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Nonprofit · EIN 51-0169988

CYSTIC FIBROSIS RESEARCH INSTITUTE

Tax-exempt · PALO ALTO, CA 94303

Financials

$2.2M$1.6M2023$2.1M$1.6M2024
Revenue Expenses · by fiscal year end
Financials of CYSTIC FIBROSIS RESEARCH INSTITUTE by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$2,055,947$1,594,228$461,719$4,205,242$29,861$4,175,381
December 31, 2023990$2,150,402$1,617,754$532,648$3,727,841$19,808$3,708,033
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$1,916,352
of which government grants
$76,241
Program service revenue
$13,707
Investment income
$124,582
Net income from fundraising events
-$259
Other revenue
$1,306

Expenses

Grants and similar amounts paid
$528,720
Compensation of officers, directors and key employees
$116,238
Other salaries and wages
$274,464
Salaries, compensation and benefits (total)
$471,713
Professional fundraising fees
$0
Accounting fees
$75,167
Occupancy
$51,480
Depreciation
$793
Program services (functional)
$1,345,841
Management and general (functional)
$114,300
Fundraising (functional)
$134,087

Balance sheet and other

Total assets, start of year
$3,727,841
Total assets, end of year
$4,205,242
Total liabilities, end of year
$29,861
Net assets, end of year
$4,175,381
Land, buildings and equipment
$1,233
Publicly traded securities
$1,292,372
Net assets without donor restrictions
$2,750,740
Net assets with donor restrictions
$1,424,641
Gross receipts
$2,056,206
Employees
7
Volunteers
150
Year formed
1975
State of legal domicile
CA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
SIRI VAETHEXECUTIVE DIRECTOR
Officer
40$116,238
FRANCINE BIONBOARD MEMBER
Trustee or director
1.5$0
ZOE DAVIESBOARD SECRETARY
Trustee or director, Officer
1.5$0
JULIE DESCHBOARD MEMBER
Trustee or director
1.5$0
ROHINI THUKRAL MCKEEBOARD MEMBER
Trustee or director
1.5$0
OSCAR A FLAMENCOBOARD TREASURER
Trustee or director, Officer
1.5$0
ELYSE ELCONIN GOLDBERGBOARD MEMBER
Trustee or director
1.5$0
JEAN HANLEYBOARD MEMBER
Trustee or director
1.5$0
BILL HULTPRESIDENT
Trustee or director, Officer
1.5$0
JESSICA MARTENSVICE PRESIDENT
Trustee or director, Officer
1.5$0
DOUG MODLINBOARD MEMBER
Trustee or director
1.5$0
RICHARD B MOSSBOARD MEMBER
Trustee or director
1.5$0
AREK PUZIABOARD MEMBER
Trustee or director
1.5$0
AHMET ULUERBOARD MEMBER
Trustee or director
1.5$0
990 for the year ended December 31, 2023: 14 people
NameTitleHours / weekCompensation
SIRI VAETHEXECUTIVE DIRECTOR
Officer
40$111,488
FRANCINE BIONBOARD MEMBER
Trustee or director
1$0
ZOE DAVIESBOARD SECRETARY
Trustee or director, Officer
1$0
JULIE DESCHBOARD MEMBER
Trustee or director
1$0
COLLEEN DUNNBOARD MEMBER
Trustee or director
1$0
OSCAR A FLAMENCOBOARD TREASURER
Trustee or director, Officer
1$0
ELYSE ELCONIN GOLDBERGBOARD MEMBER
Trustee or director
1$0
JEAN HANLEYBOARD MEMBER
Trustee or director
1$0
BILL HULTPRESIDENT
Trustee or director, Officer
1$0
JESSICA MARTENSVICE PRESIDENT
Trustee or director, Officer
1$0
DOUG MODLINBOARD MEMBER
Trustee or director
1$0
RICHARD B MOSSBOARD MEMBER
Trustee or director
1$0
AREK PUZIABOARD MEMBER
Trustee or director
1$0
AHMET ULUERBOARD MEMBER
Trustee or director
1$0

Address and contacts

Address (IRS master file)
1731 EMBARCADERO RD STE 210, PALO ALTO, CA 94303-3339
In care of
% SUSAN LANDGRAF
Principal officer (990 for 2024)
BILL HULT, 1731 EMBARCADERO ROAD SUITE 210, PALO ALTO, CA 94303
Signed the 990
BILL HULT, PRESIDENT
Phone
(650) 665-7576
Return prepared by
BRYMAR CPA LLP

California records

California keeps its own records of charities and corporations. Search them by EIN 51-0169988 or by the name CYSTIC FIBROSIS RESEARCH INSTITUTE.

Attorney General, Registry of Charities and Fundraisers
Registration status and filed reports (CT-TR-1, RRF-1)

Mission

TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATIONAL AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE.

990 for the year ended December 31, 2024

Program accomplishments

  • TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATION AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE THREATENING GENETIC DISEASE.
    Expenses $1,093,090 · grants $528,720 · revenue $13,707
  • CONFERENCE (NEED DESCRIPTION)
    Expenses $252,751

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
51-0169988
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1975
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$4,205,242
Income (IRS master file)
$2,056,206

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$2,055,947$1,594,228$4,205,242XML
990December 2023$2,150,402$1,617,754$3,727,841XML
990December 2022$1,350,296$1,525,935$3,199,342IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 51-0169988).

Questions about CYSTIC FIBROSIS RESEARCH INSTITUTE

What is the EIN of CYSTIC FIBROSIS RESEARCH INSTITUTE?
The employer identification number (EIN) of CYSTIC FIBROSIS RESEARCH INSTITUTE is 51-0169988.
Is CYSTIC FIBROSIS RESEARCH INSTITUTE tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1975.
Are donations to CYSTIC FIBROSIS RESEARCH INSTITUTE tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does CYSTIC FIBROSIS RESEARCH INSTITUTE file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of CYSTIC FIBROSIS RESEARCH INSTITUTE due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did CYSTIC FIBROSIS RESEARCH INSTITUTE last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of CYSTIC FIBROSIS RESEARCH INSTITUTE?
The 990 for the year ended December 31, 2024 names BILL HULT.
Who are the officers and directors of CYSTIC FIBROSIS RESEARCH INSTITUTE?
The 990 for the year ended December 31, 2024 lists 14 people; 1 received compensation from the organization, the highest $116,238 (SIRI VAETH, EXECUTIVE DIRECTOR).
How much revenue does CYSTIC FIBROSIS RESEARCH INSTITUTE have?
On its 990 for the year ended December 31, 2024 it reported revenue of $2,055,947, expenses of $1,594,228 and total assets of $4,205,242 at year end.

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