Nonprofit · EIN 45-0524687
FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND
Tax-exempt · COLUMBIA, MD 21045
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $7,006,271 | $2,441,051 | $4,565,220 | $59,633,698 | $103,316 | $59,530,382 |
| June 30, 2024 | 990 | $8,751,135 | $1,309,685 | $7,441,450 | $52,460,807 | $85,288 | $52,375,519 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $8,771,404
- Program service revenue
- $0
- Investment income
- -$1,765,133
- Net gain from sales of assets
- -$1,999,982
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $1,000,000
- Compensation of officers, directors and key employees
- $639,542
- Other salaries and wages
- $341,392
- Salaries, compensation and benefits (total)
- $1,189,026
- Professional fundraising fees
- $0
- Legal fees
- $86,585
- Accounting fees
- $17,980
- Occupancy
- $11,637
- Travel
- $48,582
- Program services (functional)
- $2,402,495
- Management and general (functional)
- $38,556
Balance sheet and other
- Total assets, start of year
- $52,460,807
- Total assets, end of year
- $59,633,698
- Total liabilities, end of year
- $103,316
- Net assets, end of year
- $59,530,382
- Net assets without donor restrictions
- $59,530,382
- Gross receipts
- $9,006,253
- Employees
- 10
- Volunteers
- 12
- Year formed
- 2003
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| JASON D MENZO | CEO Officer | 8 | $126,140 | $504,560 | $93,231 |
| PETER L GINSBERG | COO / ACTING TREASURER, RD FUND Officer | 8 | $91,006 | $364,025 | $85,311 |
| RUSSELL W KELLEY | MANAGING DIRECTOR, RD FUND Officer | 40 | $447,300 | $0 | $85,994 |
| ALICIA KEMBLE | SR. VENTURE ASSOCIATE Highest-paid employee | 40 | $164,205 | $0 | $48,679 |
| JACQUE DUNCAN MD | DIRECTOR Trustee or director | 1 | $0 | $75,000 | $0 |
| CATHERINE BOWES RICKMAN PHD | DIRECTOR Trustee or director | 1 | $0 | $15,000 | $0 |
| JOSE-ALAIN SAHEL MD | DIRECTOR Trustee or director | 1 | $0 | $15,000 | $0 |
| ADRIENNE GRAVES PHD | CHAIRMAN Trustee or director | 1 | $12,500 | $0 | $0 |
| KAREN PETROU | VICE CHAIR Trustee or director | 1 | $0 | $0 | $0 |
| TONY ADAMIS MD | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| JEAN BENNETT MD PHD | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| MARK BLUMENKRANZ MD MMS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| KELLY LISBAKKEN | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| JONATHAN STEINBERG MD | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| WARREN THALER | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
990 for the year ended June 30, 2024: 15 people
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| JASON D MENZO | CEO Officer | 8 | $104,122 | $416,489 | $68,385 |
| PETER GINSBERG | COO Officer | 8 | $72,505 | $290,019 | $63,272 |
| RUSSELL W KELLEY | MANAGING DIRECTOR, RD FUND Officer | 40 | $347,534 | $0 | $64,959 |
| ALICIA KEMBLE | SENIOR VENTURE ASSOCIATE Highest-paid employee | 40 | $135,548 | $0 | $21,753 |
| JACQUE DUNCAN MD | DIRECTOR Trustee or director | 1 | $0 | $75,000 | $0 |
| JOSE-ALAIN SAHEL MD | DIRECTOR Trustee or director | 1 | $0 | $15,000 | $0 |
| CATHERINE BOWES RICKMAN PHD | DIRECTOR Trustee or director | 1 | $0 | $15,000 | $0 |
| MARK BLUMENKRANZ MD MMS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| DAVID BRINT | EX OFFICIO DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| WARREN THALER | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| ADRIENNE GRAVES PHD | CHAIRMAN Trustee or director | 1 | $0 | $0 | $0 |
| KELLY LISBAKKEN | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| JONATHAN STEINBERG MD | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| TONY ADAMIS MD | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| JEAN BENNETT MD PHD | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 6925 OAKLAND MILLS ROAD 701, COLUMBIA, MD 21045-4714
- In care of
- % ANNETTE HINKLE
- Principal officer (990 for 2024)
- RUSSELL W KELLEY, 6925 OAKLAND MILLS ROAD 701, COLUMBIA, MD 21045
- Signed the 990
- PETER GINSBERG, CHIEF OPERATING OFFICER, FFB
- Phone
- (410) 423-0600
- Return prepared by
- GRANT THORNTON ADVISORS LLC
Mission
THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.
Program accomplishments
- THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND (RD FUND) AIMS TO DELIVER LIFE-CHANGING SOLUTIONS FOR INDIVIDUALS WITH RETINAL DEGENERATIVE DISEASES TODAY, WHILE CREATING A PIPELINE OF NEXT-GENERATION AND NOVEL THERAPEUTIC OPPORTUNITIES FOR TOMORROW. RD FUND IS FLEXIBLE IN HOW IT STRUCTURES INVESTMENTS LEVERAGING EQUITY, DEBT, ROYALTY, AND/OR PROJECT CO-FUNDING. ALL PROCEEDS OF THIS HIGH-IMPACT PHILANTHROPIC VEHICLE ARE RETURNED TO THE FOUNDATION TO PROVIDE RESOURCES FOR FURTHERING ITS MISSION. RD FUND ACCOMPLISHES THIS BY INVESTING IN EARLY STAGE BIOTECHNOLOGY COMPANIES THAT ARE FOCUSED ON ADVANCING PROMISING THERAPIES FOR RETINAL DEGENERATIVE DISEASES.Expenses $2,402,495 · grants $1,000,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 45-0524687
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Supporting organization (509(a)(3))
- Donations deductible (Pub 78)
- Supporting organization of unknown type
- Exempt since
- 2004
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H11)
- Assets (IRS master file)
- $59,633,698
- Income (IRS master file)
- $9,006,253
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $7,006,271 | $2,441,051 | $59,633,698 | IRS |
| 990 | June 2024 | $8,751,135 | $1,309,685 | $52,460,807 | XML |
| 990 | June 2023 | $9,316,837 | $1,014,874 | $47,303,067 | IRS |
| 990 | June 2022 | – | – | – | IRS |
| 990 | June 2021 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 45-0524687).
Questions about FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND
- What is the EIN of FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND?
- The employer identification number (EIN) of FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND is 45-0524687.
- Is FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2004.
- Are donations to FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND tax-deductible?
- Yes. It is listed in IRS Publication 78 (Supporting organization of unknown type).
- Which annual return does FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND?
- The 990 for the year ended June 30, 2025 names RUSSELL W KELLEY.
- Who are the officers and directors of FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND?
- The 990 for the year ended June 30, 2025 lists 15 people; 5 received compensation from the organization, the highest $126,140 (JASON D MENZO, CEO).
- How much revenue does FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $7,006,271, expenses of $2,441,051 and total assets of $59,633,698 at year end.
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