Nonprofit · EIN 46-2699066
CUTE SYNDROME FOUNDATION INC
Tax-exempt · OZARK, MO 65721
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $365,290 | $424,115 | -$58,825 | $176,654 | $3,773 | $172,881 |
| December 31, 2023 | 990 | $439,635 | $421,951 | $17,684 | $307,586 | $6,356 | $301,230 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $357,095
- Program service revenue
- $0
- Investment income
- $7,151
- Net income from fundraising events
- $1,044
- Other revenue
- $1,044
Expenses
- Grants and similar amounts paid
- $87,951
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $2,325
- Travel
- $16,387
- Depreciation
- $781
- Program services (functional)
- $385,323
- Management and general (functional)
- $12,307
- Fundraising (functional)
- $26,485
Balance sheet and other
- Total assets, start of year
- $307,586
- Total assets, end of year
- $176,654
- Total liabilities, end of year
- $3,773
- Net assets, end of year
- $172,881
- Land, buildings and equipment
- $221
- Net assets without donor restrictions
- $172,881
- Gross receipts
- $391,840
- Employees
- 0
- Volunteers
- 23
- Year formed
- 2013
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KACIE CRAIG | EXECUTIVE DIRECTOR Officer | 40 | $75,000 |
| HILLARY SAVOIE | PRESIDENT Trustee or director, Officer | 0.5 | $0 |
| PHILIP GITLEN | VICE CHAIR Trustee or director, Officer | 1 | $0 |
| RYAN PITINO | TREASURER Trustee or director, Officer | 1 | $0 |
| MARIANNE SUTCLIFFE | SECRETARY Trustee or director, Officer | 5 | $0 |
| LAN ARONSON | DIRECTOR Trustee or director | 0.5 | $0 |
990 for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ALAN ARONSON | DIRECTOR Officer | – | $0 |
| KACIE CRAIG | DIRECTOR Officer | – | $0 |
| PHILIP GITLEN | BOARD CHAIR Officer | – | $0 |
| RYAN PITINO | TREASURER Officer | – | $0 |
| HILLARY SAVOIE | PRESIDENT Officer | – | $0 |
| MARIANNE SUTCLIFFE | SECRETARY Officer | – | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 842, OZARK, MO 65721-0842
- In care of
- % HILLARY L SAVOIE
- Mailing address (990-N for 2018)
- 1 Meadowbrook Lane, Troy NY 12180
- Principal officer (990 for 2024)
- HILLARY SAVOIE, 1 MEADOWBROOK LANE, TROY, NY 12180
- Principal officer (990-N for 2018)
- Hillary L Savoie, 1 Meadowbrook Lane, Troy NY 12180
- Signed the 990
- KACIE CRAIG, EXECUTIVE DIRECTOR
- Phone
- (417) 848-6203
- Website
- WWW.THECUTESYNDROME.COM
- Return prepared by
- BRYANS & GRAMUGLIA CPAS LLC
Mission
OUR MISSION IS TO RAISE AWARENESS OF SCN8A MUTATIONS, FUND THE THE SCIENTISTS RESEARCHING SCN8A, AND SUPPORT THE FAMILIES WHO ARE AFFECTED BY SCN8A.
Program accomplishments
- SUPPORT FOR FAMILIES AFFECTED BY SCN8A.Expenses $323,510 · grants $87,951
- SUPPORT FOR SCIENTISTS RESEARCHING SCN8A AND RAISING PUBLIC AWARENESS OF THIS GENE MUTATION.Expenses $61,813
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 46-2699066
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2014
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H125)
- Assets (IRS master file)
- $176,654
- Income (IRS master file)
- $391,840
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $365,290 | $424,115 | $176,654 | IRS |
| 990 | December 2023 | $439,635 | $421,951 | $307,586 | XML |
| 990 | December 2022 | $352,644 | $290,563 | $289,587 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-N for 2018 Officer: Hillary L Savoie | December 31, 2018 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-2699066).
Questions about CUTE SYNDROME FOUNDATION INC
- What is the EIN of CUTE SYNDROME FOUNDATION INC?
- The employer identification number (EIN) of CUTE SYNDROME FOUNDATION INC is 46-2699066.
- Is CUTE SYNDROME FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2014.
- Are donations to CUTE SYNDROME FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CUTE SYNDROME FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CUTE SYNDROME FOUNDATION INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CUTE SYNDROME FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of CUTE SYNDROME FOUNDATION INC?
- The 990 for the year ended December 31, 2024 names HILLARY SAVOIE.
- Who are the officers and directors of CUTE SYNDROME FOUNDATION INC?
- The 990 for the year ended December 31, 2024 lists 6 people; 1 received compensation from the organization, the highest $75,000 (KACIE CRAIG, EXECUTIVE DIRECTOR).
- How much revenue does CUTE SYNDROME FOUNDATION INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $365,290, expenses of $424,115 and total assets of $176,654 at year end.
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