Nonprofit · EIN 52-0856660
EPILEPSY FOUNDATION OF AMERICA
Also known as EPILEPSY FOUNDATION NATIONAL OFFICE
Tax-exempt · BOWIE, MD 20716
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $16,178,770 | $18,974,202 | -$2,795,432 | $19,977,394 | $2,086,893 | $17,890,501 |
| June 30, 2024 | 990 | $15,593,499 | $16,514,182 | -$920,683 | $21,279,936 | $1,457,307 | $19,822,629 |
| June 30, 2023 | 990 | $17,841,214 | $15,981,333 | $1,859,881 | $21,649,278 | $1,740,500 | $19,908,778 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $16,885,704
- of which government grants
- $3,575,845
- Program service revenue
- $438,780
- Investment income
- $150,675
- Net gain from sales of assets
- -$437,351
- Net income from fundraising events
- -$1,296,389
- Other revenue
- -$1,296,389
Expenses
- Grants and similar amounts paid
- $327,949
- Compensation of officers, directors and key employees
- $1,174,434
- Other salaries and wages
- $7,364,936
- Salaries, compensation and benefits (total)
- $10,139,110
- Professional fundraising fees
- $290,397
- Legal fees
- $157,108
- Accounting fees
- $79,089
- Occupancy
- $117,146
- Travel
- $1,484,124
- Depreciation
- $24,146
- Program services (functional)
- $14,421,542
- Management and general (functional)
- $2,844,839
- Fundraising (functional)
- $1,707,821
Balance sheet and other
- Total assets, start of year
- $21,279,936
- Total assets, end of year
- $19,977,394
- Total liabilities, end of year
- $2,086,893
- Net assets, end of year
- $17,890,501
- Land, buildings and equipment
- $194,415
- Publicly traded securities
- $11,923,338
- Net assets without donor restrictions
- $12,479,614
- Net assets with donor restrictions
- $5,410,887
- Gross receipts
- $24,372,937
- Employees
- 99
- Volunteers
- 1,000
- Year formed
- 1967
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| BERNICE LEE | CHIEF EXECUTIVE OFFICER Officer | 35 | $451,255 | $30,103 |
| BRANDY FUREMAN | CHIEF OUTCOMES OFFICER Officer | 35 | $259,791 | $39,944 |
| LAURA WEIDNER | CHIEF ADVOCACY AND GOVERNMENT RELATIONS OFFICER Officer | 35 | $225,000 | $22,755 |
| NATHAN DEVAULT | VP MARKETING AND COMMUNICATIONS Highest-paid employee | 35 | $178,423 | $33,745 |
| KATHLEEN FARRELL | VP PUBLIC HEALTH OUTCOMES Highest-paid employee | 35 | $162,248 | $44,905 |
| DANIELLE SOLOMON | VP HUMAN RESOURCES Highest-paid employee | 35 | $161,710 | $22,879 |
| CAITLIN GRZESKOWIAK | CHIEF RESEARCH AND INNOVATION OFFICER Highest-paid employee | 35 | $165,792 | $11,605 |
| RAHEL ROSNER UNTIL SEPT 2024 | CHIEF FINANCIAL OFFICER Officer | 35 | $156,345 | $16,928 |
| GREGG FORT | VP REGIONAL OPERATIONS Highest-paid employee | 35 | $147,826 | $22,254 |
| WANDA COOK BEG NOV 2024 | CHIEF FINANCIAL OFFICER Officer | 35 | $49,855 | $3,086 |
| COURTNEY CAPUTO | CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| MARK THEEUWES | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| DAVID HAWK | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| JOSH GOLDEN | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| JEFF PARENT | DIRECTOR Trustee or director | 1 | $0 | $0 |
9 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JOHN LANNEN | DIRECTOR Trustee or director | 1 | $0 |
| ELI CORBETT | DIRECTOR Trustee or director | 1 | $0 |
| DARYL DRABINSKY | DIRECTOR Trustee or director | 1 | $0 |
| JEANNINE GARAB | DIRECTOR Trustee or director | 1 | $0 |
| WASIM MALIK | DIRECTOR Trustee or director | 1 | $0 |
| DAVID MOORE | DIRECTOR Trustee or director | 1 | $0 |
| NOAH RICHMOND | DIRECTOR Trustee or director | 1 | $0 |
| ANGELICA ROIZ | DIRECTOR Trustee or director | 1 | $0 |
| MARY WELDON | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended June 30, 2024: 29 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| RAHEL ROSNER | CFOO (THROUGH 9/24) Officer | 35 | $301,448 | $35,654 |
| BRANDY FUREMAN | CHIEF OUTCOMES OFFICER Officer | 35 | $252,896 | $32,370 |
| LAURA WEIDNER | CHIEF ADVOCACY AND GOV RELATIONS OFFICER Officer | 35 | $201,362 | $22,502 |
| NATHAN DEVAULT | VP, MARKETING AND COMMUNICATIONS Highest-paid employee | 35 | $171,695 | $32,626 |
| BERNICE LEE | CHIEF EXECUTIVE OFFICER (BEG 7/23) Officer | 35 | $182,273 | $9,445 |
| KATHLEEN FARRELL | VP PUBLIC HEALTH & OUTCOMES Highest-paid employee | 35 | $135,498 | $43,142 |
| DANIELLE SOLOMON | VP, HUMAN RESOURCES Highest-paid employee | 35 | $155,625 | $19,030 |
| GREGG FORT | VP REGIONAL TEAMS Highest-paid employee | 35 | $142,275 | $21,533 |
| JACQUELINE AKER | SENIOR DIRECTOR OF PUBLIC RELATIONS Highest-paid employee | 35 | $124,535 | $28,274 |
| ALISON ZETTERQUIST | INTERIM CEO (THROUGH 6/23) Officer | 35 | $131,000 | $0 |
| JEFFREY PARENT | CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| MARK THEEUWES | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| DAVID HAWK | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| COURTNEY WATSON | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| GREG MAYES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ELI CORBETT | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SUSAN LINN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JEN GURTCHEFF | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOHN LANNEN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| NOAH RICHMOND | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JAMES MCALPIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MICHAEL MCDONNELL | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MARIA MARTINEZ | DIRECTOR Trustee or director | 1 | $0 | $0 |
| WASIM MALIK | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ABRAHAM GLASER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID MOORE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MARY WELDON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOSH GOLDEN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ANGELICA ROIZ | DIRECTOR Trustee or director | 1 | $0 | $0 |
990 for the year ended June 30, 2023: 33 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| LAURA THRALL | CHIEF EXECUTIVE OFFICER UNTIL OCT 2022 Officer | 35 | $457,649 | $30,563 |
| RAHEL ROSNER | CHIEF FINANCE AND OPERATING OFFICER Officer | 35 | $269,600 | $37,589 |
| BRANDY FUREMAN | CHIEF OUTCOME OFFICER Officer | 35 | $232,853 | $47,694 |
| GEOFFREY DELIZZIO | CHIEF DEVELOPMENT OFFICER Officer | 35 | $234,996 | $39,707 |
| LAURA WEIDNER | CHIEF ADVOCACY OFFICER Key employee | 35 | $185,139 | $20,480 |
| NATHAN DEVAULT | VP, MARKETING AND COMMUNICATIONS Highest-paid employee | 35 | $160,560 | $29,301 |
| KATHLEEN FARRELL | VP, PUBLIC HEALTH & OUTCOMES Highest-paid employee | 35 | $140,000 | $35,352 |
| DANIELLE SOLOMON | VP, HUMAN RESOURCES Highest-paid employee | 35 | $145,506 | $21,022 |
| ALISON ZETTERQUIST | INTERIM CHIEF EXECUTIVE OFFICER Officer | 35 | $165,778 | $0 |
| GREGG FORTT | VP, REGIONAL TEAMS Highest-paid employee | 35 | $133,000 | $19,632 |
| JEFFREY PARENT | CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| COURTNEY WATSON | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| MARK THEEUWES | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| DANIEL MOORE | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| CURTIS DEPREY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CAMILA COELHO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ELIZABETH CORBETT | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ABRAHAM GLASER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOSHUA GOLDEN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| WASIM MALIK | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID HAWK | DIRECTOR Trustee or director | 1 | $0 | $0 |
| GREG MAYES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ALI HERON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JAMES MCALPIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SARAH KLEIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MICHAEL MCDONNELL | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID MOORE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MATT TIFFT | DIRECTOR Trustee or director | 1 | $0 | $0 |
| NOAH RICHMOND | DIRECTOR Trustee or director | 1 | $0 | $0 |
| REBEKAH WALKER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ANGELICA ROIZ | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MARY WELDON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| RON SHIMABUKU | DIRECTOR Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 3540 CRAIN HWY STE 675, BOWIE, MD 20716-1303
- In care of
- % WANDA COOK
- Principal officer (990 for 2024)
- WANDA COOK, 3540 CRAIN HIGHWAY 675, BOWIE, MD 20716
- Signed the 990
- WANDA COOK, CFO
- Phone
- (800) 332-1000
- Website
- WWW.EPILEPSY.COM
- Return prepared by
- GROSS MENDELSOHN & ASSOCIATES PA
Mission
TO IMPROVE THE LIVES OF PEOPLES AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION.
Program accomplishments
- ADVOCACY AND SERVICES FOR INDIVIDUALS, FAMILIES, AND COMMUNITIES - DESIGNED TO ENSURE THAT ALL PEOPLE LIVING WITH EPILEPSY AND SEIZURE DISORDERS, AND THIER FAMILIES AND COMMUNITIES, RECEIVE THE BEST POSSIBLE SERVICES AND CARE. THE FOUNDATION DEVELOPS NATIONWIDE PROGRAMS AVAILABLE THROUGH ITS NETWORK OF NEARLY FIFTY LOCAL EPILEPSY FOUNDATIONS AND CAN ALSO BE FOUND ON EPILEPSY.COM. PROGRAMS AND INITIATIVES FOCUS ON ENGAGING PARENTS, CHILDREN AND ADULTS ON IMPROVING THEIR QUALITY OF LIFE. THE FOUNDATION ALSO HAS PROGRAMS DEDICATED TO ENDING EARLY DEATH FROM EPILEPSY AND IMPROVING OVERALL WELLNESS. THE PROGRAMS ARE DESIGNED TO BE CULTURALLY AND ETHNICALLY DIVERSE. THE FOUNDATION AND ITS GRASSROOTS VOLUNTEERS ACROSS THE COUNTRY ADVOCATE AT THE FEDERAL AND STATE LEVELS TO SECURE FUNDING FOR EPILEPSY PROGRAMS.Expenses $10,433,192 · revenue $338,780
- PUBLIC HEALTH, EDUCATION, AND AWARENESS - PROVIDES EDUCATIONAL AND SUPPORTING SERVICES THAT CREATE AND PROMOTE PUBLIC AWARENESS SURROUNDING EPILEPSY. THE PROGRAM UTILIZES TRADITIONAL AND DIGITAL MEDIA CHANNELS INCLUDING SOCIAL MEDIA AND THROUGH THE DIRECT MAIL PROGRAM WHICH SERVE THE DUAL PURPOSE OF RAISING FUNDS FOR THE FOUNDATION AND INCREASING AWARENESS OF THE FOUNDATION'S CAUSE. THE FOUNDATION EDUCATES THROUGH ENGAGEMENT WITH MEDIA SOURCES, AND PARTNERSHIPS WITH OTHER NON-PROFITS AND PROFESSIONAL AND GOVERNMENT ORGANIZATIONS. IN ADDITION, THE FOUNDATION ESTABLISHED THE EPILEPSY LEARNING HEALTHCARE SYSTEM (ELHS) NETWORK, WHICH IS A PUBLIC HEALTH INITIATIVE TO DRIVE QUALITY HEALTH SERVICES RESEARCH TO IMPROVE MEDICAL OUTCOMES FOR PEOPLE WITH EPILEPSY.Expenses $2,739,509 · revenue $100,000
- RESEARCH, INNOVATION, AND NEW THERAPIES - ACCELERATES THE DEVELOPMENT OF INNOVATIVE THERAPIES, PREVENTION, AND CURES FOR ALL FORMS OF EPILEPSIES, AND SEEKS TO ADDRESS THE GAP IN THE RESEARCH AND COMMERCIALIZATION CONTINUUM. THE MAIN OBJECTIVE IS TO DEVELOP AN EPILEPSY RESEARCH ECOSYSTEM THAT COVERS ALL PARTS OF THERAPY, FROM IDEA TO MARKET. THE FOUNDATION'S RESEARCH INITIATIVES INCLUDE: INNOVATION PROGRAMS THAT TEST NEW IDEAS AND FOLLOW NEW RESEARCH LEADS AND ENGAGEMENT PROGRAMS THAT IMPROVE COMMUNICATION BETWEEN PEOPLE WITH EPILEPSY, THEIR FAMILIES, ADVOCATES, RESEARCHERS, AND INVESTORS. DIGITAL TOOLS THAT SUPPORT RESEARCH INFRASTRUCTURE. FUNDING THAT SUPPORTS YOUNG RESEARCHERS TO BRING THEIR IDEAS TO LIFE. PRACTICE SOLUTIONS TO ERADICATE SUDDEN AND UNEXPECTED DEATH IN EPILEPSY (SUDEP).Expenses $1,248,841 · grants $327,949
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 52-0856660
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1959
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G54Z)
- Assets (IRS master file)
- $19,977,394
- Income (IRS master file)
- $24,372,937
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $16,178,770 | $18,974,202 | $19,977,394 | XML |
| 990 | June 2024 | $15,593,499 | $16,514,182 | $21,279,936 | IRS |
| 990 | June 2023 | $17,841,214 | $15,981,333 | $21,649,278 | XML |
| 990 | June 2022 | $21,897,167 | $17,733,098 | $20,384,765 | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
| 990 | June 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 52-0856660).
Questions about EPILEPSY FOUNDATION OF AMERICA
- What is the EIN of EPILEPSY FOUNDATION OF AMERICA?
- The employer identification number (EIN) of EPILEPSY FOUNDATION OF AMERICA is 52-0856660.
- Is EPILEPSY FOUNDATION OF AMERICA tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1959.
- Are donations to EPILEPSY FOUNDATION OF AMERICA tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does EPILEPSY FOUNDATION OF AMERICA file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of EPILEPSY FOUNDATION OF AMERICA due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did EPILEPSY FOUNDATION OF AMERICA last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of EPILEPSY FOUNDATION OF AMERICA?
- The 990 for the year ended June 30, 2025 names WANDA COOK.
- Who are the officers and directors of EPILEPSY FOUNDATION OF AMERICA?
- The 990 for the year ended June 30, 2025 lists 24 people; 10 received compensation from the organization, the highest $451,255 (BERNICE LEE, CHIEF EXECUTIVE OFFICER).
- How much revenue does EPILEPSY FOUNDATION OF AMERICA have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $16,178,770, expenses of $18,974,202 and total assets of $19,977,394 at year end.
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All nonprofits in BOWIE · Maryland · Voluntary health associations and medical disciplines