Nonprofit · EIN 46-1584730
AUTOIMMUNE ENCEPHALITIS ALLIANCE INC
Tax-exempt · DURHAM, NC 27705
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $150,758 | $185,778 | -$35,020 | $70,579 | $0 | $70,579 |
| December 31, 2024 | 990-EZ | $145,321 | $186,503 | -$41,182 | $105,828 | $229 | $105,599 |
| December 31, 2023 | 990 | $143,916 | $190,779 | -$46,863 | $147,393 | $737 | $146,656 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $150,758
Expenses
- Grants and similar amounts paid
- $10,000
- Compensation of officers, directors and key employees
- $93,255
- Salaries, compensation and benefits (total)
- $108,580
- Professional fees and payments to contractors
- $5,158
- Printing, publications and postage
- $1,198
- Other expenses
- $60,842
- Program services (functional)
- $150,571
Balance sheet and other
- Total assets, start of year
- $105,828
- Total assets, end of year
- $70,579
- Total liabilities, end of year
- $0
- Net assets, end of year
- $70,579
- Cash, savings and investments
- $56,551
- Gross receipts
- $150,758
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARGARET POE | EXECUTIVE DIRECTOR | 40 | $93,255 | $15,325 |
| STANLEY NAIDES | CHAIR | 2 | $0 | $0 |
| JACQUELINE MCCLAIN | SECRETARY | 2 | $0 | $0 |
| CATERRI WOODRUM | TREASURER | 3 | $0 | $0 |
| STACY CLARDY | DIRECTOR | 1 | $0 | $0 |
| WILLIAM BILL GAVIGAN | DIRECTOR (TO FEB 2025) | 1 | $0 | $0 |
| EKEMINI OBGU | DIRECTOR | 1 | $0 | $0 |
| AMANDA PIQUET | DIRECTOR & MAB LEADER | 1 | $0 | $0 |
| MARLENE RIFKIN | DIRECTOR | 1 | $0 | $0 |
| HEATHER VAN MATER | DIRECTOR & MAB LEADER (TO FEB 2025) | 1 | $0 | $0 |
| ANUSHA YESHOKUMAR | DIRECTOR & MAB LEADER (TO FEB 2025) | 1 | $0 | $0 |
990-EZ for the year ended December 31, 2024: 9 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARGARET POE | PROGRAM DIRECTOR | 40 | $86,796 | $13,946 |
| STANLEY NAIDES | CHAIR | 2 | $0 | $0 |
| JACQUELINE MCCLAIN | SECRETARY | 2 | $0 | $0 |
| CATERRI WOODRUM | TREASURER | 3 | $0 | $0 |
| WILLIAM BILL GAVIGAN | DIRECTOR | 1 | $0 | $0 |
| AMANDA PIQUET | DIRECTOR | 1 | $0 | $0 |
| MARLENE RIFKIN | DIRECTOR | 1 | $0 | $0 |
| HEATHER VAN MATER | DIRECTOR & MAB LEADER | 1 | $0 | $0 |
| ANUSHA YESHOKUMAR | DIRECTOR & MAB LEADER | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARGARET POE | PROGRAM DIRECTOR Officer | 40 | $79,130 | $11,487 |
| ED ARDITTE | DIRECTOR (TO 3/23) Trustee or director | 1 | $0 | $0 |
| AARON DEWEES | DIRECTOR (TO 11/23) Trustee or director | 1 | $0 | $0 |
| WILLIAM C MCDOW III | DIRECTOR (TO 4/23) Trustee or director | 1 | $0 | $0 |
| STANLEY NAIDES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| HEATHER VAN MATER | DIRECTOR & MAB LEADER Trustee or director | 1 | $0 | $0 |
| ANUSHA YESHOKUMAR | DIRECTOR & MAB LEADER Trustee or director | 1 | $0 | $0 |
| WILLIAM BILL GAVIGAN | CHAIR Trustee or director, Officer | 3 | $0 | $0 |
| MARLENE RIFKIN | DIRECTOR / SEC (TO 6/23) Trustee or director, Officer | 1 | $0 | $0 |
| CATERRI WOODRUM | TREASURER Trustee or director, Officer | 3 | $0 | $0 |
| JACQUELINE MCCLAIN | DIRECTOR (FR 2/23)/ SEC (FR 7/23) Trustee or director, Officer | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 811 9TH STREET SUITE 120101, DURHAM, NC 27705-4149
- Signed the 990-EZ
- CATERRI WOODRUM, TREASURER
- Phone
- (919) 602-1484
- Website
- WWW.AEALLIANCE.ORG
- Return prepared by
- BLACKMAN & SLOOP ADVISORS INC
Mission
TO SUPPORT ALL MEMBERS OF THE AE COMMUNITY SO NO ONE FACES AE ALONE.
Program accomplishments
- PROGRAM 1: PHYSICIAN SUPPORT AND EDUCATIONTHE AUTOIMMUNE ENCEPHALITIS ALLIANCE (AEA) MEDICAL ADVISORY BOARD PROVIDES GUIDANCE TO THE AEA'S PROGRAMS SUPPORTING PHYSICIAN EDUCATION, RESEARCH, AND CLINICAL CARE. THE MEDICAL ADVISORY BOARD (MAB) INCLUDES RENOWNED EXPERTS ON AUTOIMMUNE ENCEPHALITIS (AE) FROM A VARIETY OF KEY DISCIPLINES - NEUROLOGY, RHEUMATOLOGY, AND PSYCHIATRY AND FOCUSES SPECIFICALLY ON CLINICAL CARE AND RESEARCH EFFORTS TO THE AE COMMUNITY. IN ADDITION TO THE MAB, THE AEA'S CLINICIANS NETWORK CONTINUES TO BE A PREMIER SOURCE WORLDWIDE FOR PATIENTS AND CAREGIVERS SEEKING PHYSICIANS WHO HAVE EXPERIENCE TREATING AE. THE PHYSICIANS IN OUR CLINICIANS NETWORK INCLUDE EXPERTS IN THE FIELD OF AUTOIMMUNE ENCEPHALITIS, AND FREQUENTLY PARTICIPATE IN RESEARCH, CONDUCT CLINICAL TRIAL STUDIES, AND SPEAK IN NATIONAL FORUMS ABOUT THIS RARE DISEASE. THE NETWORK IS THE LARGEST NATIONAL REGISTRY OF PHYSICIANS TREATING AE - A TOTAL OF 401 CLINICIANS PARTICIPATING BY 2025 YEAR END.THE AEA PROVIDER EDUCATION SERIES CONTINUES TO PROVIDE ENGAGING DIDACTIC PRESENTATIONS AND INTERACTIVE DISCUSSIONS TO MEMBERS OF THE AEA CLINICIANS NETWORK, THE AEA MEDICAL ADVISORY BOARD AND NEUROIMMUNOLOGY FELLOWSHIP PROGRAMS. EXPERTS IN THE FIELD OF AE VOLUNTEER TO PRESENT FROM THEIR AREAS OF EXPERTISE. THE HOUR IS DEEP DIVE INTO EXPERT KNOWLEDGE AND EXPERIENCE IN THE FIELD OF AUTOIMMUNE ENCEPHALITIS AS WELL AS AN OPPORTUNITY FOR FELLOW PROFESSIONALS TO CONNECT, SHARE INSIGHTS, AND LEARN FROM REAL-LIFE CASES. IT IS AN EXCELLENT OPPORTUNITY TO ENHANCE KNOWLEDGE, NETWORK WITH LIKE-MINDED INDIVIDUALS AND BUILD A STRONGER AE COMMUNITY OF MEDICAL EXPERTS.WHILE THIS IS A PROVIDER ONLY SESSION, ALLOWING THE COMPLETE COMPLICATED NATURE OF THESE CONDITIONS TO BE FULLY DISCUSSED, THE DIDACTIC PORTION IS RECORDED AND SHARED ON THE AEA WEBSITE FOR THE ENTIRE AEA COMMUNITY TO MEET DOCTORS AND LEARN THE MOST CURRENT AE INFORMATION. (NOTE: THE DISCUSSION PORTION IS NOT RECORDED.)DURING 2025, THE AEA OFFERED SEVEN PROVIDER EDUCATION SESSIONS, WITH 236 REGISTRANTS FROM 18 COUNTRIES. (NOTE: IN JUNE 2025, WE BEGAN POSTING RECORDED SESSIONS ON THE AEA YOUTUBE PAGE. CURRENTLY, NINE VIDEOS HAVE RECEIVED A TOTAL OF 1564 VIEWS.)IN 2025, THE AEA PARTNERED WITH PHYSICIAN EXPERTS FROM THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO TO SPONSOR A DINNER AND DISCUSSION AT THE 2025 ANNUAL AMERICAN ACADEMY OF NEUROLOGY MEETING IN SAN DIEGO, CA. THE EVENT ENTITLED "REFLECTIONS ON AUTOIMMUNE ENCEPHALITIS AND ADVANCES IN THE FIELD" INCLUDED PRESENTATIONS FROM 5 RESEARCHERS FROM THE US AND THE NETHERLANDS. THE EVENING ALLOWED OVER 125 ATTENDEES FROM 15 COUNTRIES TO LEARN FROM EACH OTHER AND CREATE NEW RELATIONSHIPS.Expenses $61,869
- PROGRAM 2: RESEARCH - AEA EDWARD ARDITTE COMMUNITY SEED GRANT PROGRAMTHE AEA EDWARD ARDITTE COMMUNITY SEED GRANT PROGRAM RECEIVED 17 APPLICATIONS FROM 7 COUNTRIES IN 2025. AFTER A RIGOROUS REVIEW, THE AEA MAB RESEARCH COMMITTEE PROPOSED A SINGLE APPLICATION TO THE AEA BOARD OF DIRECTORS FOR FUNDING AND APPROVAL. THE PROPOSED PROJECT WAS APPROVED AND FUNDED FOR $10,000. THE PROJECT HAS DIRECT IMPLICATIONS FOR PATIENTS AND FAMILIES LIVING WITH AE. IN MAY OF 2025 THE AEA CONTINUED ITS SIGNATURE FUNDRAISING EFFORT, RESEARCH NETWORK, TO FUND THE AEA EDWARD ARDITTE COMMUNITY SEED GRANT PROGRAM FOR AE RESEARCH. CONTRIBUTIONS RAISED IN 2025 AS WELL AS RECURRING RESEARCH CONTRIBUTION COMMITMENTS THROUGH JUNE 2026 WILL GO TO FUND THE 2026 SEED GRANT AWARDS CHOSEN IN JUNE.Expenses $20,342 · grants $10,000
- PROGRAM 3: PATIENT SUPPORT, DISEASE AWARENESS AND ADVOCACYIN 2025, 69 SUPPORT GROUPS WERE OFFERED VIA ZOOM TO SUPPORT THE AE COMMUNITY WITH A TOTAL OF 613 ATTENDEES AND 123 UNIQUE INDIVIDUALS. TWO COMMUNITY SUPPORT GROUPS ARE OFFERED EACH MONTH AND FOUR AUDIENCE SPECIFIC GROUPS - PARTNERS, INDIVIDUALS WITH AE, CAREGIVERS ONLY AND BEGINNING AGAIN WITH AE. THE AUDIENCE SPECIFIC GROUPS ALLOW PARTICIPANTS TO SHARE MORE COMPLETELY AND OPENLY THE PERSONAL EXPERIENCES AND CHALLENGES UNIQUE TO THEIR SPECIFIC GROUP TYPE. ALL FIVE SUPPORT GROUPS ARE PEER-LED BY TEN VOLUNTEERS. EACH VOLUNTEER IS EITHER DIAGNOSED WITH AE OR A CAREGIVER. THESE 5 TYPES OF SUPPORT GROUPS MEET A TOTAL OF 6-7 TIMES PER MONTH AND ALLOW PEOPLE LIVING WITH AE TO NOT ONLY SHARE ABOUT THE RARE DISEASE IMPACTING THEIR LIVES BUT ALSO PROVIDE A PLACE THAT NO ONE HAS TO EXPLAIN AND QUESTION IF ANYONE UNDERSTANDS. THESE GROUPS SERVE AS A DISCUSSION LABORATORY FOR THE DEVELOPMENT OF FUTURE LIVING WITH AE PROGRAMS.AS A RARE DISEASE PATIENT ORGANIZATION, THE AEA PARTNERS WITH PHARMACEUTICAL ORGANIZATIONS AND DIAGNOSTIC LABORATORIES COMMITTED TO IMPROVING SOLUTIONS FOR DIAGNOSIS AND TREATMENT OF AUTOIMMUNE ENCEPHALITIS. THESE RELATIONSHIPS ARE CRITICAL FOR COMMUNICATION, EDUCATION AND RELATIONSHIP BUILDING BETWEEN THE SCIENTISTS, RESEARCHERS, BUSINESS PROFESSIONALS, ETC. AND THE PATIENTS AND FAMILY MEMBERS LIVING WITH AE. SINCE 2020, THE AEA HAS PARTNERED WITH ONE OF THESE KEY ORGANIZATIONS AS PART OF A GLOBAL COLLECTIVE OF FIVE LIKE-MINDED RARE NEUROIMMUNE PATIENT ADVOCACY GROUPS TO SHARE EXPERIENCES AND CHALLENGES, IDENTIFY OPPORTUNITIES FOR IMPROVING PATIENT CARE AND DISCOVER OPPORTUNITIES FOR COLLABORATION TO BENEFIT ALL RARE NEUROIMMUNE CONDITIONS. IN 2025, THE INSPIRE COLLECTIVE COMMITTED TO DEVELOPING THE FUTURE GENERATION OF RARE DISEASE ADVOCATES. TOGETHER, WE PLANNED AND LAUNCHED THE INSPIRE YOUTH COUNCIL WITH THE AIM TO INSPIRE AND TRAIN THE NEXT GENERATION OF ADVOCATES TO IMPROVE FUTURE HEALTH OUTCOMES FOR PEOPLE WITH RARE NEUROIMMUNE CONDITIONS. IN 2025, FOUR PATIENT ADVOCACY GROUPS PARTNERED TO OFFER THE WORLD ENCEPHALITIS DAY ALLIANCE (WEDA) CONFERENCE, AN IN-PERSON EVENT HONORING WORLD ENCEPHALITIS DAY. APPROXIMATELY, 80 PEOPLE WITH ENCEPHALITIS AND THEIR FAMILIES JOINED TOGETHER FOR THE 2-DAY CONFERENCE TO LEARN FROM EXPERTS IN ENCEPHALITIS PHYSICIANS, RESEARCHERS AND INDIVIDUALS AND FAMILIES WITH LIVED EXPERIENCE. WE WERE GRATEFUL TO THE MAYO CLINIC -JACKSONVILLE FOR HOSTING THE EVENT. OUR LONG-TERM GOAL FOR THE 'AE ON THE HILL' PROGRAM IS TO EMPOWER THE AE COMMUNITY TO ADVOCATE FOR THEMSELVES AND THEIR FAMILIES AT THE LOCAL, STATE, AND FEDERAL LEVELS TO IMPROVE THE LIVES OF ALL THOSE AFFECTED BY AUTOIMMUNE ENCEPHALITIS. IN 2025, THE AEA CONTINUED WORKING TOWARD THAT GOAL THROUGH PATIENT AND CAREGIVER STORY TELLING. WHILE THE GROUNDWORK FOR THIS PROGRAM WAS COMPLETED IN 2024, THE AE STORYTELLING LIBRARY CAME TO LIFE IN 2025. FOUR PILOT VIDEOS WERE PUBLISHED ON THE AEA WEBSITE AND YOUTUBE CHANNEL AND HAVE RECEIVED ALMOST 2000 VIEWS.Expenses $68,360
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 46-1584730
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2013
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G99)
- Assets (IRS master file)
- $70,579
- Income (IRS master file)
- $150,758
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $150,758 | $185,778 | $70,579 | IRS |
| 990-EZ | December 2024 | $145,321 | $186,503 | $105,828 | IRS |
| 990 | December 2023 | $143,916 | $190,779 | $147,393 | XML |
| 990 | December 2022 | $217,693 | $184,340 | $193,519 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-1584730).
Questions about AUTOIMMUNE ENCEPHALITIS ALLIANCE INC
- What is the EIN of AUTOIMMUNE ENCEPHALITIS ALLIANCE INC?
- The employer identification number (EIN) of AUTOIMMUNE ENCEPHALITIS ALLIANCE INC is 46-1584730.
- Is AUTOIMMUNE ENCEPHALITIS ALLIANCE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2013.
- Are donations to AUTOIMMUNE ENCEPHALITIS ALLIANCE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does AUTOIMMUNE ENCEPHALITIS ALLIANCE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of AUTOIMMUNE ENCEPHALITIS ALLIANCE INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did AUTOIMMUNE ENCEPHALITIS ALLIANCE INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of AUTOIMMUNE ENCEPHALITIS ALLIANCE INC?
- The 990-EZ for the year ended December 31, 2025 lists 11 people; 1 received compensation from the organization, the highest $93,255 (MARGARET POE, EXECUTIVE DIRECTOR).
- How much revenue does AUTOIMMUNE ENCEPHALITIS ALLIANCE INC have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $150,758, expenses of $185,778 and total assets of $70,579 at year end.
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