Nonprofit · EIN 47-4011296
MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC
Tax-exempt (reinstated) · SANTA MONICA, CA 90403
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| September 30, 2025 | 990 | $651,742 | $686,815 | -$35,073 | $96,202 | $4,780 | $91,422 |
| September 30, 2024 | 990 | $693,686 | $690,329 | $3,357 | $144,752 | $2,887 | $141,865 |
| September 30, 2023 | 990 | $859,633 | $724,538 | $135,095 | $168,906 | $30,029 | $138,877 |
Financial details: 990 for the year ended September 30, 2025
Revenue
- Contributions, gifts and grants
- $650,704
- of which government grants
- $157,245
- Program service revenue
- $1,500
- Investment income
- $2
- Net income from sales of inventory
- -$614
- Other revenue
- -$464
Expenses
- Grants and similar amounts paid
- $500
- Compensation of officers, directors and key employees
- $95,333
- Other salaries and wages
- $422,884
- Salaries, compensation and benefits (total)
- $561,055
- Professional fundraising fees
- $0
- Accounting fees
- $11,000
- Occupancy
- $419
- Travel
- $4,807
- Program services (functional)
- $486,632
- Management and general (functional)
- $104,951
- Fundraising (functional)
- $95,232
Balance sheet and other
- Total assets, start of year
- $144,752
- Total assets, end of year
- $96,202
- Total liabilities, end of year
- $4,780
- Net assets, end of year
- $91,422
- Land, buildings and equipment
- $4,634
- Net assets without donor restrictions
- $91,422
- Gross receipts
- $654,524
- Employees
- 9
- Volunteers
- 100
- Year formed
- 2014
- State of legal domicile
- NJ
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended September 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LAURIE JONES | EXECUTIVE DIRECTOR Officer | 40 | $75,450 |
| KEHSI IMAN WILSON | CO-CHAIR Trustee or director, Officer | 1 | $0 |
| OMAR WASOW | CO-CHAIR Trustee or director, Officer | 2 | $0 |
| STEVE MAZUR | TREASURER Trustee or director, Officer | 1 | $0 |
| NIRANJAN SHEKAR | SECRETARY Trustee or director, Officer | 6 | $0 |
| SHAQUILE COONCE | DIRECTOR Trustee or director | 1 | $0 |
| JENNIFER ENGLAND | DIRECTOR Trustee or director | 1 | $0 |
| ROBERT SKLANS | DIRECTOR Trustee or director | 1 | $0 |
| ELIZABETH WEAVER | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended September 30, 2024: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LAURIE JONES | EXECUTIVE DIRECTOR Officer | 40 | $93,525 |
| JILL HINSON | CO-CHAIR (THRU 05/24) Trustee or director, Officer | 8 | $0 |
| BETH MAZUR | CO-CHAIR (THRU 12/23) Trustee or director, Officer | 5 | $0 |
| KEHSI IMAN WILSON - DIRECTOR | (THRU 08/24) CO-CHAIR (AS OF 07/24) Trustee or director, Officer | 1 | $0 |
| OMAR WASOW | CO-CHAIR (AS OF 05/24) Trustee or director, Officer | 2 | $0 |
| MICHELLE PINEDO | TREASURER (THRU 04/24) Trustee or director, Officer | 1 | $0 |
| STEVE MAZUR | TREASURER (AS OF 04/24) Trustee or director | 1 | $0 |
| JUDY GAYER | SECRETARY (THRU 04/24) Trustee or director, Officer | 6 | $0 |
| NIRANJAN SHEKAR | SECRETARY (AS OF 04/24) Trustee or director | 6 | $0 |
| SHAQUILE COONCE | DIRECTOR Trustee or director | 1 | $0 |
| JENNIFER ENGLAND | DIRECTOR Trustee or director | 1 | $0 |
| RYAN PRIOR | DIRECTOR (THRU 05/24) Trustee or director | 1 | $0 |
| ROBERT SKLANS | DIRECTOR Trustee or director | 1 | $0 |
| ELIZABETH WEAVER | DIRECTOR (AS OF 07/24) Trustee or director | 1 | $0 |
990 for the year ended September 30, 2023: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LAURIE JONES | EXECUTIVE DIRECTOR Officer | 40 | $75,000 |
| JILL HINSON | CO-CHAIR Trustee or director, Officer | 8 | $0 |
| BETH MAZUR | CO-CHAIR Trustee or director, Officer | 5 | $0 |
| JUDY GAYER | SECRETARY Trustee or director, Officer | 6 | $0 |
| MICHELLE PINEDO | TREASURER Trustee or director, Officer | 1 | $0 |
| SHAQUILE COONCE | DIRECTOR Trustee or director | 1 | $0 |
| JD DAVIDS | DIRECTOR (THRU 10/22) Trustee or director | 1 | $0 |
| JENNIFER ENGLAND | DIRECTOR Trustee or director | 1 | $0 |
| KEHSI IMAN WILSON | DIRECTOR (AS OF 07/23) Trustee or director | 1 | $0 |
| RYAN PRIOR | DIRECTOR Trustee or director | 1 | $0 |
| NIRANJAN SHEKAR | DIRECTOR (AS OF 07/23) Trustee or director | 1 | $0 |
| ROBERT SKLANS | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 1217 WILSHIRE BOULEVARD 3639, SANTA MONICA, CA 90403-5466
- In care of
- % JENNIFER BREA
- Mailing address (990-N for 2017)
- 62 Cherry Hill Road, Princeton NJ 08540
- Principal officer (990 for 2024)
- OMAR WASOW, 1217 WILSHIRE BOULEVARD 3639, SANTA MONICA, CA 90403
- Principal officer (990-N for 2017)
- Jennifer Brea, 62 Cherry Hill Road, Princeton NJ 08540
- Signed the 990
- OMAR WASOW, CO-CHAIR
- Phone
- (626) 354-7833
- Website
- https://www.meaction.net/
- Return prepared by
- BAKER TILLY ADVISORY GROUP LP
California records
California keeps its own records of charities and corporations. Search them by EIN 47-4011296 or by the name MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH M.E. WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE.
Program accomplishments
- MINNESOTA ME/CFS PROGRAM: #MEACTION'S WORK FOCUSED ON BETTER CONNECTING MINNESOTANS WITH ME/CFS, LONG COVID, AND RELATED CONDITIONS TO VITAL HOME AND COMMUNITY-BASED SUPPORT SERVICES THAT THEY OFTEN STRUGGLE TO EFFECTIVELY ACCESS. WE HELP MINNESOTANS NAVIGATE ACCESSING SERVICES TO MEET THEIR DAILY NEEDS, AND TO CAREFULLY EVALUATE THE EFFECTIVENESS OF THIS FUNDED SERVICE DELIVERY. THIS PROGRAM IS A STATE PROGRAM THAT WE HOPE TO EXPAND TO A NATIONAL PROGRAM TO CONNECT PEOPLE ACROSS THE COUNTRY TO HOME AND COMMUNITY-BASED SERVICES.Expenses $149,275
- DIGITAL ADVOCACY AND AWARENESS:ADVOCACY IS A CORNERSTONE OF OUR WORK AT #MEACTION. EVERY YEAR, WE TAKE DECISIVE STEPS TO STRENGTHEN OUR VOICE WITH THE US GOVERNMENT THROUGH THE NATIONAL INSTITUTE OF HEALTH, THE CENTER FOR DISEASE CONTROL & PREVENTION, AND THE DEPARTMENT OF HEALTH AND HUMAN SERVICES. WE URGE EACH AGENCY TO PRIORITIZE THE HEALTH OF PEOPLE WITH ME THROUGH ACCELERATED RESEARCH, CLINICAL EDUCATION, AND A DEDICATED SEARCH FOR AN FDA-APPROVED TREATMENT. INFLUENCED BY THE HIV/AIDS MOVEMENT, OUR ADVOCACY ACTIVITIES INCLUDE PARTICIPATION IN GOVERNMENT COMMITTEES, PUBLISHED PETITIONS, OPEN LETTERS, MEETINGS, PEACEFUL PROTESTS, PRESS CONFERENCES, ADVOCACY DAYS AND MORE.Expenses $139,987
- #MILLIONSMISSING:#MILLIONSMISSING IS OUR GLOBAL EFFORT TO RAISE AWARENESS AND ACHIEVE RIGHTS FOR ME/CFS PATIENTS. SINCE 2016, WE HAVE BANDED TOGETHER EVERY YEAR TO RAISE AWARENESS AND ADVOCATE FOR ACTION.Expenses $130,686 · grants $500 · revenue $1,500
- RESEARCH AND MEDICAL:WE AIM TO GROW THE SCIENTIFIC FIELD THROUGH OUTREACH, EDUCATION AND PATIENT-DRIVEN RESEARCH SO THAT TREATMENTS, DIAGNOSIS, AND OUTCOMES CAN IMPROVE FOR PEOPLE WITH ME.Expenses $66,684
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | September 30, 2026 | February 15, 2027 | Not due yet |
| 2024 | September 30, 2025 | February 16, 2026 | 990 on file |
| 2023 | September 30, 2024 | February 17, 2025 | 990 on file |
IRS record
- EIN
- 47-4011296
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2017
- Accounting year ends
- September
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G19)
- Assets (IRS master file)
- $96,202
- Income (IRS master file)
- $654,524
Revocation and reinstatement
- Exemption revoked
- May 15, 2017
- Posted by the IRS
- June 17, 2017
- Reinstated
- Effective May 15, 2017
From the IRS automatic revocation list: organizations that did not file a required return or e-Postcard for three consecutive years.
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | September 2025 | $651,742 | $686,815 | $96,202 | XML |
| 990 | September 2024 | $693,686 | $690,329 | $144,752 | XML |
| 990 | September 2023 | $859,633 | $724,538 | $168,906 | XML |
| 990 | September 2022 | $709,587 | $653,091 | $43,019 | IRS |
| 990 | September 2021 | – | – | – | IRS |
| 990 | September 2020 | – | – | – | IRS |
| 990-N for 2017 Officer: Jennifer Brea | December 31, 2017 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 47-4011296).
Questions about MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC
- What is the EIN of MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC?
- The employer identification number (EIN) of MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC is 47-4011296.
- Is MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC tax-exempt?
- Yes. The IRS revoked its exemption on May 15, 2017 and reinstated it effective May 15, 2017.
- Are donations to MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC due?
- The return for tax year 2025 (the year ending September 30, 2026) is due February 15, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended September 2025.
- Who is the principal officer of MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC?
- The 990 for the year ended September 30, 2025 names OMAR WASOW.
- Who are the officers and directors of MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC?
- The 990 for the year ended September 30, 2025 lists 9 people; 1 received compensation from the organization, the highest $75,450 (LAURIE JONES, EXECUTIVE DIRECTOR).
- How much revenue does MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC have?
- On its 990 for the year ended September 30, 2025 it reported revenue of $651,742, expenses of $686,815 and total assets of $96,202 at year end.
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