Nonprofit · EIN 47-4570748
MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION
Tax-exempt · LINCOLN, DE 19960
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $440,756 | $461,269 | -$20,513 | $216,988 | $34,585 | $182,403 |
| December 31, 2024 | 990 | $536,205 | $509,198 | $27,007 | $234,940 | $32,024 | $202,916 |
| December 31, 2023 | 990 | $494,568 | $430,096 | $64,472 | $244,267 | $68,358 | $175,909 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $414,789
- Program service revenue
- $21,465
- Investment income
- $4,269
- Net income from sales of inventory
- $173
- Other revenue
- $233
Expenses
- Grants and similar amounts paid
- $118,560
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $38
- Occupancy
- $2,875
- Travel
- $18,915
- Depreciation
- $643
- Program services (functional)
- $352,004
- Management and general (functional)
- $106,774
- Fundraising (functional)
- $2,491
Balance sheet and other
- Total assets, start of year
- $234,940
- Total assets, end of year
- $216,988
- Total liabilities, end of year
- $34,585
- Net assets, end of year
- $182,403
- Land, buildings and equipment
- $1,461
- Gross receipts
- $444,451
- Employees
- 0
- Volunteers
- 36
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lynn Wilson | President Trustee or director, Institutional trustee | 40 | $0 |
| Shirley Schnieders | Treasurer Trustee or director, Institutional trustee | 7 | $0 |
| Manuel Lubinus | Board Member Trustee or director | 19 | $0 |
| Randy Berry | Board Member Trustee or director | 1 | $0 |
| Marlene Jansen | Board Member Trustee or director | 1 | $0 |
| Mohammed Harris | Board Member Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lynn Wilson | President Trustee or director, Officer | 40 | $0 |
| Benita Moyers | Vice President/Secretary Trustee or director, Officer | 17 | $0 |
| Shirley Schnieders | Treasurer Trustee or director, Officer | 7 | $0 |
| Manuel Lubinus | Board Member Trustee or director | 19 | $0 |
990 for the year ended December 31, 2023: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lynn Wilson | President Trustee or director, Officer | 40 | $0 |
| Benita Moyers | Vice President and Secretary Trustee or director, Officer | 7 | $0 |
| Shirley Schneiders | Treasurer Trustee or director, Officer | 7 | $0 |
| Lauren Landman | Board Member Trustee or director, Officer | 2 | $0 |
| Mauel Lubinus | Chief Science Officer Trustee or director, Officer | 30 | $0 |
Address and contacts
- Address (IRS master file)
- 9125 N OLD STATE RD, LINCOLN, DE 19960-3654
- In care of
- % GERALD L WILLIAMS JR
- Mailing address (990-N for 2017)
- 9125 N Old State Road, Lincoln DE 19960
- Principal officer (990 for 2025)
- Betty Lynn Wilson, 9125 N Old State Road, Lincoln, DE 19960
- Principal officer (990-N for 2017)
- Gerald L Williams Jr, 9125 N Old State Road, Lincoln DE 19960
- Signed the 990
- Shirley Schnieders, Treasurer
- Website
- understandingmyositis.org
- Return prepared by
- FierceCG LLC
Mission
The mission of Myositis Support and Understanding Association Inc is to improve the lives of and empower those fighting myositis through education, support, awareness, advocacy, patient financial assistance and access to research.
Program accomplishments
- SUPPORT PROGRAM - MSU's From the Heart Support Program provides peer-to-peer support through live Zoom meetings, Clubhouse sessions, and six online support groups. The program connects myositis patients, care partners, and family members worldwide to share experiences, receive emotional support, and learn about disease management. In 2025, more than 5,000 individuals participated in live support sessions, and over 12,500 members engaged through online support groups. MSU also hosted a Moon Walk event that brought together patients, caregivers, clinicians, and researchers to share experiences and learn about current myositis research and treatment developments.Expenses $143,640 · revenue $157,940
- Expenses $123,187 · revenue $90,136
- Expenses $85,177 · revenue $12,692
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 47-4570748
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2015
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H01)
- Assets (IRS master file)
- $234,940
- Income (IRS master file)
- $536,205
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $440,756 | $461,269 | $216,988 | XML |
| 990 | December 2024 | $536,205 | $509,198 | $234,940 | IRS |
| 990 | December 2023 | $494,568 | $430,096 | $244,267 | XML |
| 990 | December 2022 | $444,144 | $479,614 | $111,437 | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-N for 2017 Officer: Gerald L Williams Jr | December 31, 2017 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 47-4570748).
Questions about MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION
- What is the EIN of MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION?
- The employer identification number (EIN) of MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION is 47-4570748.
- Is MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2015.
- Are donations to MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION?
- The 990 for the year ended December 31, 2025 names Betty Lynn Wilson.
- Who are the officers and directors of MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION?
- The 990 for the year ended December 31, 2025 lists 6 people; 0 received compensation from the organization.
- How much revenue does MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $440,756, expenses of $461,269 and total assets of $216,988 at year end.
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