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Nonprofit · EIN 46-4152355

CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE

Tax-exempt · WASHINGTON, DC 20036

Financials

$10.8M$11.5M2023$9.6M$10.6M2024
Revenue Expenses · by fiscal year end
Financials of CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$9,591,717$10,591,561-$999,844$17,393,639$5,695,149$11,698,490
December 31, 2023990$10,841,004$11,534,351-$693,347$17,407,019$4,708,685$12,698,334
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$876,245
of which government grants
$584,320
Program service revenue
$8,039,323
Investment income
$676,149
Other revenue
$0

Expenses

Grants and similar amounts paid
$1,917,390
Compensation of officers, directors and key employees
$204,376
Other salaries and wages
$1,570,438
Salaries, compensation and benefits (total)
$2,131,540
Professional fundraising fees
$0
Legal fees
$946
Accounting fees
$25,608
Travel
$18,794
Depreciation
$24,490
Program services (functional)
$9,067,925
Management and general (functional)
$1,228,724
Fundraising (functional)
$294,912

Balance sheet and other

Total assets, start of year
$17,407,019
Total assets, end of year
$17,393,639
Total liabilities, end of year
$5,695,149
Net assets, end of year
$11,698,490
Net assets without donor restrictions
$11,698,490
Gross receipts
$9,591,717
Employees
0
Volunteers
7
Year formed
2014
State of legal domicile
CA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensationOther / benefits
MATHIEU NELESSENCEO
Key employee
40$310,597$66,512
STACY ARDOIN MDPRESIDENT
Trustee or director, Officer
15$62,208$0
JAY MEHTA MD MSVICE PRESIDENT
Trustee or director, Officer
10$51,899$0
ROBERT COLBERT MD PHDPAST PRESIDENT
Trustee or director, Officer
10$35,000$0
EMILY VON SCHEVEN MD MASPAST PRESIDENT
Trustee or director, Officer
10$33,723$0
AIMEE HERSHFINANCE CHAIR
Trustee or director, Officer
10$21,546$0
CHRISTY SANDBORG MDCHAIR-SECRETARY
Trustee or director, Officer
3$0$0
CAROL WALLACE MDDIRECTOR
Trustee or director
1$0$0
HARRY SAAL PHDDIRECTOR
Trustee or director
1$0$0
LEIGH WHITE JDDIRECTOR
Trustee or director
1$0$0
DANIEL SOLOMON MD PHDDIRECTOR
Trustee or director
1$0$0
JOHN SUNDY MD PHDDIRECTOR
Trustee or director
1$0$0
ROBERT FUHLBRIGGE MD PHDDIRECTOR
Trustee or director
1$0$0
RICK GOULBURNDIRECTOR
Trustee or director
1$0$0
DIEGO MCDONALDDIRECTOR
Trustee or director
1$0$0
990 for the year ended December 31, 2023: 12 people
NameTitleHours / weekCompensationOther / benefits
MATHIEU NELESSENCEO
Key employee
40$308,104$55,080
STACY ARDOIN MDVICE PRESIDENT
Trustee or director, Officer
10$69,120$0
EMILY VON SCHEVEN MD MASPAST PRESIDENT
Trustee or director, Officer
10$67,446$0
JAY MEHTA MD MSTREASURER
Trustee or director, Officer
10$64,206$0
ROBERT COLBERT MD PHDPRESIDENT
Trustee or director, Officer
15$40,000$0
CHRISTY SANDBORG MDCHAIR-SECRETARY
Trustee or director, Officer
3$0$0
CAROL WALLACE MDDIRECTOR
Trustee or director
1$0$0
HARRY SAAL PHDDIRECTOR
Trustee or director
1$0$0
LEIGH WHITE JDDIRECTOR
Trustee or director
1$0$0
DANIEL SOLOMON MD PHDDIRECTOR
Trustee or director
1$0$0
JOHN SUNDY MD PHDDIRECTOR
Trustee or director
1$0$0
ROBERT FUHLBRIGGE MD PHDDIRECTOR
Trustee or director
1$0$0

Address and contacts

Address (IRS master file)
1050 CONNECTICUT AVE NW STE 500, WASHINGTON, DC 20036-5304
In care of
% MARK STURM
Principal officer (990 for 2024)
STACY ARDOIN MD, 1050 CONNECTICUT AVENUE NW 500, WASHINGTON, DC 20036
Signed the 990
AIMEE HERSH, FINANCE CHAIR
Phone
(202) 772-1028
Return prepared by
RITZ HOLMAN LLP

Mission

CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES.

990 for the year ended December 31, 2024

Program accomplishments

  • CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA) AND SLE (LUPUS). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES.
    Expenses $5,474,360 · revenue $6,165,974
  • ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS.
    Expenses $115,436 · revenue $50,400
  • GRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION.
    Expenses $1,917,390 · grants $1,917,390 · revenue $1,865,194
  • OTHER PROGRAM SERVICES: INFORMATICS/PROGRAMMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES.
    Expenses $1,560,739

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
46-4152355
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2014
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$17,393,639
Income (IRS master file)
$9,591,717

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$9,591,717$10,591,561$17,393,639XML
990December 2023$10,841,004$11,534,351$17,407,019XML
990December 2022$10,561,848$11,144,720$17,073,918IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2018–––IRS
990December 2017–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-4152355).

Questions about CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE

What is the EIN of CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE?
The employer identification number (EIN) of CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE is 46-4152355.
Is CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2014.
Are donations to CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE?
The 990 for the year ended December 31, 2024 names STACY ARDOIN MD.
Who are the officers and directors of CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE?
The 990 for the year ended December 31, 2024 lists 15 people; 6 received compensation from the organization, the highest $310,597 (MATHIEU NELESSEN, CEO).
How much revenue does CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE have?
On its 990 for the year ended December 31, 2024 it reported revenue of $9,591,717, expenses of $10,591,561 and total assets of $17,393,639 at year end.

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