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Nonprofit · EIN 47-1643994

ANSWER ALS

Tax-exempt · NEW ORLEANS, LA 70124

Financials

$3.7M$2.9M2023$2.8M$3.2M2024
Revenue Expenses · by fiscal year end
Financials of ANSWER ALS by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$2,817,907$3,245,884-$427,977$7,362,169$464,664$6,897,505
December 31, 2023990$3,651,316$2,890,451$760,865$7,363,198$37,716$7,325,482
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$2,666,669
Program service revenue
$0
Investment income
$151,238
Other revenue
$0

Expenses

Grants and similar amounts paid
$2,621,161
Other salaries and wages
$62,000
Salaries, compensation and benefits (total)
$66,803
Professional fundraising fees
$0
Accounting fees
$21,965
Travel
$110,136
Depreciation
$1,708
Program services (functional)
$3,140,619
Management and general (functional)
$66,881
Fundraising (functional)
$38,384

Balance sheet and other

Total assets, start of year
$7,363,198
Total assets, end of year
$7,362,169
Total liabilities, end of year
$464,664
Net assets, end of year
$6,897,505
Land, buildings and equipment
$3,274
Net assets without donor restrictions
$5,916,553
Net assets with donor restrictions
$980,952
Gross receipts
$2,817,907
Employees
1
Volunteers
20
Year formed
2014
State of legal domicile
LA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
BEVERLY GOULETBOARD CHAIR
Trustee or director, Officer
1$0
CLARE DURRETTMANAGING DIRECTOR
Trustee or director, Officer
20$0
PAUL VARISCOBOARD MEMBER
Trustee or director, Officer
5$0
STEVE GLEASONBOARD MEMBER
Trustee or director
1$0
WILLIAM J QUINLAN JRBOARD MEMBER
Trustee or director
1$0
STEVE FINKBEINERBOARD MEMBER
Trustee or director
1$0
PAT QUINNBOARD MEMBER EMERITUS
Trustee or director
1$0
S MICHELLE FARRBOARD MEMBER
Trustee or director
1$0
ELIZABETH BRUCEBOARD MEMBER
Trustee or director
1$0
JOHN COSTELLOBOARD MEMBER
Trustee or director
1$0
COLLEEN STEPHENSCHIEF OF STAFF
Trustee or director
40$0
990 for the year ended December 31, 2023: 10 people
NameTitleHours / weekCompensation
BEVERLY GOULETCHAIRMAN
Trustee or director, Officer
1$0
CLARE DURRETTCO-DIRECTOR/MANAGING COORD
Trustee or director, Officer
20$0
PAUL VARISCODIRECTOR
Trustee or director, Officer
5$0
STEVE GLEASONBOARD MEMBER
Trustee or director
1$0
WILLIAM J QUINLAN JRBOARD MEMBER
Trustee or director
1$0
STEVE FINKBEINERBOARD MEMBER
Trustee or director
1$0
PAT QUINNBOARD MEMBER
Trustee or director
1$0
MICHELLE FARRBOARD MEMBER
Trustee or director
1$0
ELIZABETH BRUCEBOARD MEMBER
Trustee or director
1$0
JOHN COSTELLOBOARD MEMBER
Trustee or director
1$0

Address and contacts

Address (IRS master file)
930 ROBERT E LEE BLVD, NEW ORLEANS, LA 70124-4045
Mailing address (990-N for 2014)
ONE GALLERIA BLVD, METAIRIE LA 70001
Principal officer (990 for 2024)
CLARE DURRETT, 2021 LAKESHORE DRIVE SUITE 304, NEW ORLEANS, LA 70122
Principal officer (990-N for 2014)
PAUL VARISCO, ONE GALLERIA BLVD, METAIRIE LA 70001
Signed the 990
CLARE DURRETT, MANAGING COORDINATOR
Phone
(800) 490-2375
Return prepared by
HIENZ & MACALUSO LLC

Mission

TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS.

990 for the year ended December 31, 2024

Program accomplishments

  • CREATING THE LARGEST AND MOST COMPREHENSIVE FOUNDATION OF ALS DATA EVER AMASSED, ENCOMPANSING CLINICAL, CHEMICAL, GENETIC, PROTEIN, HISTORICAL AND BIOLOGICAL DATA FROM AN ENORMOUS SAMPLING OF ALS PATIENTS IN THE UNITED STATES. IN COLLABORATION WITH MACHINE LEARNING AND BIG DATA TECHNOLOGY, THE DATA WILL BE MINED TO UNCOVER ALS CAUSES, SUBTYPES, PATHWAYS GONE AWRY AND DRUG TARGETS. THIS WILL ESTABLISH A LARGE AND CRITICAL FOUNDATION FOR NEW CLINICAL TRIALS, DEVELOP NEW WAYS TO CATEGORIZE PATIENTS TO IDENTIFY SPECIFIC DRUGGABLE PATHWAYS AND SUBTYPE BIOMARKERS AND DISEASE PATHOPHYSIOLOGY TO AID NOT ONLY IN EARLY DIAGNOSIS OF THE DISEASE, BUT ALSO TO MONITOR THE EFFICACY OF NEWLY DEVELOPED TREATMENTS.
    Expenses $3,140,619 · grants $2,621,161

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
47-1643994
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2015
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$7,362,169
Income (IRS master file)
$2,817,907

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$2,817,907$3,245,884$7,362,169XML
990December 2023$3,651,316$2,890,451$7,363,198XML
990December 2022-$12,049$1,225,402$6,354,337IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2018–––IRS
990-N for 2014
Officer: PAUL VARISCO
December 31, 2014≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 47-1643994).

Questions about ANSWER ALS

What is the EIN of ANSWER ALS?
The employer identification number (EIN) of ANSWER ALS is 47-1643994.
Is ANSWER ALS tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2015.
Are donations to ANSWER ALS tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does ANSWER ALS file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of ANSWER ALS due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did ANSWER ALS last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of ANSWER ALS?
The 990 for the year ended December 31, 2024 names CLARE DURRETT.
Who are the officers and directors of ANSWER ALS?
The 990 for the year ended December 31, 2024 lists 11 people; 0 received compensation from the organization.
How much revenue does ANSWER ALS have?
On its 990 for the year ended December 31, 2024 it reported revenue of $2,817,907, expenses of $3,245,884 and total assets of $7,362,169 at year end.

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