Nonprofit · EIN 45-5437249
DYSAUTONOMIA INTERNATIONAL INC
Also known as DYSAUTONOMIA INTERNATIONAL
Tax-exempt (reinstated) · EAST MORICHES, NY 11940
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $1,111,068 | $1,215,256 | -$104,188 | $2,744,118 | $141,718 | $2,602,400 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $874,033
- Program service revenue
- $159,245
- Investment income
- $96,769
- Net income from fundraising events
- -$18,979
- Other revenue
- -$18,979
Expenses
- Grants and similar amounts paid
- $110,825
- Compensation of officers, directors and key employees
- $134,885
- Other salaries and wages
- $393,967
- Salaries, compensation and benefits (total)
- $581,262
- Professional fundraising fees
- $0
- Legal fees
- $5,442
- Accounting fees
- $17,470
- Occupancy
- $20,239
- Travel
- $34,303
- Depreciation
- $1,518
- Program services (functional)
- $1,052,265
- Management and general (functional)
- $11,304
- Fundraising (functional)
- $151,687
Balance sheet and other
- Total assets, start of year
- $2,754,023
- Total assets, end of year
- $2,744,118
- Total liabilities, end of year
- $141,718
- Net assets, end of year
- $2,602,400
- Land, buildings and equipment
- $1,804
- Publicly traded securities
- $23,640
- Net assets without donor restrictions
- $2,108,122
- Net assets with donor restrictions
- $494,278
- Gross receipts
- $1,130,047
- Employees
- 10
- Volunteers
- 300
- Year formed
- 2012
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LAUREN STILES JD | President & CEO Trustee or director, Officer | 70 | $134,885 |
| AMY KOHUT JD | Director Trustee or director | 2 | $0 |
| LIZA FISHER MBA | Secretary Trustee or director, Officer | 2 | $0 |
| JACQUELINE RUTTER GULLY | Vice President Trustee or director, Officer | 10 | $0 |
| IRENE COLLINS | Director Trustee or director | 2 | $0 |
| SHANNON KOPLITZ | Treasurer & CFO Trustee or director, Officer | 10 | $0 |
| SALVATORE DESENA MD | Director Trustee or director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 67 WOODLAWN AVE, EAST MORICHES, NY 11940-1535
- Principal officer (990 for 2024)
- SHANNON KOPLITZ, PO BOX 596, EAST MORICHES, NY 11940
- Signed the 990
- SHANNON KOPLITZ, Treasurer
- Phone
- (631) 202-1720
- Return prepared by
- SABEL & OPLINGER CPA PC
Mission
To increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research.
Program accomplishments
- Conferences to educate patients, caregivers and medicalprofessionals on dysautonomia conditions, treatments and research.Expenses $273,241 · revenue $78,513
- Advocacy Initiatives - Patient Support and Empowerment programs.Expenses $254,384
- Providing research funding for projects at major University Research Centers.Expenses $214,012 · grants $110,825
- Clinician education.Expenses $188,780 · revenue $80,746
- Dysautonomia Awareness promotion, hosting events in cities across the country and lighting monuments and landmarks.Expenses $121,848
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 45-5437249
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2018
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G19)
- Assets (IRS master file)
- $2,744,118
- Income (IRS master file)
- $1,130,047
Revocation and reinstatement
- Exemption revoked
- May 15, 2017
- Posted by the IRS
- February 12, 2018
- Reinstated
- Effective May 15, 2017
From the IRS automatic revocation list: organizations that did not file a required return or e-Postcard for three consecutive years.
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | – | – | – | IRS |
| 990 | December 2023 | $1,221,343 | $1,241,572 | $2,754,023 | IRS |
| 990 | December 2022 | $1,485,666 | $1,013,571 | $2,828,501 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.
Questions about DYSAUTONOMIA INTERNATIONAL INC
- What is the EIN of DYSAUTONOMIA INTERNATIONAL INC?
- The employer identification number (EIN) of DYSAUTONOMIA INTERNATIONAL INC is 45-5437249.
- Is DYSAUTONOMIA INTERNATIONAL INC tax-exempt?
- Yes. The IRS revoked its exemption on May 15, 2017 and reinstated it effective May 15, 2017.
- Are donations to DYSAUTONOMIA INTERNATIONAL INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does DYSAUTONOMIA INTERNATIONAL INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of DYSAUTONOMIA INTERNATIONAL INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did DYSAUTONOMIA INTERNATIONAL INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of DYSAUTONOMIA INTERNATIONAL INC?
- The 990 for the year ended December 31, 2024 names SHANNON KOPLITZ.
- Who are the officers and directors of DYSAUTONOMIA INTERNATIONAL INC?
- The 990 for the year ended December 31, 2024 lists 7 people; 1 received compensation from the organization, the highest $134,885 (LAUREN STILES JD, President & CEO).
- How much revenue does DYSAUTONOMIA INTERNATIONAL INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $1,111,068, expenses of $1,215,256 and total assets of $2,744,118 at year end.
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