Nonprofit · EIN 46-1871620
NOONAN SYNDROME FOUNDATION
Also known as RASOPATHIES FOUNDATION
Tax-exempt · BLUE SPRINGS, MO 64014
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-EZ | $63,977 | $142,841 | -$78,864 | $208,010 | $0 | $208,010 |
| December 31, 2023 | 990-EZ | $38,578 | $18,770 | $19,808 | $286,874 | $0 | $286,874 |
Financial details: 990-EZ for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $23,303
- Program service revenue
- $31,191
- Investment income
- $0
- Net income from fundraising events
- $9,481
- Other revenue
- $2
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Occupancy
- $5,556
- Printing, publications and postage
- $1,339
- Other expenses
- $135,946
- Program services (functional)
- $142,842
Balance sheet and other
- Total assets, start of year
- $286,874
- Total assets, end of year
- $208,010
- Total liabilities, end of year
- $0
- Net assets, end of year
- $208,010
- Cash, savings and investments
- $208,010
- Gross receipts
- $67,792
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Amanda Brown | Treasurer | 20 | $0 |
| Cari Conant | Vice President | 5 | $0 |
| Tammy Bowers | President | 5 | $0 |
| Cory Renshaw | Secretary | 5 | $0 |
| Krystal Steen | Board Member | 5 | $0 |
| Lindsay Homan | Board member | 5 | $0 |
| Tammy Bowers | Board Member | 5 | $0 |
990-EZ for the year ended December 31, 2023: 7 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Amanda Brown | President | 15 | $0 |
| Cari Conant | Vice President | 15 | $0 |
| Eddie Sierra | Treasurer | 15 | $0 |
| Cory Renshaw | Secretary | 15 | $0 |
| Krystal Steen | Board Member | 10 | $0 |
| Lindsay Homan | Board member | 10 | $0 |
| Tammy Bowers | Board Member | 15 | $0 |
Address and contacts
- Address (IRS master file)
- 605 US HIGHWAY 40 STE 277, BLUE SPRINGS, MO 64014-3232
- Signed the 990-EZ
- Amanda Brown, President
- Phone
- (866) 875-8928
- Website
- www.teamnoonan.org
Mission
The mission of the Noonan Syndrome Foundation is to support, educate and advocate for those diagnosed with Noonan's Syndrome by supporting research for the development of effective treatments, and ultimately, a cure for the syndrome. Noonan's Syndrome is identified by a genetic mutation in the RAS/MAPK pathway and is expressed in many ways, over numerous systems in patients. The Noonan Syndrome Foundation supports patients and families by providing information online and in regular publications, holding regional events, conferences and support groups. Connecting patients and families to caregivers familiar with Noonan Syndrome is of the utmost importance ot the Foundation as well. Another goal is to increase public awareness of Noonan Syndrome to allow for accurate diagnosis by medical providers and to allow for those not affected by the syndrome to understand the challenges of those affected and to increase financial support
Program accomplishments
- We have an online support group with over 9000 participants. We host a biennial family conference on even numbered years with over 220 registrants.
- 2024 Noonan Syndrome foundation family conference. We hosted a meeting where we brought medical professionals familiar with NS to families to educate them and to offer support to each other. There were 275 attendees.Expenses $142,842
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 46-1871620
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2013
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E03)
- Assets (IRS master file)
- $208,010
- Income (IRS master file)
- $67,792
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2024 | $63,977 | $142,841 | $208,010 | IRS |
| 990-EZ | December 2023 | $38,578 | $18,770 | $286,874 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-1871620).
Questions about NOONAN SYNDROME FOUNDATION
- What is the EIN of NOONAN SYNDROME FOUNDATION?
- The employer identification number (EIN) of NOONAN SYNDROME FOUNDATION is 46-1871620.
- Is NOONAN SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2013.
- Are donations to NOONAN SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NOONAN SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NOONAN SYNDROME FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NOONAN SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2024.
- Who are the officers and directors of NOONAN SYNDROME FOUNDATION?
- The 990-EZ for the year ended December 31, 2024 lists 7 people; 0 received compensation from the organization.
- How much revenue does NOONAN SYNDROME FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2024 it reported revenue of $63,977, expenses of $142,841 and total assets of $208,010 at year end.
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