM WELCOMES EACH NEW FAMILY WITH A PRE-NATAL OR BIRTH DIAGNOSIS TO THE ORGANIZATION. FAMILIES ARE PROVIDED WITH A WELCOME BAG AND RESOURCES. DURING THE YEAR, WE WELCOME 223 FIRST CALL FAMILIES, ALONG WITH AN ADDITIONAL 72 NEW FAMILIES REACHING OUT TO VDSA, FOR A TOTAL OF 95 NEW FAMILIES.PROVIDED FAMILY CARE SUPPORT SERVICES TO 310 FAMILIES OF INDIVIDUALS WITH DOWN SYNDROME.PROVIDED 116 EDUCATORS, FAMILIES, AND COMMUNITY LEADERS WITH EDUCATION ABOUT BEST PRACTICES AND RECOMMENDATIONS FOR INDIVIDUALS WITH DS.FACEBOOK FOLLOWERS ON OUR MULTIPLE PAGES - OVER 983 ON SEVEN PARENT PAGES, 1 GRANDPARENT PAGE, 4900 ON THE MAIN FACEBOOK VDSA PAGE. INSTAGRAM FOLLOWERS: 1128 SOCIAL PROGRAMS:VDSA PROVIDES SOCIAL PROGRAMMING AND MEMBER ENGAGEMENT FOR ALL FAMILIES, AS WELL AS TARGETED OPPORTUNITIES FOR INDIVIDUALS WITH DOWN SYNDROME BY A VARIETY OF AGE GROUPS. OUR SOCIAL GROUPS FOSTER FRIENDSHIPS, PEER SOCIALIZATION, NETWORKING AND RESOURCING OPPORTUNITIES FOR BOTH INDIVIDUALS WITH DOWN SYNDROME AND PARENTS. MEMBERS ARE ALLOWED TO PARTICIPATE IN ANY AGE GROUP OR PROGRAM THAT MEETS THEIR NEEDS.DURING THE YEAR, VDSA HOSTED A VARIETY OF VIRTUAL AND IN-PERSON SOCIAL GROUP EVENTS FOR ALL AGES WHERE MEMBERS WERE ABLE TO PARTICIPATE IN ACTIVITIES AND SOCIALIZE. THESE ACTIVITIES INCLUDED WORLD DOWN SYNDROME CELEBRATION, DINNER OUTINGS, SPLASH PAD MEET AND GREETS, GYMNASTICS, MINIATURE GOLF, YOGA, ROCK CLIMBING, NEW PARENT BRUNCH, HIKING, FISHING, OUTDOOR ADVENTURE CLUB, SOCIAL SKILL BUILDING, JR. RANGER, AND ARTS IN THE PARK. FAMILY EVENTS INCLUDED A FAMILY PICNIC AND POOL PARTY, BASEBALL GAME OUTING, TRUNK OR TREAT, ORNAMENT DECORATING AND HOLIDAY PARTY.VDSA HAS OTHER TARGETED CAREGIVER SUPPORT GROUPS TO HELP PROVIDE MEMBERS WITH THE OPPORTUNITY TO COME TOGETHER TO SUPPORT EACH OTHER. THESE GROUPS INCLUDE:- COMPREHENSIVE CAREGIVER GROUP IS A SUPPORT GROUP DESIGNED TO BRING TOGETHER FAMILIES WHO HAVE A LOVED ONE WITH DOWN SYNDROME BUT MAY ALSO HAVE AN ADDITIONAL DIAGNOSIS OR CONDITION THAT BRINGS DIFFERENT NEEDS. THIS GROUP PROVIDES OPPORTUNITIES FOR PARENTS TO COME TOGETHER AND SUPPORT EACH OTHER, NO MATTER WHAT THAT EXTRA SOMETHING MAY BE.- MOMS AND DADS GROUPS ARE DESIGNED TO GIVE EACH PARENT AN OPPORTUNITY TO DEVELOP THEIR OWN UNIQUE NETWORK OF SUPPORT. THESE GROUPS HELP PROVIDE OPPORTUNITIES FOR FELLOWSHIP, RESOURCE SHARING AND RECREATIONAL ACTIVITIES. - GRANDPARENT TO GRANDPARENT IS DESIGNED TO GIVE EACH GRANDPARENT THE OPPORTUNITY TO DEVELOP THEIR OWN UNIQUE NETWORK OF SUPPORT. THIS GROUP PROVIDES OPPORTUNITIES FOR FELLOWSHIP, RESOURCE SHARING AND RECREATIONAL ACTIVITIES.- LATINOS DE VDSA IS A FAMILY SUPPORT GROUP TO PROVIDE OPPORTUNITIES FOR OUR SPANISH SPEAKING FAMILIES TO COME TOGETHER FOR FELLOWSHIP, RESOURCE SHARING AND RECREATIONAL ACTIVITIES. WE HOST SEVERAL FAMILY EVENTS EACH YEAR FOCUSED ON OUR SPANISH-SPEAKING FAMILIES. - 21 SHADES OF VIRGINIA IS A FAMILY SUPPORT GROUP CREATED AFTER AN EXPRESSED NEED IN SUPPORT OF FAMILIES EXPECTING OR RAISING A BLACK/INTERRACIAL CHILD WITH DOWN SYNDROME. THIS GROUP IS DESIGNED TO PROVIDE A SAFE SPACE FOR THE BLACK COMMUNITY TO NETWORK, COLLABORATE, CREATE AND SHARE INFORMATION WHILE BUILDING MEANINGFUL CONNECTIONS. EDUCATIONAL PROGRAMS:DESIGNED TO MEET THE UNIQUE NEEDS OF INDIVIDUALS WITH DOWN SYNDROME THROUGHOUT THE LIFESPAN, OUR DIFFERENT EDUCATIONAL OPPORTUNITIES HAVE HELPED PARENTS LEARN HOW TO RECEIVE THE BEST SERVICES, PROVIDE THE BEST SCHOOL AND EMPLOYMENT SUPPORT, GATHER AND SHARE RESOURCES ABOUT HOW TO BEST INCLUDE THEIR CHILD IN THE COMMUNITY. DURING THE YEAR, VDSA CONTINUED TO HOST MANY EDUCATIONAL PROGRAMS FOR OUR MEMBERS, WHICH INCLUDE: CONTINUED GROWTH OF OUR EARLY CHILDHOOD SERVICES PROVIDED BY OUR OUTREACH & INCLUSION SPECIALIST ROLE. THIS ROLE PROVIDES SUPPORT TO DAYCARES, PRESCHOOLS, EARLY CHILDHOOD, PROFESSIONALS, AND PARENTS OF CHILDREN FROM BIRTH TO 6 YEARS OLD. DISABILITY EDUCATION AND TRANSITION CONFERENCE - IN 2025, WE HELD OUR IN-PERSON CONFERENCE IN MARCH. THE 2025 EVENT HOSTED OVER 130 EDUCATORS AND PARENTS THROUGH 20 BREAKOUT SESSIONS. THE CONFERENCE ALSO PROVIDED ATTENDEES WITH 26 EXHIBITOR RESOURCES.INFANT TODDLER DEVELOPMENT SERIES - PROVIDED FAMILIES OF CHILDREN 0-18 MONTHS WITH DOWN SYNDROME A 6-WEEK CLASS SERIES OF INFORMATION & RESOURCES AND ANSWER QUESTIONS ABOUT THEIR CHILD'S DEVELOPMENT. I'M DETERMINED - IN 2025, VDSA OFFERED TWO "I'M DETERMINED" SESSIONS FOR SELF-ADVOCATES, WHICH IS A STATE-CREATED PROGRAM TO EMPOWER SELF-ADVOCATES TO UTILIZE THEIR VOICES TO STATE THEIR WANTS AND NEEDS IN SCHOOL, WORK, AND WITHIN THEIR COMMUNITIES. VDSA HELD A VIRTUAL REIMAGINING FAMILY LIFE WITH DISABILITY WORKSHOP FOR CAREGIVERS, WHICH IS A FOUR-WEEK SESSION MEANT TO REFRAME THE DISABILITY LENS AND ENCOURAGE CAREGIVERS TO FORM THEIR COMMUNITY OF CARE AND SUPPORT. HOSTED ONLINE PROGRAMS, INCLUDING MONTHLY PARENT DISCUSSIONS IN OUR SCHOOL INCLUSION SUPPORT GROUP, AN INFORMATION SESSION ON THE VA-LEND PROGRAM OFFERED THROUGH VIRGINIA COMMONWEALTH UNIVERSITY, A PUBERTY QUESTIONS AND CONCERNS WEBINAR, PROGRESS MONITORING IN IEPS, AND TRANSITION GOALS IN IEPS SUMMER EMPLOYMENT ACADEMY - HELD OUR 4-WEEK EMPLOYMENT ACADEMY WITH 6 STUDENTS AND PARTNERING WITH 6 BUSINESSES IN THE RICHMOND COMMUNITY. HELD OUR FIRST 3-WEEK EMPLOYMENT ACADEMY WITH 1 PARTICIPANT AND PARTNERING WITH 1 BUSINESS IN THE WILLIAMSBURG COMMUNITY.ADVOCACY/AWARENESS:SPREADING AWARENESS, ADVOCACY AND INCLUSION THROUGHOUT THE COMMUNITY OCCURS THROUGHOUT THE YEAR IN PARTNERSHIP WITH THE ARC OF VIRGINIA, NATIONAL DOWN SYNDROME SOCIETY, NATIONAL DOWN SYNDROME CONGRESS, GLOBAL DOWN SYNDROME FOUNDATION AND THROUGHOUT OUR SERVICE AREA ON WORLD DOWN SYNDROME DAY. SOME EXAMPLES ARE:STATE BUDGET HEARINGS ADVOCACY DAY ON CAPITOL HILL IN RVA AND WASHINGTON D.C. WORLD DOWN SYNDROME DAYSTATE SPECIAL EDUCATION ADVISORY COMMITTEE MEETINGSFUNDRAISING: OTHER COMMUNITY AND RESTAURANT FUNDRAISERS: DANCING WITH THE LOCAL STARS GALAANNUAL STEP UP FOR DOWN SYNDROME 5K & FAMILY FESTIVAL - RICHMOND ANNUAL STEP UP FOR DOWN SYNDROME EVENTS IN CHARLOTTESVILLE AND THE CENTRAL SHENANDOAH VALLEYANNUAL T21 GOLF TOURNAMENTANNUAL YEAR END APPEAL
    Expenses $607,735

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025June 30, 2026November 16, 2026Not due yet
2024June 30, 2025November 17, 2025990 on file
2023June 30, 2024November 15, 2024990 on file

IRS record

EIN
54-1252305
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (509(a)(2))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1990
Accounting year ends
June
Files
Form 990 or 990-EZ
Assets (IRS master file)
$369,686
Income (IRS master file)
$831,185

Filing history

FormYear endedRevenueExpensesAssetsReturn
990June 2025$731,677$765,359$369,686IRS
990June 2024$625,016$666,023$445,290XML
990June 2023$202,469$320,266$506,236IRS
990December 2022$482,090$438,608$606,000IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2019–––IRS
990December 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 54-1252305).

Questions about VIRGINIA DOWN SYNDROME ASSOCIATION

What is the EIN of VIRGINIA DOWN SYNDROME ASSOCIATION?
The employer identification number (EIN) of VIRGINIA DOWN SYNDROME ASSOCIATION is 54-1252305.
Is VIRGINIA DOWN SYNDROME ASSOCIATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1990.
Are donations to VIRGINIA DOWN SYNDROME ASSOCIATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does VIRGINIA DOWN SYNDROME ASSOCIATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of VIRGINIA DOWN SYNDROME ASSOCIATION due?
The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did VIRGINIA DOWN SYNDROME ASSOCIATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended June 2025.
Who is the principal officer of VIRGINIA DOWN SYNDROME ASSOCIATION?
The 990 for the year ended June 30, 2025 names WILLIAM HAMM.
Who are the officers and directors of VIRGINIA DOWN SYNDROME ASSOCIATION?
The 990 for the year ended June 30, 2025 lists 14 people; 0 received compensation from the organization.
How much revenue does VIRGINIA DOWN SYNDROME ASSOCIATION have?
On its 990 for the year ended June 30, 2025 it reported revenue of $731,677, expenses of $765,359 and total assets of $369,686 at year end.

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