Nonprofit · EIN 47-1094057
THE RYR-1 FOUNDATION
Tax-exempt · PITTSBURGH, PA 15243
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $681,990 | $384,333 | $297,657 | $2,731,932 | $25,105 | $2,706,827 |
| December 31, 2023 | 990 | $600,451 | $354,036 | $246,415 | $2,372,994 | $5,114 | $2,367,880 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $578,528
- Program service revenue
- $0
- Investment income
- $103,171
- Other revenue
- $291
Expenses
- Grants and similar amounts paid
- $125,420
- Other salaries and wages
- $159,973
- Salaries, compensation and benefits (total)
- $178,252
- Professional fundraising fees
- $0
- Legal fees
- $3,434
- Accounting fees
- $19,262
- Travel
- $1,482
- Program services (functional)
- $195,185
- Management and general (functional)
- $131,846
- Fundraising (functional)
- $57,302
Balance sheet and other
- Total assets, start of year
- $2,372,994
- Total assets, end of year
- $2,731,932
- Total liabilities, end of year
- $25,105
- Net assets, end of year
- $2,706,827
- Publicly traded securities
- $2,320,845
- Net assets without donor restrictions
- $2,106,153
- Net assets with donor restrictions
- $600,674
- Gross receipts
- $681,990
- Employees
- 5
- Volunteers
- 2
- Year formed
- 2014
- State of legal domicile
- PA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LINDSAY GOLDBERG | EXECUTIVE DIRECTOR AND PATIENT LIASION Officer | 20 | $42,332 |
| MICHAEL GOLDBERG | BOARD PRESIDENT Trustee or director, Officer | 5 | $0 |
| EMILY PEDERSEN | DIRECTOR Trustee or director | 1 | $0 |
| DONALD ZACK | DIRECTOR Trustee or director | 1 | $0 |
| SUSAN HAMILTON | DIRECTOR Trustee or director | 1 | $0 |
| BRYAN HEFT | DIRECTOR Trustee or director | 1 | $0 |
| ROBERT HANICH | DIRECTOR Trustee or director | 3 | $0 |
| JUSTIN C MCARTHUR | DIRECTOR Trustee or director | 1 | $0 |
| COURTNEY WOOMER | DIRECTOR Trustee or director | 2 | $0 |
| JENNIFER RYAN | BOARD VICE PRESIDENT AS OF MAY 2024 Trustee or director, Officer | 4 | $0 |
| RANDOLPH PEPPER | TREASURER Trustee or director, Officer | 5 | $0 |
| ANDREW HUSETH | SECRETARY Trustee or director, Officer | 2 | $0 |
| MICHAEL LEGUM | ASSISTANT TREASURER Trustee or director, Officer | 3 | $0 |
| MORTON GOLDBERG | PRIOR BOARD VICE PRES, RETIRED MAY 2024 Trustee or director, Officer | 1 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JOHN GALLO | EXECUTIVE DIRECTOR Officer | 40 | $41,150 |
| LINDSAY GOLDBERG | BUSINESS MANAGER Officer | 13 | $21,835 |
| MICHAEL GOLDBERG | BOARD PRESIDENT Trustee or director, Officer | 5 | $0 |
| MORTON GOLDBERG | BOARD VICE PRESIDENT Trustee or director, Officer | 5 | $0 |
| ANDREW HUSETH | SECRETARY Trustee or director, Officer | 3 | $0 |
| RANDOLPH PEPPER | TREASURER Trustee or director, Officer | 5 | $0 |
| MICHAEL LEGUM | ASSISTANT TREASURER Trustee or director, Officer | 3 | $0 |
| MYRNA GOLDBERG | DIRECTOR, RETIRED AS OF AUGUST 2023 Trustee or director | 1 | $0 |
| JENNIFER RYAN | DIRECTOR Trustee or director | 1 | $0 |
| EMILY PEDERSEN | DIRECTOR Trustee or director | 1 | $0 |
| DONALD ZACK | DIRECTOR Trustee or director | 1 | $0 |
| JUSTIN MCARTHUR | DIRECTOR Trustee or director | 1 | $0 |
| BRYAN HEFT | DIRECTOR Trustee or director | 1 | $0 |
| ROBERT HANICH | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 939 VALLEYVIEW RD, PITTSBURGH, PA 15243-1062
- Principal officer (990 for 2024)
- MICHAEL GOLDBERG, PO BOX 13312, PITTSBURGH, PA 15243
- Signed the 990
- MICHAEL GOLDBERG, BOARD PRESIDENT
- Phone
- (412) 223-7236
- Website
- WWW.RYR1.ORG
- Return prepared by
- GROSSMAN YANAK & FORD LLP
Mission
THE MISSION OF THE RYR-1 FOUNDATION IS TO SUPPORT RESEARCH LEADING TO AN EFFECTIVE TREATMENT OR A CURE FOR RYR-1-RELATED DISEASES THROUGH SUPPORTING RESEARCH, PROVIDING MEDICAL PROFESSIONAL EDUCATION, AND PATIENT & FAMILY SUPPORT AND ADVOCACY.
Program accomplishments
- RESEARCH GRANTS - THE FOUNDATION MAKES GRANTS TO RESEARCHERS INTERESTED IN RYR-1-RELATED DISEASES (RYR-1-RD). AS THE ONLY ORGANIZATION SOLELY DEDICATED TO RYR-1-RD, WE PROMOTE RESEARCH IN THIS AREA.Expenses $146,984 · grants $125,420
- RESEARCH WORKSHOP - THE PATIENT-LED INTERNATIONAL RESEARCH WORKSHOP IS DEVOTED EXCLUSIVELY TO RYR-1-RELATED DISEASES. THIS WORKSHOP PROVIDE A MUCH-NEEDED FORUM FOR THE LEADING INTERNATIONAL RYR-1-RD EXPERTS AND A GROUP OF AFFECTED INDIVIDUALS TO SHARE KNOWLEDGE, EXCHANGE IDEAS, FORM COLLABORATIONS, AND DEVELOP NEW STRATEGIES FOR FINDING THERAPIES. THE WORKSHOP ORGANIZING COMMITTEE INCLUDES A DIVERSE GROUP OF RESEARCHERS/CLINICIANS IN RYR-1-RD, MEMBERS OF THE RYR-1 FOUNDATION'S SAB, AND RYR-1-RD COMMUNITY REPRESENTATIVES.Expenses $2,564
- FAMILY CONFERENCE - THE ORGANIZATION PERIODICALLY HOSTS FAMILY CONFERENCES. THESE CONFERENCES ARE UNIQUE OPPORTUNITIES FOR AFFECTED INDIVIDUALS AND FAMILIES TO MEET PHYSICIANS AND SCIENTISTS WHO SPECIALIZE IN RYR-1-RD, LEARN ABOUT RYR-1-RD, FORM FRIENDSHIPS AND DEVELOP A TRUE RYR-1-RD COMMUNITY.Expenses $11,160
- Expenses $34,477 · revenue $291
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 47-1094057
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2017
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H99)
- Assets (IRS master file)
- $2,731,932
- Income (IRS master file)
- $681,990
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $681,990 | $384,333 | $2,731,932 | IRS |
| 990 | December 2023 | $600,451 | $354,036 | $2,372,994 | XML |
| 990 | December 2022 | $411,112 | $536,228 | $2,065,543 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 47-1094057).
Questions about THE RYR-1 FOUNDATION
- What is the EIN of THE RYR-1 FOUNDATION?
- The employer identification number (EIN) of THE RYR-1 FOUNDATION is 47-1094057.
- Is THE RYR-1 FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2017.
- Are donations to THE RYR-1 FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THE RYR-1 FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THE RYR-1 FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THE RYR-1 FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of THE RYR-1 FOUNDATION?
- The 990 for the year ended December 31, 2024 names MICHAEL GOLDBERG.
- Who are the officers and directors of THE RYR-1 FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 14 people; 1 received compensation from the organization, the highest $42,332 (LINDSAY GOLDBERG, EXECUTIVE DIRECTOR AND PATIENT LIASION).
- How much revenue does THE RYR-1 FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $681,990, expenses of $384,333 and total assets of $2,731,932 at year end.
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