Nonprofit · EIN 52-1871536
JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION
Tax-exempt (reinstated) · LITHIA, FL 33547
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-EZ | $69,166 | $21,709 | $47,457 | $308,516 | $826 | $307,690 |
| December 31, 2023 | 990-EZ | $137,061 | $363,752 | -$226,691 | $260,324 | $91 | $260,233 |
Financial details: 990-EZ for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $68,560
- Program service revenue
- $606
Expenses
- Grants and similar amounts paid
- $1,000
- Compensation of officers, directors and key employees
- $0
- Professional fees and payments to contractors
- $12,343
- Printing, publications and postage
- $353
- Other expenses
- $8,013
- Program services (functional)
- $1,890
Balance sheet and other
- Total assets, start of year
- $260,324
- Total assets, end of year
- $308,516
- Total liabilities, end of year
- $826
- Net assets, end of year
- $307,690
- Cash, savings and investments
- $306,217
- Gross receipts
- $69,166
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| STEPHEN MACK | PRESIDENT | 3 | $0 |
| MELISSA FIELDS | PRESIDENT ELECT | 3 | $0 |
| JESSIKA GARIS | TREASURER | 3 | $0 |
| AMY BALLOCK | SECRETARY | 3 | $0 |
| MATT BALLOCK | DIRECTOR | 2 | $0 |
| SARAH BORDERS | DIRECTOR | 2 | $0 |
| KRISTIN CHAKO | DIRECTOR | 2 | $0 |
| COURTNEY EDDY | DIRECTOR | 2 | $0 |
| DEVIN HAYS | DIRECTOR | 2 | $0 |
| LORI MORTON | DIRECTOR | 2 | $0 |
| CASSIE MEIERS | DIRECTOR | 2 | $0 |
| CINDY SCHMITT | DIRECTOR | 2 | $0 |
990-EZ for the year ended December 31, 2023: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| STEPHEN MACK | PRESIDENT | 3 | $0 |
| MELISSA FIELDS | PRESIDENT ELECT | 2 | $0 |
| JENNI SWENSON | PRESIDENT (THRU 12/23) | 3 | $0 |
| JESSIKA GARIS | TREASURER | 3 | $0 |
| CHUCK SODER | TREASURER (THRU 12/23) | 3 | $0 |
| AMY BALLOCK | SECRETARY | 3 | $0 |
| DENISE MACK | SECRETARY (THRU 12/23) | 3 | $0 |
| MATT BALLOCK | DIRECTOR | 2 | $0 |
| SARAH BORDERS | DIRECTOR | 2 | $0 |
| KRISTIN CHACKO | DIRECTOR | 2 | $0 |
| COURTNEY EDDY | DIRECTOR | 2 | $0 |
| DEVIN HAYS | DIRECTOR | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 15411 STARLING CROSSING DR, LITHIA, FL 33547-4053
- In care of
- % BETH SHEPARD
- Signed the 990-EZ
- STEPHEN MACK, PRESIDENT
- Phone
- (847) 361-6542
- Website
- JSRDF.ORG
- Return prepared by
- CLIFTONLARSONALLEN LLP
Mission
PROVIDING AN INTERNATIONAL NETWORK OF PARENTS WHO SHARE KNOWLEDGE, EXPERIENCE, AND EMOTIONAL SUPPORT. THE FOUNDATION OFFERS A NETWORKING LIST, NEWSLETTER, AND A BIENNIAL CONFERENCE. THE JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION PLAYS AN IMPORTANT ROLE IN EDUCATING PHYSICIANS AND THEIR SUPPORT TEAMS AS WELL AS INCREASING PUBLIC AWARENESS.
Program accomplishments
- TO ADMINISTER A BIENNIAL CONFERENCE FEATURING PHYSICIANS WHO ARE CONDUCTING JOUBERT SYNDROME RESEARCH AND TO PROVIDE HELPFUL INFORMATION TO PARENTS RAISING CHILDREN WITH JOUBERT SYNDROME.Expenses $1,890 · grants $1,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 52-1871536
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2022
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Philanthropy, voluntarism and grantmaking foundations (T50)
- Assets (IRS master file)
- $308,516
- Income (IRS master file)
- $69,166
Revocation and reinstatement
- Exemption revoked
- May 15, 2021
- Posted by the IRS
- August 9, 2021
- Reinstated
- Effective May 15, 2021
From the IRS automatic revocation list: organizations that did not file a required return or e-Postcard for three consecutive years.
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2024 | $69,166 | $21,709 | $308,516 | XML |
| 990-EZ | December 2023 | $137,061 | $363,752 | $260,324 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990 | December 2021 | $163,968 | $104,363 | $474,067 | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 52-1871536).
Questions about JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION
- What is the EIN of JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION?
- The employer identification number (EIN) of JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION is 52-1871536.
- Is JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION tax-exempt?
- Yes. The IRS revoked its exemption on May 15, 2021 and reinstated it effective May 15, 2021.
- Are donations to JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2024.
- Who are the officers and directors of JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION?
- The 990-EZ for the year ended December 31, 2024 lists 12 people; 0 received compensation from the organization.
- How much revenue does JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION CORPORATION have?
- On its 990-EZ for the year ended December 31, 2024 it reported revenue of $69,166, expenses of $21,709 and total assets of $308,516 at year end.
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