Nonprofit · EIN 45-5242623
CADASIL ASSOCIATION
Tax-exempt · EDINA, MN 55439
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $257,055 | $107,475 | $149,580 | $394,057 | $0 | $394,057 |
| December 31, 2024 | 990 | $150,106 | $177,019 | -$26,913 | $244,477 | $0 | $244,477 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $257,051
- Program service revenue
- $0
- Investment income
- $4
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $2,525
- Travel
- $1,454
- Program services (functional)
- $103,486
- Management and general (functional)
- $3,989
Balance sheet and other
- Total assets, start of year
- $244,477
- Total assets, end of year
- $394,057
- Total liabilities, end of year
- $0
- Net assets, end of year
- $394,057
- Net assets without donor restrictions
- $224,650
- Net assets with donor restrictions
- $169,407
- Gross receipts
- $257,055
- Employees
- 0
- Volunteers
- 30
- Year formed
- 2012
- State of legal domicile
- NJ
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| VINITA BAHL | TRUSTEE Trustee or director | 5 | $0 |
| KATHY SIEGEL | TRUSTEE Trustee or director | 5 | $0 |
| CHERYL GIBSON | TREASURER Officer | 18 | $0 |
| JANE GUNTHER | PAST PRES/SC Officer | 18 | $0 |
| BERTRAM KASISKE | PRESIDENT Officer | 20 | $0 |
| PEDRO DE LENCASTRE | SECRETARY Officer | 18 | $0 |
990 for the year ended December 31, 2024: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| SANDRA TALBIRD | Trustee Trustee or director | 5 | $0 |
| VINITA BAHL | Trustee Trustee or director | 5 | $0 |
| BERTRAM KASISKE | President Officer | 20 | $0 |
| PEDRO DE LENCASTRE | Secretary Officer | 18 | $0 |
| DEBRA ROBINSON | Treasurer Officer | 18 | $0 |
| JANE GUNTHER | Research Ofc. Officer | 18 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 390023, EDINA, MN 55439-0023
- In care of
- % NANCY MAURER
- Mailing address (990-N for 2020)
- 10 SCHALKS CROSSING RD STE 501A-133, PLAINSBORO NJ 08536
- Principal officer (990 for 2025)
- BERTRAM KASISKE
- Principal officer (990-N for 2020)
- Jane Gunther, 10 SCHALKS CROSSING RD STE 501A-133, PLAINSBORO NJ 08536
- Signed the 990
- CHERYL GIBSON, TREASURER
- Phone
- (612) 816-4552
- Website
- CURECADASIL.ORG
- Return prepared by
- GEESLIN GROUP LLC
Mission
THE MISSION OF CURECADASIL IS TO RAISE AWARENESS OF CADASIL, ENSURING IT WILL BE UNIVERSALLY RECOGNIZED AND UNDERSTOOD BY THE MEDICAL COMMUNITY, ENABLING PATIENTS TO BE CORRECTLY DIAGNOSED. WE ARE DEDICATED TO HELPING ALL TOUCHED BY CADASIL,IMPROVING EDUCATION AVAILABLE ON CADASIL AND PROMOTE AND SUPPORT RESEARCH FOR THIS RARE DISEASE
Program accomplishments
- CADASIL IS AN HEREDITARY SMALL VESSEL DISEASE CAUSED BY MUTATIONS IN THE NOTCH3 GENE. THESE MUTATIONS LEAD TO PROGRESSIVE CHANGES IN THE SMALL BRAIN ARTERIES AND REDUCED BLOOD FLOW TO THE BRAIN. WE AIM TO SHARE THESE CADASIL VESSEL-ON-CHIP WITH THE INTERNATIONAL CADASIL RESEARCH COMMUNITY TO PROMOTE CADASIL RESEARCH. WE AIM TO UNITE PATIENTS AND THE MEDICAL COMMUNITY TOWARD THE COMMON GOAL OF TREATMENTS AND ULTIMATELY A CURE FOR THIS RARE GENETIC DISEASE, BY PROMOTING COMMUNICATION, ADVOCACY, RESEARCH, AND EDUCATION. FOR THE YEAR ENDED DECEMBER 31, 2025 THE FOLLOWING CARE PROGRAMS AND ACTIVITIES WERE OPERATED: COMMUNICATION -SCIENTIFIC ADVISORY BOARD (SAB) BECAME FULLY OPERATIONAL AND MEMBERS WERE SELECTED TO REVIEW MDBR GRANT APPLICATIONS -HELD THE THIRD ANNUAL 2025 PATIENT-INVESTIGATOR MEETING THAT BROUGHT PATIENTS, FAMILY MEMBERS, AND CAREGIVERS TOGETHER WITH INVESTIGATORS IN AN IN-PERSON MEETING -PROVIDED ON-GOING PATIENT AND FAMILY SUPPORT BY ANSWERING QUESTIONS SENT TO US ONLINE AND AT MEETINGS AND CONNECTING PATIENTS TO PHYSICIANS WHO TREAT PATIENTS WITH CADASIL ADVOCACY -PROVIDED LETTERS OF SUPPORT FOR STUDIES IN CADASIL RESEARCH -CONTINUED ON-BOARDING OF THE "CADASIL COMMUNITY NATURAL HISTORY STUDY" WITH THE NATIONAL ORGANIZATION OF RARE DISORDERS (NORD) -ADVISING CLINICAL INVESTIGATORS AND SUPPORTING THE RECRUITMENT OF PARTICIPANTS FOR 3 OBSERVATIONAL STUDIES BEING CONDUCTED IN THE UNITED STATES: - THE CADASIL CONSORTIUM NATIONAL INSTITUTES OF HEALTH (NIH) STUDY - THE NATIONAL HEART LUNG AND BLOOD INSTITUTE/NIH CADASIL STUDY - THE CZI-SPONSORED CADASIL STUDY AT MT. SINAI MEDICAL CENTER -HOSTING A MONTHLY MEETING OF KEY INVESTIGATORS TO ENCOURAGE THEIR COLLABORATION AND RESEARCH IN THE CADASIL DISEASE MODELING GROUP EDUCATIONAL -CONDUCTED WEBINARS FOR PATIENTS AND INVESTIGATORS -PRODUCED QUARTERLY NEWSLETTERS TO INFORM THE CADASIL COMMUNITY -MAINTAINING AND IMPROVING AN EDUCATIONAL WEBSITE (WWW.CURECADASIL.ORG) -PROMOTING AN EDUCATIONAL BROCHURE FOR PATIENTS AND FAMILIES ON CADASIL OTHER FUNDRAISING ACTIVITY -COORDINATED & MANAGED THE MILLION DOLLAR BIKE RIDE FUNDRAISING TO PROVIDE RESEARCH DONATIONS SPONSORED BY THE UNIVERSITY OF PENNSYLVANIA ORPHAN DISEASE CENTER. ALL PROCEEDS WENT TO FUND A GRANT FOR RESEARCH IN CADASIL. -REPRESENTED CURECADASIL/PARTICIPATED IN THE CZI SCIENCE IN SOCIETY, NORD AND NEURODEGENERATION CHALLENGE NETWORK CONFERENCES.Expenses $103,486
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 45-5242623
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2012
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $394,057
- Income (IRS master file)
- $257,055
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $257,055 | $107,475 | $394,057 | IRS |
| 990 | December 2024 | $150,106 | $177,019 | $244,477 | IRS |
| 990 | December 2023 | $49,648 | $118,494 | $271,390 | IRS |
| 990 | December 2022 | $256,716 | $28,900 | $340,236 | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-N for 2020 Officer: Jane Gunther | December 31, 2020 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2019 Officer: Jane Gunther | December 31, 2019 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 45-5242623).
Questions about CADASIL ASSOCIATION
- What is the EIN of CADASIL ASSOCIATION?
- The employer identification number (EIN) of CADASIL ASSOCIATION is 45-5242623.
- Is CADASIL ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2012.
- Are donations to CADASIL ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CADASIL ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CADASIL ASSOCIATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CADASIL ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CADASIL ASSOCIATION?
- The 990 for the year ended December 31, 2025 names BERTRAM KASISKE.
- Who are the officers and directors of CADASIL ASSOCIATION?
- The 990 for the year ended December 31, 2025 lists 6 people; 0 received compensation from the organization.
- How much revenue does CADASIL ASSOCIATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $257,055, expenses of $107,475 and total assets of $394,057 at year end.
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