Nonprofit · EIN 46-3208388
KOOLEN-DE VRIES SYNDROME FOUNDATION
Tax-exempt · WILMINGTON, NC 28409
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $381,306 | $220,301 | $161,005 | $734,526 | $0 | $734,526 |
| December 31, 2024 | 990 | $263,173 | $270,270 | -$7,097 | $573,519 | $0 | $573,519 |
| December 31, 2023 | 990 | $305,621 | $324,564 | -$18,943 | $580,616 | $0 | $580,616 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $324,099
- Program service revenue
- $52,020
- Investment income
- $5,187
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $9,500
- Travel
- $3,840
- Program services (functional)
- $193,273
- Management and general (functional)
- $18,746
- Fundraising (functional)
- $8,282
Balance sheet and other
- Total assets, start of year
- $573,519
- Total assets, end of year
- $734,526
- Total liabilities, end of year
- $0
- Net assets, end of year
- $734,526
- Net assets without donor restrictions
- $492,151
- Net assets with donor restrictions
- $242,375
- Gross receipts
- $381,306
- Employees
- 0
- Volunteers
- 0
- Year formed
- 2013
- State of legal domicile
- MO
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ALAYNA HAYNAM | BOARD MEMBER Trustee or director | 1 | $0 |
| ASHLEY POINT | PRESIDENT Trustee or director, Officer | 10 | $0 |
| CINDY ASBURY | BOARD MEMBER Trustee or director | 1 | $0 |
| EMILY LEMKE | BOARD MEMBER Trustee or director | 2 | $0 |
| GABRIEL STAGNER | TREASURER Trustee or director, Officer | 5 | $0 |
| JESSICA COLLIER | BOARD MEMBER Trustee or director | 5 | $0 |
| KACI FISHER | BOARD MEMBER Trustee or director | 5 | $0 |
| MARIA LUISA VALENTIN DE SOLIS | BOARD MEMBER Trustee or director | 1 | $0 |
| KATIE MAHER | BOARD MEMBER Trustee or director | 2 | $0 |
| MATT HOLCOMBE | BOARD MEMBER Trustee or director | 1 | $0 |
| MEGAN HARTWELL | BOARD MEMBER Trustee or director | 2 | $0 |
990 for the year ended December 31, 2024: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ALAYNA HAYNAM | BOARD MEMBER Trustee or director | 1 | $0 |
| ASHLEY POINT | PRESIDENT Trustee or director, Officer | 10 | $0 |
| CINDY ASBURY | BOARD MEMBER Trustee or director | 1 | $0 |
| EMILY LEMKE | BOARD MEMBER Trustee or director | 2 | $0 |
| GABRIEL STAGNER | TREASURER Trustee or director, Officer | 5 | $0 |
| JESSICA COLLIER | BOARD MEMBER Trustee or director | 5 | $0 |
| KACI FISHER | BOARD MEMBER Trustee or director | 5 | $0 |
| NEAL DERMERER | BOARD MEMBER Trustee or director | 1 | $0 |
| MARIA LUISA VALENTIN DE SOLIS | BOARD MEMBER Trustee or director | 1 | $0 |
| KATIE MAHER | BOARD MEMBER Trustee or director | 2 | $0 |
| MATT HOLCOMBE | BOARD MEMBER Trustee or director | 1 | $0 |
| MEGAN HARTWELL | BOARD MEMBER Trustee or director | 2 | $0 |
990 for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ALAYNA HAYNAM | VICE-PRESIDENT Trustee or director, Officer | 5 | $0 |
| ASHLEY POINT | PRESIDENT Trustee or director, Officer | 5 | $0 |
| CINDY ASBURY | BOARD MEMBER Trustee or director | 1 | $0 |
| EMILY LEMKE | BOARD MEMBER Trustee or director | 2 | $0 |
| GABRIEL STAGNER | TREASURER Trustee or director, Officer | 5 | $0 |
| JESSICA COLLIER | BOARD MEMBER Trustee or director | 2 | $0 |
| KACI FISHER | BOARD MEMBER Trustee or director | 5 | $0 |
| NEAL DERMERER | BOARD MEMBER Trustee or director | 1 | $0 |
| MARIA LUISA VALENTIN DE SOLIS | BOARD MEMBER Trustee or director | 1 | $0 |
| KATIE MAHER | BOARD MEMBER Trustee or director | 2 | $0 |
| MATT HOLCOMBE | BOARD MEMBER Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 609A PINER ROAD 319, WILMINGTON, NC 28409-4201
- In care of
- % ANDY SPEIRS
- Mailing address (990-N for 2017)
- PO BOX 470218, FORT WORTH TX 76147
- Principal officer (990 for 2025)
- GABRIEL STAGNER, 609A PINER ROAD SUITE 319, WILMINGTON, NC 28409
- Principal officer (990-N for 2017)
- PATTY TIBERG, PO BOX 470218, FORT WORTH TX 76147
- Signed the 990
- GABRIEL STAGNER, TREASURER
- Phone
- (833) 731-5387
- Website
- KDVSFOUNDATION.ORG
- Return prepared by
- MRM TAX AND CONSULTING LLC
Mission
THE KOOLEN-DE VRIES SYNDROME FOUNDATION IS AN INTERNATIONAL GROUP THAT SUPPORTS, INFORMS, AND NETWORKS WITH ANYONE AFFECTED BY KOOLEN-DE VRIES SYNDROME (KDVS) AND WITH ANY INTERESTED PROFESSIONALS. THE FOUNDATION'S ACTIVITIES INCLUDE SOCIAL (CONTINUED ON SCHEDULE O) GATHERINGS, PATIENT ADVOCACY SUMMITS, SUPPORTING RESEARCH, AND PROVIDING INFORMATION REGARDING KDVS TO BOTH THE GENERAL POPULATION AND MEDICAL PROFESSIONALS.
Program accomplishments
- PROMOTING RESEARCH OF KDVS IN FIELDS INCLUDING CLINICAL, DRUG THERAPY, SPEECH THERAPY, AND EPILEPSY.Expenses $19,617
- PROVIDING PATIENT ADVOCACY SUMMITS AND SOCIAL GATHERING EVENTS FOR THE KDVS COMMUNITY AND INTERESTED MEDICAL PROFESSIONALS.Expenses $155,944 · revenue $52,020
- INCREASING AWARENESS OF KDVS IN BOTH THE GENERAL POPULATION AND MEDICAL PROFESSION.Expenses $17,712
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 46-3208388
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2013
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $734,526
- Income (IRS master file)
- $381,306
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $381,306 | $220,301 | $734,526 | XML |
| 990 | December 2024 | $263,173 | $270,270 | $573,519 | XML |
| 990 | December 2023 | $305,621 | $324,564 | $580,616 | XML |
| 990 | December 2022 | $237,465 | $41,563 | $599,559 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-N for 2017 Officer: PATTY TIBERG | December 31, 2017 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-3208388).
Questions about KOOLEN-DE VRIES SYNDROME FOUNDATION
- What is the EIN of KOOLEN-DE VRIES SYNDROME FOUNDATION?
- The employer identification number (EIN) of KOOLEN-DE VRIES SYNDROME FOUNDATION is 46-3208388.
- Is KOOLEN-DE VRIES SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2013.
- Are donations to KOOLEN-DE VRIES SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does KOOLEN-DE VRIES SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of KOOLEN-DE VRIES SYNDROME FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did KOOLEN-DE VRIES SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of KOOLEN-DE VRIES SYNDROME FOUNDATION?
- The 990 for the year ended December 31, 2025 names GABRIEL STAGNER.
- Who are the officers and directors of KOOLEN-DE VRIES SYNDROME FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 11 people; 0 received compensation from the organization.
- How much revenue does KOOLEN-DE VRIES SYNDROME FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $381,306, expenses of $220,301 and total assets of $734,526 at year end.
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All nonprofits in WILMINGTON · North Carolina · Voluntary health associations and medical disciplines