Nonprofit · EIN 52-1265361
THE MARFAN FOUNDATION INC
Tax-exempt · PRT WASHINGTN, NY 11050
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $7,780,692 | $7,566,004 | $214,688 | $19,547,558 | $2,672,468 | $16,875,090 |
| June 30, 2024 | 990 | $5,486,020 | $6,646,776 | -$1,160,756 | $18,118,070 | $1,860,516 | $16,257,554 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $6,904,067
- Program service revenue
- $34,390
- Investment income
- $842,235
- Net gain from sales of assets
- $317,156
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $1,529,718
- Compensation of officers, directors and key employees
- $891,234
- Other salaries and wages
- $2,759,368
- Salaries, compensation and benefits (total)
- $4,262,612
- Professional fundraising fees
- $0
- Accounting fees
- $41,354
- Occupancy
- $51,316
- Travel
- $414,883
- Depreciation
- $37,190
- Program services (functional)
- $6,284,560
- Management and general (functional)
- $455,733
- Fundraising (functional)
- $825,711
Balance sheet and other
- Total assets, start of year
- $18,118,070
- Total assets, end of year
- $19,547,558
- Total liabilities, end of year
- $2,672,468
- Net assets, end of year
- $16,875,090
- Land, buildings and equipment
- $543,808
- Publicly traded securities
- $12,440,501
- Net assets without donor restrictions
- $9,945,445
- Net assets with donor restrictions
- $6,929,645
- Gross receipts
- $12,512,714
- Employees
- 30
- Volunteers
- 510
- Year formed
- 1981
- State of legal domicile
- MD
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MICHAEL L WEAMER | PRES/CEO Officer | 35 | $474,635 | $28,106 |
| HELAINE BARUCH | CHIEF DEVELOPMENT OFFICER Highest-paid employee | 35 | $250,145 | $18,163 |
| JOSEPHINE GRIMA | CHIEF SCIENCE OFFICER Highest-paid employee | 35 | $210,325 | $18,163 |
| EILEEN NOVINS | CHIEF PROGRAM OFFICER Highest-paid employee | 35 | $194,453 | $18,163 |
| INDERJEET KAUR CPA | CHIEF FINANCIAL OFFICER Officer | 35 | $168,021 | $18,163 |
| JUDITH GIBALDI | CHIEF OPERATIONS OFFICER Officer | 35 | $125,230 | $28,106 |
| KIMBERLY K HUDDLESTON | VP. OF DEVELOPMENT Highest-paid employee | 35 | $138,012 | $326 |
| LAUREN E MAY | DIRECTOR OF RESEARCH Highest-paid employee | 35 | $131,724 | $326 |
| BERT MEDINA | CHAIR Trustee or director, Officer | 8 | $0 | $0 |
| CORY A EAVES | IMMEDIATE PAST CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| CARYN E KAUFFMAN CPA | TREASURER Trustee or director, Officer | 3 | $0 | $0 |
| PATRICIA MCCABE ESTRADA | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| SCOTT D AVITABILE ESQ | DIRECTOR Trustee or director | 1 | $0 | $0 |
| GIL BASHE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JUAN BOWEN MD | DIRECTOR Trustee or director | 1 | $0 | $0 |
17 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ALAN BRAVERMAN MD | DIRECTOR Trustee or director | 1 | $0 |
| DUKE CAMERON MD | DIRECTOR Trustee or director | 1 | $0 |
| RAY CHEVALLIER | DIRECTOR Trustee or director | 1 | $0 |
| BRANDY BANKS HOTCHKISS | DIRECTOR Trustee or director | 1 | $0 |
| GARY KAUFFMAN | DIRECTOR Trustee or director | 1 | $0 |
| JERRY L LERMAN | DIRECTOR Trustee or director | 1 | $0 |
| JEFFREY C LESAGE | DIRECTOR Trustee or director | 1 | $0 |
| SINCLAIR LI | DIRECTOR Trustee or director | 1 | $0 |
| BRYAN MAHER | DIRECTOR Trustee or director | 1 | $0 |
| JESS MILBURN | DIRECTOR Trustee or director | 1 | $0 |
| JAMES PRUTOW | DIRECTOR Trustee or director | 1 | $0 |
| JOAQUIN RAMOS JR | DIRECTOR Trustee or director | 1 | $0 |
| DAWN REINER | DIRECTOR Trustee or director | 1 | $0 |
| ANDREW TOY | DIRECTOR Trustee or director | 1 | $0 |
| JON R TULLIS | DIRECTOR Trustee or director | 1 | $0 |
| DAVID WARREN | DIRECTOR Trustee or director | 1 | $0 |
| ANTHONY YASICK MD | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended June 30, 2024: 29 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MICHAEL L WEAMER | PRES/CEO Officer | 35 | $457,343 | $27,314 |
| HELAINE BARUCH | CHIEF DEVELOPMENT OFFICER Highest-paid employee | 35 | $243,822 | $17,371 |
| JOSEPHINE GRIMA | CHIEF SCIENCE OFFICER Highest-paid employee | 35 | $207,595 | $17,371 |
| EILEEN NOVINS | CHIEF GLOBAL BUSINESS DEVEL. OFFICER Highest-paid employee | 35 | $189,021 | $17,371 |
| INDERJEET KAUR CPA | CHIEF FINANCIAL OFFICER Officer | 35 | $154,779 | $17,371 |
| LAUREN E MAY | DIRECTOR OF RESEARCH Highest-paid employee | 35 | $131,937 | $17,371 |
| JUDITH GIBALDI | CHIEF OPERATIONS OFFICER Officer | 35 | $118,377 | $27,314 |
| KIMBERLY K HUDDLESTON | VP. OF DEVELOPMENT Highest-paid employee | 35 | $117,954 | $17,371 |
| BERT MEDINA | CHAIR Trustee or director, Officer | 8 | $0 | $0 |
| CORY A EAVES | IMMEDIATE PAST CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| CARYN E KAUFFMAN CPA | TREASURER Trustee or director, Officer | 3 | $0 | $0 |
| PATRICIA MCCABE ESTRADA | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| JERRY L LERMAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ALAN BRAVERMAN MD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BRANDY BANKS HOTCHKISS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| GIL BASHE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOAQUIN RAMOS JR | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JEFFREY C LESAGE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SINCLAIR LI | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID WARREN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ANDREW TOY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| GARY KAUFFMAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JON TULLIS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SCOTT D AVITABILE ESQ | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ANTHONY YASICK MD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JUAN BOWEN MD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| RAY CHEVALLIER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JAMES PRUTOW | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAWN REINER | DIRECTOR Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 22 MANHASSET AVE, PRT WASHINGTN, NY 11050-2023
- Principal officer (990 for 2024)
- MICHAEL L WEAMER, 22 MANHASSET AVENUE, PORT WASHINGTON, NY 110502023
- Signed the 990
- MICHAEL L WEAMER, PRESIDENT AND CEO
- Phone
- (516) 883-8712
- Website
- WWW.MARFAN.ORG
- Return prepared by
- CBIZ ADVISORS LLC
Mission
SEE SCHEDULE O.THE MARFAN FOUNDATION DRIVES RESEARCH, EDUCATION AND SUPPORT AND BUILDS COMMUNITY TO IMPROVE OUTCOMES, SAVE LIVES AND EMPOWER ALL PEOPLE TO THRIVE WHO ARE LIVING WITH MARFAN, LOEYS-DIETZ, VASCULAR EHLERS-DANLOS SYNDROMES, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. *WE PURSUE THE MOST INNOVATIVE RESEARCH AND MAKE SURE THAT IT RECEIVES PROPER FUNDING. *WE FOSTER AN INFORMED PUBLIC AND EDUCATED PATIENT COMMUNITY TO INCREASE EARLY DIAGNOSIS AND ENSURE LIFE-SAVING TREATMENT. *WE PROVIDE DEDICATED SUPPORT TO FAMILIES, CAREGIVERS, AND HEALTHCARE PROVIDERS.
Program accomplishments
- SEE SCHEDULE O.RESEARCH -EXPENSES $2,811,733, GRANTS $1,512,774, REVENUE $0THE MARFAN FOUNDATION ADVANCES RESEARCH THAT SAVES LIVES AND DRAMATICALLY ENHANCES THE QUALITY OF LIFE FOR PEOPLE LIVING WITH MARFAN SYNDROME, LOEYS-DIETZ SYNDROME, VEDS, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. OUR RESEARCH PROGRAM HAS ADVANCED SCIENCE SINCE 1981, FUNDING 176 RESEARCH GRANTS SINCE 1986. THE RESEARCH WE'VE SUPPORTED HAS HELPED REDUCE LIFE-THREATENING PROBLEMS, IDENTIFIED TREATMENTS THAT HAVE IMPROVED QUALITY OF LIFE, AND HELPED PEOPLE LIVE LONGER LIVES. THE MARFAN FOUNDATION COLLABORATES WITH THE RESEARCH COMMUNITY AND ORGANIZATIONS TO IDENTIFY NEW THERAPIES AND TREATMENTS DOMESTICALLY AND AROUND THE GLOBE. THE FOUNDATION'S TWO-YEAR AND FOUR-YEAR GRANTS MECHANISMS HELP ENSURE A PIPELINE OF DEDICATED FELLOWS, NEW INVESTIGATORS, AND FACULTY MEMBERS WHO ARE COMMITTED TO THE SCIENTIFIC DISCOVERY NECESSARY TO ADVANCE UNDERSTANDING OF RARE DISEASES. THE FOUNDATION CONVENES NATIONAL AND INTERNATIONAL RESEARCH CONFERENCES, FACILITATES COLLABORATIONS AMONG RESEARCHERS AND RESEARCH INSTITUTIONS, AND HOLDS SYMPOSIUMS IN THE US AND ABROAD TO FACILITATE THE SHARING OF RESEARCH FINDINGS THAT EXPEDITE PROGRESS. THE MARFAN FOUNDATION PARTNERS WITH GOVERNMENT AGENCIES AND OTHER HEALTHCARE ORGANIZATIONS TO ADVANCE ITS RESEARCH GOALS AND ADVOCATE FOR ADDITIONAL RESEARCH FUNDING FROM THE GOVERNMENT.Expenses $2,811,733 · grants $1,512,774
- SEE SCHEDULE O.SUPPORT -EXPENSES $2,092,564, GRANTS $12,297, REVENUE $32,885THE MARFAN FOUNDATION OFFERS CUTTING-EDGE FACT-BASED INFORMATION ABOUT MARFAN, LOEYS-DIETZ, VASCULAR EHLERS-DANLOS (VEDS), AND OTHER GENETIC AORTIC AND VASCULAR CONDITIONS. WE REACH A WORLDWIDE AUDIENCE DIGITALLY AND THROUGH IN-PERSON PROGRAMMING. THROUGH OUR INSTITUTIONAL DIRECTORY, THE MARFAN FOUNDATION CONNECTS THOUSANDS OF INDIVIDUALS AND FAMILIES TO MORE THAN 70 U.S. - AND A GROWING NUMBER OF GLOBAL - INSTITUTIONS OFFERING EXPERTISE IN MARFAN, LDS, VEDS, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. WE PROVIDE EXPANSIVE INFORMATION FOR PATIENTS, FAMILY MEMBERS, AND HEALTHCARE PROVIDERS THROUGH OUR WEBSITE AND HELPLINE, ACCESSIBLE VIA PHONE AND EMAIL, AS WELL AS WEBINARS ON MEDICAL TOPICS, MENTAL HEALTH ISSUES, SUPPORT GROUPS, AND QUALITY OF LIFE. PROGRAMS ARE SCHEDULED AT VARIOUS TIMES TO INCREASE ACCESS ACROSS TIME ZONES (US AND ABROAD). AN INCREASING NUMBER OF RESOURCES AND EDUCATIONAL OPPORTUNITIES ARE OFFERED IN SPANISH LANGUAGE AND OTHER LANGUAGES TO BETTER SERVE PEOPLE LIVING WITH GENETIC AORTIC CONDITIONS AND THEIR SUPPORT NETWORKS. THE FOUNDATION IS FOCUSED ON ENSURING EVERYONE HAS ACCESS TO QUALITY CARE AND FOSTERING BELONGING FOR ALL.Expenses $2,092,564 · grants $12,297 · revenue $32,885
- SEE SCHEDULE O.EDUCATION - EXPENSES $1,380,263, GRANTS $4,647, REVENUE $1,505THE MARFAN FOUNDATION AND ITS DIVISIONS (THE LOEYS-DIETZ SYNDROME FOUNDATION, THE VEDS MOVEMENT, AND THE GENETIC AORTIC NETWORK) ARE THE PREEMINENT PROVIDERS OF INFORMATION AND PROGRAMS FOR PEOPLE LIVING WITH GENETIC AORTIC AND VASCULAR CONDITIONS, THEIR LOVED ONES, MEDICAL PROFESSIONALS, RESEARCHERS, AND THE GENERAL PUBLIC. WE REACH ONE MILLION PEOPLE ANNUALLY WITH OUR EDUCATIONAL RESOURCES, AND MORE THAN 7 MILLION IN THE SOCIAL MEDIA SPACE ALONE. THE MARFAN FOUNDATION OFFERS A WEALTH OF MEDICAL AND QUALITY-OF-LIFE INFORMATION IN MANY LANGUAGES THROUGH ITS HELP & RESOURCE CENTER, WHICH REACHES 5,000 PEOPLE EVERY YEAR -- DIRECTED BY IN-HOUSE NURSES AND A BILINGUAL MANAGER WHO ANSWER QUESTIONS BY PHONE AND EMAIL, AND THROUGH ITS COMPREHENSIVE WEBSITE, WHICH IS AVAILABLE IN MORE THAN 25 LANGUAGES. THE FOUNDATION OFFERS SPECIALIZED RESOURCES FOR CHILDREN, TEENS, PARENTS, TEACHERS, AND SCHOOL NURSES. IN ADDITION, THE FOUNDATION IS FOCUSED ON MENTAL HEALTH, OFFERING A RANGE OF OPPORTUNITIES, INCLUDING VIRTUAL SUPPORT GROUPS, VIDEOS, WEBINARS, AND OTHER CONTENT. THE MARFAN FOUNDATION FOCUSES ON EXPANDING HEALTH EQUITY AND ACCESS TO CARE FOR THE CONSTITUENTS WE SERVE GLOBALLY.Expenses $1,380,263 · grants $4,647 · revenue $1,505
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 52-1265361
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1982
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $19,547,558
- Income (IRS master file)
- $12,512,714
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $7,780,692 | $7,566,004 | $19,547,558 | IRS |
| 990 | June 2024 | $5,486,020 | $6,646,776 | $18,118,070 | XML |
| 990 | June 2023 | $8,195,380 | $6,758,497 | $18,561,612 | IRS |
| 990 | June 2022 | – | – | – | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 52-1265361).
Questions about THE MARFAN FOUNDATION INC
- What is the EIN of THE MARFAN FOUNDATION INC?
- The employer identification number (EIN) of THE MARFAN FOUNDATION INC is 52-1265361.
- Is THE MARFAN FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1982.
- Are donations to THE MARFAN FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THE MARFAN FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THE MARFAN FOUNDATION INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THE MARFAN FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of THE MARFAN FOUNDATION INC?
- The 990 for the year ended June 30, 2025 names MICHAEL L WEAMER.
- Who are the officers and directors of THE MARFAN FOUNDATION INC?
- The 990 for the year ended June 30, 2025 lists 32 people; 8 received compensation from the organization, the highest $474,635 (MICHAEL L WEAMER, PRES/CEO).
- How much revenue does THE MARFAN FOUNDATION INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $7,780,692, expenses of $7,566,004 and total assets of $19,547,558 at year end.
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